Sam_ci

I gave up on doctors, and forgive them. They were not trained to recognize, understand and treat POTS, speaking of which there are no treatment, other than, in MY OPINION, re-training your brain. Accidentally or not, I found out about "amygdala retraining program" ( on CFS site: http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/living-ii-mindfulness) and it all made sense to me. I watched 2 free sessions. I wish I lived in UK and could actually have a direct sessions with this practitioner. I want my life back and I can't wait to receive the material so I could start. Here is the link to You-tube sessions. First 3 are free, and he recommends to start with session #2.

After reading his "HOW THE CFS SYMPTOMS ARE CREATED"(it was emailed to me) it all makes sense to me, I even cried reading it, for it is describing exactly what I am going through on a daily basis. * An overview of The Amygdala Hypothesis a 'vicious cycle' that, once triggered by severe stressors in people with certain risk factors can perpetuate neurological overstimulation, physiological dysfunction, and many physical symptoms. I exhausted all other options, which I was doing on my own.

Here is the link to free 3 hours sessions. He recommends to start with session #2. Also, there is a session for MCS, multiple chemical sensitivity, which I happen to have . I have not watched it yet.

I am starting this 6 mo program. It is for CFS/Fibromialgia, but I belief POTS fits into it as well. http://www.guptaprogramme.com/html/contact.asp. Also, I am starting BSFF, as I believe it will complement, the amygdala re-training.

Increased Levels of Circulating Vasodilators - Stewart, Khan and Spence and now Shibao propose the orthostatic intolerance found in some CFS patients is not due to ANS abnormalities but to increased levels of vasoactive products. Vasoactive products are able to alter how the vasculature – the blood vessels – function. As the first two papers on orthostatic tolerance on this website demonstrated POTS patients appear to have disturbed blood vessel functioning (inappropriately increased or decreased vasoconstriction). Several researchers have believed this is likely due to autonomic nervous system dysfunction but these Stewart, Khan and Spence don’t think so. Read more: http://phoenixrising.me/research-2/the-perils-of-standing-orthostatic-intolerance-and-chronic-fatigue-syndrome-mecfs-i-the-evidence/the-perils-of-standing-orthostatic-intolerance-in-chronic-fatigue-syndrome-mecfs-iii-possible-causes

I have found a good article about low blood volume in people with POTS-CFS. http://phoenixrising.me/research-2/the-perils-of-standing-orthostatic-intolerance-and-chronic-fatigue-syndrome-mecfs-i-the-evidence/the-perils-of-standing-orthostatic-intolerance-in-chronic-fatigue-syndrome-mecfs-ii-types

I take valium when I have to accomplish something big such as flying (I just moved), going places where I have to wait in lines, etc. Interesting. that 1 took 1/4 of Valium twice on my 1hr 20 min flight (plus usual time at the airports), rented a car, drove 2 hrs with the help of a Navigator. The whole trip took 7 hours and I made all by myself. Was not easy, lots of sniffing of "Panic button" , controlled breathing, etc. But I made it. Valium smooths brain overstimulation. Now just thought of going to a grocery store terrifies me. I hear somewhere that colored glasses might help with that. I go to BodyTalk sessions, do Pranayama breathing as well as fire breathing plus meditations. Time will tell. It seems that early mornings I feel better.

I can't believe it, this is EXACTLY how I feel. I mean EXACTLY.