Latacia Posted May 31, 2011 Report Share Posted May 31, 2011 Thought I would introduce myself and do a little venting at the same time. My names Tasha I am a 23yr old mother of two beautiful kids ages 2 and 6. I was offically diganosed with Postural Orthostatic Tachycardia Syndrome2 months ago but I have been dealing with it since teenage years. Not quite sure where I actually originated from though? I had symptoms since age 16 but it didn't affect my life that bad. I found out that I was born with cervical stenosis. Then after I had my son(which was two yrs ago) it seems to be gettin worse. I have also been diagnosed with sleep apnea,fibromyalgia,tmj,ibs,depression,anxiety and interstital cystitis and I don't know if I have some of these issues are due to pots. Sometimes I feel as though my life is spiralling out of control. I feel like I have lost apart of my life. I can no longer go outside for long periods at a time,play outside with my kids,take them to the park. The people closest to me do not understand what I am going through. I finally found a doctor an electrocardiologist who understands my condition I wish I could say the same about all the others I see. I'm glad that I found this forum so I can talk to people who can actually relate to me...thanks for listening! Quote Link to comment Share on other sites More sharing options...
Darlene Posted May 31, 2011 Report Share Posted May 31, 2011 Hi Tee! Welcome to DINET Quote Link to comment Share on other sites More sharing options...
corina Posted May 31, 2011 Report Share Posted May 31, 2011 hi tee601,welcome to the forum! you'll find lots of understanding here as well as loads of information. when you check out the main website you can find information that you might like to share with the people important to help them understand. also there's a "what helps" and "what to avoid" section to try manage your health! knowing that people understand always helps dealing with your personal situation.take care,corina Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted May 31, 2011 Report Share Posted May 31, 2011 Hi! I am almost 22 and came down with POTS when I was 18. I had some symptoms all my life, but I "crashed" at 18. I have one child and its so hard dealing with POTS and dysautonomia when you have that responsibility. All those are related to dysautonomia. I have IBS, ME/CFS and possible autoimmune disorder. Also have scoliosis, but my father has stenosis, so bad backs run in my family.Anxiety/depression are very common in any chronic illness, but you will find a lot of people here have what are called adrenaline surges. They feel like anxiety attacks without the panic. Its your body's natural response to raise your bp.If you ever need to talk pm me!:] Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted May 31, 2011 Report Share Posted May 31, 2011 Hello and welcome to the forum. I am sorry you are having a tough time right now. You mentioned you have TMJ. TMJ CAN be a symptom of Ehlers Danlos Syndrome, which also can cause POTS. Although plenty of people can have TMJ and not have EDS. Just thought I would mention this if it could help. Quote Link to comment Share on other sites More sharing options...
misstraci Posted May 31, 2011 Report Share Posted May 31, 2011 Hi welcome. I'm a little older, 27, with two kids, 5 and 1, but i understand about not being able to do all the things like park, etc. Sorry to hear you aren't feeling well. Hope things get better for you and vent away!!! That is what we're here for. Information and support! Quote Link to comment Share on other sites More sharing options...
Latacia Posted May 31, 2011 Author Report Share Posted May 31, 2011 Thanks to everyone who has responded. Quote Link to comment Share on other sites More sharing options...
Sallysblooms Posted May 31, 2011 Report Share Posted May 31, 2011 Welcome, we are all here for you! Quote Link to comment Share on other sites More sharing options...
Magnesiumgirl Posted May 31, 2011 Report Share Posted May 31, 2011 Welcome! I hope things go better for you and yours from now on. Quote Link to comment Share on other sites More sharing options...
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