dream02 Posted January 2, 2005 Report Share Posted January 2, 2005 Hi All,My name is Denise and I've been doing alot of reading on this site and it's like WOW! I've been struggling with symptoms of POTS for 15 years but was only recently diagnoised a couple of months ago at the University of Birmingham Hospital. Unfortunatly, while they knew what I had they pretty much told me there is no good treatment and that my family doctor could follow me. Because I can't work right now I've moved in with my son just outside Savannah and now I'm looking for a doctor who is knowledgable about this disorder. I refuse to deal with a doctor who doesn't listen to me or tells me it's all in my head...I've had enough of that for a lifetime. Does anyone know of a good doctor to go to in this area? I'll be on TRICARE so also have to find someone who accepts that. I'm really glad to have found this site...it really helps to not feel so isolated!Denise Quote Link to comment Share on other sites More sharing options...
Jillybeanbme Posted January 2, 2005 Report Share Posted January 2, 2005 Hi Denise and welcome!!I'm new to the form as well. I understand your frustration. I too was told that I could follow up with my PCP. My PCP doesn't even ever ask me about it and it's been 3 yrs since I was dx'd!! I'm tired of being tired and I'm going to a local specialist this week who happens to suffer from POTS himself. I have learned more reading posts on here in the past two weeks than I have searching the internet the past 3 yrs!!! The people on here are amazing!!! Good luck with your search for a doctor, especaily with Tri-Care. Tri-Care doesn't pay very much so a lot of doctors don't accept it. Not to metion it's a pain to get Tri-care to give you the referrals you need.Happy New Year & Best Wishes,Jill Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted January 2, 2005 Report Share Posted January 2, 2005 Hi Denise,Welcome to the forum! We do have a physician list at www.dinet.org/physicians.htm. I don't know what types of insurance they take. Best of luck to you.Michelle Quote Link to comment Share on other sites More sharing options...
briarrose Posted January 5, 2005 Report Share Posted January 5, 2005 Welcome to the forum! What kind of symptoms are you suffering with right now? I'm sorry I can't help you with the doctor recommendation because I'm on the West Coast but I do wish you luck.steph Quote Link to comment Share on other sites More sharing options...
DancingLight Posted January 6, 2005 Report Share Posted January 6, 2005 welcome!i just wanted to say that i am glad that you are finding this site so helpful. it is a godsend to so many of us. please do keep pursuing answers and treatment possibilities...i know that i am glad that i did not just take 'no' for an answer! emily Quote Link to comment Share on other sites More sharing options...
Gena Posted January 6, 2005 Report Share Posted January 6, 2005 I know it would be a long drive for you, but the Center for Dysautonomia and Mitral Valve Prolapse in Birmingham, AL is a good place to start. I saw Dr. Sawyer there, she also has dysautonomia and so she can truly empathize with her patients. They do heart ultrasounds, a modified version of the TTT and stress tests at the facilities. Not as sophisticated as Mayo, but they have good physicians and nurses there. I believe its listed on the physicians list link that Michelle posted for you. Quote Link to comment Share on other sites More sharing options...
Eillyre Posted January 6, 2005 Report Share Posted January 6, 2005 Hi Denise and welcome! I'm so glad you found us! As Jill said, this is a great place to get info on all aspects of dysautonomia. It's been such a help and encouragement to me! Good luck with the MD hunt!Angela Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 6, 2005 Report Share Posted January 6, 2005 Welcome Denise! Sorry you had to suffer for 15 years without a dx! I can imagine how poorly you were treated all those years! Well, finally your on the right track and you found us! That is a good turn of events. You are right to work to find a doctor who will treat you with respect and will "help" you through whatever is before you, a team effort I like to say.Hope you are comfortable living with your son and that it offers you the opportunity to rest and get stronger.Best regards, tearose Quote Link to comment Share on other sites More sharing options...
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