AUSTRALIA |
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Professor Murray Esler
Heart Centre
Alfred Hospital
Commercial Road
Prahran
Melbourne
Victoria 3181
61 3 9276 3263
Autonomic Laboratory |
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Dr Chris
O'Callaghan
455 Upper Heidelberg Rd
Heidelberg
Victoria 3084
(03) 9496 5197
Comments submitted by a patient:Dr Chris
O'Callaghan is a Clinical Pharmacologist who sees new patients in his
private practice and he also runs the Blood Pressure Clinic at Austin
Health which specializes in diseases of the autonomic system including
POTS, chronic fatigue syndrome and autonomic neuropathy. |
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AUSTRIA |
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|
Dr. Robert Winker
Division of Occupational Medicine
University of Vienna
Wahringer Gurtel 18-20,
Vienna 1090
01-40400-4747
Autonomic Laboratory
Idiopathic Orthostatic Intolerance (POTS) & NCS
May refer to Neurology Dept. of the University of Vienna
Treats adults |
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CANADA |
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Dr. Jean Cusson
Unite D'investigation Non-Invasive
Hospital Charles LeMoyne
3120 boul. Taschereau
Greenfield Park, Que. J4V 2H1
450-466-5000 x3106
POTS (Syndrome de tachycardie Posturale), NCS (Syncope
Neurocardiogenique), PAF (Bradbury Eggleston)/Secondary Autonomic
Failure, MSA (Shy Drager), Subacute Pandysautonomia
Autonomic Laboratory
Treats adults |
| |
|
Dr. Ronald
Schondorf
Neurology
SMBD Jewish General Hospital
3755 chemin de la Cote Ste Catherine
Montreal, QC H3T 1E2
514-340-8222 ext.2399
Will treat children |
| |
|
Dr. Maxime Lamarre Cliche
Institut de Recherches Cliniques de Montreal
110, Avenue des Pins Quest
Montreal (Quebec) Canada H2W 1R7
514-987-5600
Autonomic Laboratory
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Will treat children 13 years and older |
| |
|
Carlos A.
Morillo, MD, FRCPC, FACC & Juan C. Guzman, MD
Autonomic Disorders Laboratory - Syncope Unit
Arrhythmia Service, Cardiology Division -
Department of Medicine, Faculty of Health Sciences, McMaster University
Health Sciences Centre - Room 3E25-D
1200 Main St. W. Hamilton, Ontario, Canada, L8N3Z5
905-521-2100 Ext: 75616
Autonomic Laboratory
Will treat children 13 years and older |
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DOMINICAN REPUBLIC |
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Dr. David Hernandez
Clinica Dr. Bonilla
Calle Independencia 124
Santiago
Republica Dominicana
809-247-4177
POTS, Neurally Mediated Syncope (NCS), PAF/Secondary Autonomia Failure
Autonomic Laboratory |
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GERMANY |
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Dr. Carl-Albrecht Haensch
Department of Neurology, Univ. Witten/Herdecke
Klinikum Wuppertal
Heusnerstr 40
NRW
D-42277 Germany
49-202-896-2645
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Diabetic Autonomic
Disorders, Autonomic Dysfunction in Intensive Care |
| |
|
Dr. Max Hilz
Department of Neurology
University of Erlangen-Nuremberg
Schwabachanlage 6
D-91054 Erlangen
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Familial Dysautonomia,
Diabetic Autonomic Neuropathy
Autonomic Laboratory |
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ISRAEL |
|
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|
J.
Racanati Autonomic Dysfunction Center
Rambam Medical Center
Bat-Galim, 31096
Haifa, Isreal
972-4-854-2594 x2467
Autonomic Laboratory |
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ITALY |
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Dr. Paolo Alboni
Division of Cardiology
Ospedale Civile, 44042
Cento (FE)
Autonomic Laboratory |
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Dr. Raffaello Furlan
Unita' Sincopi E Disturbi Della Postura
Medicina 2, Ospedale "L. Sacco"
Via G. B. Grassi, 74
20157 Milan
Italy
39 02 39042752
Chronic Orthostatic Intolerance (POTS), NCS, PAF/Secondary Autonomic
Failure, MSA, Fibromyalgia
Autonomic Laboratory |
| |
|
Prof. Alberto Albanese
Istituto Nazionale Neurologico
Via G. Celoria, 11
20133 Milano
Italy
39 02 2394539
Paf/Secondary Autonomic Failure, MSA, Parkinsonian Syndromes
Autonomic Laboratory
Will treat children |
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Dr. Pietro Cortelli
Clinica Neurologica
Via Ugo Foscolo, 7
40123 Bologna
Italy
39-051-209-2929
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Associated Sleep
Disorders
Autonomic Laboratory
Does not treat children |
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JAPAN |
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|
Department of Cardiovascular
Wakayama Medical University Hospital
811-1,Kimiidera,Wakayama City,
Wakayama 641-8509, Japan
+81-73-447-2300
NMS, OH |
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|
Dr. Haruhiko Abe
The 2nd Department of Internal Medicine
University of Occupational and Environmental
Health, Japan
School of Medicine
Yahatanishi-Ku, Kitakyushu, 807-8555
81-93-603-1611 x2432
POTS & NCS
Autonomic Laboratory |
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|
Dr. Masataka Sumiyoshi
Division of Cardiology
Izu-Nagaoka Hospital,
1129 Nagaoka, Izu-Nagaoka-cho, Takata-Gun,
Shizuoka, 410-2295
Autonomic Laboratory |
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Dr. Hidetaka
Tanaka
Department of Pediatrics
Osaka Medical College
2-7, Daigakucho, Takatsuki-shi
Osaka, 569
+81 0726 83 1221
POTS, NCS & Instantaneous Orthostatic Hypotension
Autonomic Laboratory |
| |
|
Dr. Kohei Kita
Hirayama Memorial
Kita Neurological Clinic
5-16-16 Shimomeguro, Meguro-ku
Tokyo 153-0064
Japan
81-3-5768-1235
POTS, NCS, PAF/Secondary Autonomic Failure, MSA (Shy-Drager Syndrome,
OPCA & SND), Acute Idiopathic Pandysautonomia, Idiopathic Generalized
Hypohidrosis, Idiopathic Palmoplantar Hyperhidrosis, Ross' Syndrome,
Halequin Syndrome, Reflex Sympathetic Dystrophy
Autonomic Laboratory |
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MEXICO |
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Dr. Antonio G. Hermosillo & Andrei Kostine
Medica Sur
Puenta, de Piedra 150
Torre II Deopach 716
Mexico D.F. 14050
525-606-7864
POTS, NCS |
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NEW ZEALAND |
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Dr. Ian Crozier, Dr. David Jardine & Dr. Melton
Department of Cardiology
Christchurch Hospital
P.O. Box 4345
Christchurch
64-3-3641021
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Autonomic Laboratory |
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NETHERLANDS |
| |
Dr. J. W. M. Lenders
Department of Internal Medicine
St. Raboud
Postbus 9101
6500 HB Nijmegen
Nederland
31-24-3618819
NCS, PAF/Secondary Autonomic Failure, MSA
Autonomic Laboratory |
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PORTUGAL |
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Dr. Joao Freitas
Centro De Estudos De Funcao Autonomica
Hospital De Sao Joao
Alameda Prof. Hernani Monteiro
4202-451 Porto
351-22-5512-100 x1461
POTS, NCS, PAF/Secondary Autonomic Failure
Autonomic Laboratory
Will treat children |
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UNITED KINGDOM |
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Dr. Arnold Deering
Cheltenham Syncope
Clinic
Sandford Road
Cheltenham
Gloucestershire
England
GL53 7AN
01242 246526
Will treat children |
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Prof. Christopher J. Mathias
Neurovascular Medicine Unit (Pickering Unit)
St. Mary's Hospital/Imperial
College of Science, Technology and Medicine. Praed Street
London W1 1NY
44-207-886-1681
Treats adults |
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|
Dr John
Bayliss FRCP
Cardiology Dept, West Hertfordshire Hospitals
Hemel Hempstead
Hertfordshire HP2 4AD
01442 287087
Treats adults
Dr. Bayliss is a Cardiologist with more than 20
years experience helping people with neurocardiogenic syncope and
related problems such as POTS. |
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|
Dr. Karen
A. McLeod
Consultant in Pediatric Cardiology
Department of Cardiology
Royal Hospital for Sick Children
Yorkhill NHS Trust
Glasgow G3 8SI
44-141-201-0246
POTS, NCS
Treats children exclusively |
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Dr. Julia
Newton
Falls and Syncope Clinic
Royal Victoria Infirmary
Newcastle upon-Tyne
0191 233 6161Comments submitted by a
patient:
Julia is an absolutely brilliant doctor. |
| |
Dr. Evans
Medical
Specialist Group
St. Peter Port
Guernsey
gy4 6uu
Channel Islands
(01481) 238565
POTS, NCS, Autonomic Failure, MSA
Very basic autonomic laboratory
Geriatrics?
Refers to St. Thomas Hospital London |
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UNITED STATES |
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| Alabama |
|
| |
|
The Autonomic Disorders and Mitral
Valve Prolapse Center
880 Montclair Rd. Suite 370
Birmingham, AL 35213
205-592-5765
POTS, NCS, PAF/Secondary Autonomic Failure, Other autonomic disorders
Autonomic Laboratory
Will treat children 15 years and older |
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Arkansas |
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|
Dr. Kaitalin Juhasz-Poscine
Department of Neurology
University of Arkansas for Medical Sciences
4301 W. Markham St., Slot 500
Little Rock, Arkansas 72205
501-686-5838
Autonomic Polyneuropathy
Autonomic Laboratory
Treats adultsComments submitted by
a patient:
Dr.Kaitalin Juhasz-Poscine did a Tilt Table Test
on me in February of 2006. With this test she diagnosed me with POTS.
She told me I should see a cardiologist. She could not treat this
condition. |
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California |
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|
The UCLA Center for
Autonomic Disorders
B200, 300 Medical Plaza
Los Angeles, California 90095
310-794-1195
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Migraine Syndrome,
Chronic Fatigue
Treats adultsComments submitted by
a patient:
I saw Dr.
Frisca Yan-Go for my POTS. I was not comfortable with her approach. She
totally disregarded EDS 3 as a contributor to POTS. She told me yoga,
deep breathing, stretching, Centrum silver, Tums and V8 would be the
base at calming down my autonomic nervous. I
had done a lot of holistic/eastern experiments long before I saw her,
and it was insulting almost to have her lecture me on the basics of
relaxation. She is obviously incredibly intelligent and does a lot of
work with sleep disorders...but didn't seem to listen to the patient. I
was not comfortable enough to go back to see her. I would not recommend
her for POTS if you live in California. |
| |
|
Karen J. Friday, M.D.
Clinical Professor of Cardiovascular Medicine
Cardiac Electrophysiology & Arrythmia Services
Stanford University Medical Center
3A260 MC 5319
Stanford, CA 94305
650-723-7111
Treats adults
Comments submitted by a patient:
I found Dr. Friday to be an
extremely kind, caring, thorough and knowledgeable professional in the
area of cardiology and autonomic dysfunction. The appointment was 2 ¼
hours. During that time she went over my health history thoroughly,
examined me, explained and educated me about autonomic dysfunction very
thoroughly and then answered all of my questions very thoroughly. She
said if I had any more questions I could call or e-mail (which would be
faster). She made some recommendation for follow up with a
gastroenterologist who also specialized in autonomic dysfunction along
with some other changes. I would not hesitate to recommend her and rate
her an A++ doctor. |
| |
|
David
Cannom M.D.
1245 Wilshire Blvd. Suite 703
Los Angeles, CA 90017
213 977 0419
Comments submitted by patients:He is
with Los Angeles Cardiology. He is a world wide expert with
dysautonomias that occur with the heart. ****
His specialty is not dysautonomia.
Dysautonomia is never mentioned in a single one of his 41 articles on
PubMed. The biography on his website doesn't mention dysautonomia
either. |
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|
| Connecticut |
|
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|
Frederick Nahm, M.D., Ph.D.
49 Lake Avenue
Greenwich, CT 06830
203-661-9383
Autonomic Laboratory
Treats adults
Dr. Nahm is the Director of the Autonomic Function Laboratory at
Greenwich Hospital. His interests are in dysautonomias, including small
fiber neuropathies, syncope, and orthostatic hypotension. |
| |
|
Dr.
Jeffrey Kluger
80 Seymour St., P.O. Box 5037
Hartford, CT 06102
860-545-2883
POTS, NCS |
| |
|
| Florida |
|
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|
Dr. Fred Kusumoto
Mayo Clinic
Cardiology 7 East
4500 San Pablo Rd.
Jacksonville, FL 32224
904-953-0323
Will treat children 16 years and older
Comments submitted by a patient:
It isn't very often that I find myself leaving a
doctor's appointment feeling so happy, relieved, and overall impressed.
Between Dr. Kusumoto and Dr. Thompson, it isn't so bad being a
Floridian with POTS anymore. |
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|
Dr. Charles Randy Thompson
8550 University Parkway
Pensacola, FL 32514
850-969-7990
Mainly treats OI, POTS & NCS, although he does see patients with other
autonomic conditions.
Will treat adolescent children and older
As a sufferer of OI/POTS, Dr. Thompson is a board certified specialist
who had to give up Internal Medicine because of this condition. He
returned to the University of Alabama School of Medicine to study under
Dr. Cecil Coghlan. He has been back in practice on a limited basis for
several years, treating only those with autonomic problems.
Comments submitted by patients:
Dr.
Thompson diagnosed me with POTS back in January of this year. He is a
very caring and compassionate Doctor. He has POTS himself, so he truly
understands what I am going through. He is always available to help and
does not hesitate when I need him. He has been so supportive throughout
my ordeal. He is a truly great doctor and person. I feel that I am
getting the best help possible. I thank God for Dr. Thompson and his
help. ****
I thank God
everyday that Dr. Thompson was there when I got sick. I was being given
so many diagnoses but no answers by my other doctors. I lost faith in
the medical system and felt out there by myself. Dr. Thompson gained my
trust back. His compassion and knowledge in the field and willingness
to try new things puts him on the forefront in his field. His quest to
get answers to things puzzling him or see what others are trying or
investigating shows he
cares. He was giving me fluids back in 2002, long before any literature
was showing up on the web about hypovolemia. I highly recommend
Dr. Randy Thompson, not only for anyone to go to but any awards out
there for his compassion to help those of us suffering while he himself
has this puzzling syndrome that takes on many forms. |
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|
Hawaii |
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|
Dr. Irwin Schatz
1356 Lusitana St.
Honolulu, Hawaii 96813
808-586-7455
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Treats adults |
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|
Illinois |
| |
|
Dr. Janice Gilden
Finch University of Health Sciences
The Chicago Medical School
3333 Green Bay Road
#111E
North Chicago, IL 60064
847-688-1900 x84574
POTS, NCS, PAF/Secondary Autonomic Failure/MSA, Diabetes, Mitral Valve
Prolapse
Autonomic Laboratory
Veterans are treated at this location
Dr.
Gilden can also be seen at:
RHC/St. Mary of Nazareth Hospital Center
2233 W. Division Street #200
Chicago, IL 60622
312-770-3455 |
| |
|
Dr. Barbara Deal
Children's Memorial Hospital
2300 Children's Plaza
Chicago, Illinois 60614
773-880-4553
Treats Children
POTS,NCS,Syncope
If you have questions, please contact
Jennifer Winter: 773-880-3066Comments:
Dr. Deal is a cardiologist with a special
interest in dysautonomia. |
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|
| Iowa |
|
| |
|
Dr.
William T. Talman
Autonomic Nervous System Clinic, Dept. of Neurology
University of Iowa Hospitals and Clinics
200 Hawkins Dr. 2100 RCP
Iowa City, Iowa 52242
319-356-8750 or 319-356-2571
POTS, NCS, PAF, MSA |
| |
|
| Kentucky |
|
| |
|
Dr. Amir
Zia
996 Wilkinson Trace, Suite A-7
Bowling Green, KY 42103
270-393-8418
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Autonomic Neuropathy
(including diabetic)
Autonomic Neuropathy
Will treat children 16 years and older
Comments submitted by patients:
Dr. Zia specializes in Autonomic Disorders and did
his fellowship at Harvard. He is my physician, and I know from personal
experience he is wonderful!
****
Dr. Zia has been
my doctor for over two years now. I had symptoms for quite a while, but
no one was able to come up with a diagnosis. After seeing Dr. Zia and
receiving a diagnosis, I have a lot more peace. This is an extremely
difficult disease to deal with and I had been told my some doctors that
it was all in my head. Dr. Zia always reminds me that I am not crazy and
not to let anyone tell me so. That this is a serious disease and I am
trying to cope with it day by day. |
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|
|
Maryland |
| |
|
Dr. Ramesh K. Khurana
Hawthorne Office Park
10780 Hickory Ridge Road
Columbia, MD 21044
410-997-3113
POTS (OI, OT), NCS, PAF/Secondary Autonomic Failure, MSA, Anhidrosis,
Hyperhidrosis
Autonomic Laboratory
Treats adults |
| |
|
Dr. Emmanuel Nsah
Peninsula Regional Medical Center
400 Eastern Shore Drive
Salisbury, MD 21804
410-749-8906
POTS, NCS, PAF/Secondary Autonomic Failure
Will treat adolescents and older
Comments submitted by a patient:
Dr. Nsah is an electrophysiologist, and only sees patients with
autonomic dysfunction (primarily POTS/NMH) or with heart rhythm
abnormalities. As of March 2004 he is accepting new patients from the
Baltimore/DC/Delmarva region. You can contact one of his POTS patients
at
oct02mom@yahoo.com if you wish. |
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|
|
Massachusetts |
| |
|
Autonomic
Disorders Center
Department of Neurology
Beth Israel Deaconess Medical Center
1 Deaconess Road
Boston, MA 02215
617-632-8454
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Orthostatic
Hypotension, Central & Peripheral Autonomic Neuropathy
Autonomic Laboratory
Treats adultsComments submitted by patients:
I
would not recommend the Beth Israel autonomic disorders center.
****
It went very poorly, and I do not
think I will ever get and answer from them. |
| |
|
Anna
Hohler, MD
Boston University Medical Center
Dept. of Neurology
715 Albany Street, C329
Boston, MA 02118
617-638-8456
Autonomic LaboratoryComments:
Dr. Hohler treats dysautonomia, MSA and
Parkinson's disease with autonomic dysfunction. |
| |
|
Paul
LeLorier
Boston Medical Center
88 East Newton St.
Boston, MA 02118-2393
(617) 638-8734
POTS, NCS
Autonomic Laboratory |
| |
|
Peter
Novak, MD, PhD
Autonomic Center at University of Massachusetts
Department of Neurology
University Campus, 55 Lake Avenue North
Worcester, MA 01655
POTS, Hyperhidrosis, Dysautonomia, MSA, Parkinson's
Disease with Autonomic Dysfunction
Autonomic Laboratory
Treats adults |
| |
|
Dr.
Lawrence S. Rosenthal
University of Massachusetts Medical Center
55 Lake Avenue
Worchester, MA 01655
508-334-6194
NCSComments:
Dr. Rosenthal is not a specialist, but he does
perform tilt table testing and prescribe therapies for NCS. |
| |
|
|
Michigan |
| |
|
Dr. Sid Gilman
Department of Neurology
University of Michigan
300 North Ingalls 3D15
Ann Arbor, MI 48109
734-936-1808 or 734-936-9020
PAF/Secondary Autonomic Disorders, MSA
Have plans to develop an autonomic laboratory
Treats adultsComments submitted by a
patient:
I have POTS resulting from
Chiari malformation and EDS. This was really the worst experience I've
had with any physician. |
| |
|
Dr. Felix Rogers
2205 Riverside Drive
Trenton, MI 48183
734-675-2220
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Treats adultsComments submitted by a
patient:
He is a wonderful doctor!! He is the first
doctor I have seen that didn't rush me through the appointment. He sat
down with me for almost an hour and was really listening to what I had
to say. Anytime I have had a problem, he personally speaks to me on the
phone. I have had a wonderful experience with him, and I will continue
to see him! |
| |
|
| Minnesota |
|
| |
|
Mayo
Clinic
Autonomic Neurology Subspecialty Group
200 First Street SW
Rochester, MN 55905
507-284-1588
Autonomic Laboratory
Treat adults |
| |
Mayo
Clinic
Pediatric Neurology Center
200 First Street SW
Rochester, MN 55905
507-284-9974
Autonomic Laboratory
Treats children exclusively |
| |
|
Dr. David
Benditt
Central Minnesota Heart Center at St. Cloud Hospital
1406 Sixth Avenue North
St. Cloud, MN 56303
320-656-7020
800-448-3455
POTS & NCS (Neurally Mediated Syncope, Vasovagal Syncope, Carotid Sinus
Syncope)
Autonomic Laboratory
Treats adults |
| |
|
Dr. Benditt,
Dr. Scott Sakaguchi &
Dr. Fei Lu
Cardivascular Center
Fairview University Medical Center
University of Minnesota
MMC508
516 Delaware Street SE
Minneapolis, MN 55455
Dr. Benditt:
612-625-4401
Dr. Sakaguchi & Dr. Fei Lu: 612-625-3600
POTS & NCS
Treats adults |
| |
|
Nebraska |
| |
|
Dr. Pariwat Thaisetthawatkul
Dept. of Neurological Sciences
982045 Nebraska Medical Center
Omaha, NE 68198-2045
402-559-4023
POTS
PAF, MSA, Pareneoplastic and other autonomic failures. |
| |
|
|
New Hampshire |
| |
|
Dr. Jeffery A. Cohen
Section of Neurology
Dartmouth-Hitchcock Clinic
One Medical Center Drive
Lebanon, NH 03756
603-650-8589
PAF/Secondary Autonomic Failure, MSA & Diabetic Autonomic Neuropathy
Autonomic Laboratory |
| |
|
|
New Jersey |
|
| |
|
Dr.
Nicholas G. Tullo
741 Northfield Ave., Suite 205
West Orange, NJ 07052
973-467-1544
POTS, NCS, Inappropriate Sinus Tachycardia, Chronic Fatigue Syndrome |
| |
|
| New York |
|
| |
|
Julian M.
Stewart
Dept. of Pediatrics
Munger Pavilion
New York Medical College
Valhalla, NY 10595
914-594-4370
Treats Children
Information on Dr. Stewart's current
research study is available on our website at:
http://www.dinet.org/studies.htm |
| |
|
Svetlana
Blitshteyn, MD
6507 Transit Road Unit C
East Amherst, NY 14051
716-531-4598Dr. Blitshteyn specializes in
autonomic disorders, headache medicine and general neurology.
She is highly recommended. |
| |
|
Mount
Sinai School of Medicine
Autonomic Disorders Research and Treatment Program
Department of Neurology, Box 1052
Mount Sinai Medical Center
One Gustave L. Levy Place
New York, NY 10029
212-241-7315
Autonomic Laboratory
Treats adults |
| |
|
Dr. Kiril Kiprovski
Department of Neurosciences
Hospital for Joint Diseases
301 E. 17th Street
New York, NY 10003
212-598-2375
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Orthostatic Hypotension
Autonomic Laboratory
Treats adults |
| |
|
Dr. Ludmilla Bronfin
650 First Avenue., 7th Floor
New York, New York 10016
212-532-6298
POTS & NCS
Treats adults |
| |
|
Dr. Max Hilz
New York University
Department of Neurology
550 First Ave.
New York, NY 10016
212-686-7500 ext. 7755
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Familial Dysautonomia,
Diabetic Autonomic Neuropathy
Autonomic Laboratory
Will treat children |
| |
|
Lindsey Lee Lair, MD
35 East 35 St. Suite 202
New York, NY 10016
917-991-1992
Comments:Dr. Lindsey Lee Lair completed
her fellowship in autonomic and peripheral nervous system disorders. |
| |
|
The
Syncope Center at Columbia Presbyterian Medical Center
Harkness Pavilion, Room 342
180 Fort Washington Avenue
New York, NY 10032
212-305-9940
Treats adults |
| |
|
Louis H. Weimer
Neurological Institute of New York
710 W. 168th Street
New York, NY 10032
212-305-1330
Orthostatic Intolerance (POTS), PAF/ Secondary Autonomic Failure,
Multiple System Atrophy
Autonomic Laboratory
Treats adults
Dr. Weimer primarily performs testing. The Neurological Institute of New
York has a large movement disorders group experienced with MSA, and
there is also a syncope center that treats NCS (See:
The
Syncope Center at Columbia Presbyterian Medical Center).
POTS/OI patients are considered on a case to case basis. |
| |
|
| North Carolina |
|
| |
|
Dr. Laura A. Black
10344 Park Road Ste 300
Charlotte, NC 28210
704-543-9692
Treats children 8 years and older
Dr. Black sees patients with chronic fatigue syndrome/myalgic encephalopathy/fibromyalgia
and related conditions. The clinic performs tilt table testing and cardiopulmonary
exercise testing in the office and treats many patients with OI
(POTS/SOTS & NMH) at the Hunter Hopkins Center. |
| |
|
Dr.
Caroline Klein
UNC Department of Neurology
3114 Bioinfomatics Building, Campus Box 7025
Chapel Hill, NC 27599
919-966-5522
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Autonomic Neuropathy |
| |
|
| Ohio |
|
| |
|
Dr. Blair Grubb
Medical University of Ohio
3000 Arlington Avenue
Toledo, Ohio 43614
419-383-3925
Will treat childrenComments submitted by
a patient:
I just wanted to
say that Dr. Blair Grubb, MD in Ohio is the most informed and kindest
doctor I've ever encountered in my lifetime. He always takes the time to
listen intently to you and always tries to give you new ideas and new
things to help you even if nothing has worked in the past. He doesn't
give up on you. He is very knowledgeable and skilled . His clinics often
run behind schedule because he takes time with each and every one of his
patients. He cares so much about each one of us. He once sent me the
book "When Bad Things Happen to Good People". It was after my first
visit to see him, and I didn't even know that he'd remember who I was.
He is the best and nicest, kindest, smartest doctor ever and he knows an
awful lot about dysautonamia and NCS and POTS. He's written many
articles and journals and books. Thank you for letting me tell you about
Dr. Grubb.
****
He is an EXTRAORDINARY
physician-- the brilliant, yet compassionate, doctor everyone wants. My
24-year-old daughter visited every cardiologist and electrophysiologist
in our Colorado metro area. She tried every treatment and medication
imaginable over a period of 8 years. There seemed to be no help for her.
Though those doctors were also good, reputable physicians, in the end we
were referred to Dr. Grubb. My daughter is now getting her life back on
the treatment he prescribed on her very first visit. We think Dr. Grubb
walks on water! |
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Ohio State University Medical Center
Autonomic Reflex Laboratory
Neurology Outpatient Clinic- EMG Laboratories, 1C
456 West Tenth Ave
Ohio State University Medical Center
Columbus, Ohio 43210
(614) 293-6767
Autonomic Laboratory
Treats adults |
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Dr.
Thomas Chelimsky
University
Hospitals of Cleveland
11100 Euclid Ave.
Cleveland, OH 44106
216-844-3495
Autonomic Laboratory
Will treat children 12 years and older |
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Dr.
Gerald E. Grossman
University Hospitals of Cleveland
Department of Neurology
11100 Euclid Avenue
Cleveland, OH 44106-5040
216-844-8925
Autonomic Laboratory
Comments submitted by a patient:
I went to Dr. Grossman for my diagnosis and my
treatment. He is very good at treating this disease, and he also listens
to what you have to say. He answers all your questions. I never felt
like he was pushing me through the appointment. Very smart. |
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Dr. Barry
DeRan
5705 Monclova Rd.
Suite 204
Maumee, OH 43537
419-897-7611
POTS, NCS
Treats adults |
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Dr. Fetnat Fouad-Tarazi
Head Syncope Clinic, Dept. of Cardiovascular Medicine (F15)
Cleveland Clinic
9500 Euclid Avenue, Cleveland, OH 44195
216-444-5828
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Other Autonomic
Disorders
Autonomic Laboratory
Will treat children
Comments submitted by a
patient:
Dr. Fouad and her
entire staff were knowledgeable, thorough, and respectful. She closely
followed all testing and then made recommendations as she discussed
results with staff members and me, the patient. It was impressive and a
relief after I had a terrible experience at another institution that had
a good reputation for evaluating dysautonomia patients. Things can
change quickly at any institution, so I appreciate the value of this
service. if you can afford it, go to Cleveland! Your health is worth it. |
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David O. Martin, MD, MPH
Cleveland Clinic, 9500 Euclid Ave/F15
Cleveland, OH 44195
216-445-4128
Dr. Martin is a cardiac electrophysiologist at a major tertiary care
referral center and sees a number of patients with POTS/dysautonomia who
have been previously misdiagnosed or non-diagnosed ("it's in your
head"). |
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Michael W.
Consevage
Moffitt Heart and Vascular Group
1000 N. Front Street
Wormleysburg, PA
17043
717-731-0101
POTS, NCS
Treats ChildrenMichael W.
Consevage can also be seen at two other Moffitt Heart and Vascular Group
offices:
Carlisle Office
977 Walnut Bottom Rd.
Carlisle, PA 17013
717-243-6557
&
Chambersburg Office
757 Norland Avenue
Suite 201
Chambersburg, PA 17201
717-217-6881 |
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Leonard Ganz
4815 Liberty Ave. Suite 336
Pittsburgh, PA 15224
412-681-5500
POTS & NCS - May refer elsewhere for
treatment
Will see children |
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Michael B. Goodkin
Suite 2400 Riddle HCC ll
1088 West Baltimore Pike
Media PA 19063
610-565-2100
POTS & NCS
Treats adultsComments submitted by a
patient:
I don't think
there are enough kind words in the English language to describe Dr.
Goodkin. I think the way that he became a POTS specialist explains it
all; he learned about POTS because his daughter has it; and he became a
specialist in it to help other people. He is attentive, prompt, and
phone calls are always returned extremely quickly. The best thing is
that he has a whole assembled team of other doctors for comprehensive
treatment, so all of your specialists are always on the same page.
After two years of struggling to find a diagnosis and several doctors,
it was the most comforting feeling in the world to walk in and within 2
minutes it was "Yep, you have POTS. I understand how you feel, my
daughter has it, and this is what we can do about it". I've been making
progress ever since. |
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Neurological Associates of Delaware Valley
Crozer ACP - Suite 533
One Medical Center Boulevard
Upland, PA 19013
610-874-1184
Autonomic Laboratory
Treats adults |
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Tennessee |
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Vanderbilt University
Autonomic Dysfunction Center
AA3228 MCN
1161 21st Avenue South
Vanderbilt University
Nashville TN 37232-2195
615-322-2318
Email:
ADCResearch@Vanderbilt.edu
http://www.mc.vanderbilt.edu/gcrc/adc
Treats adults onlyThe
Vanderbilt group has ongoing research studies attempting both to
understand the physiology causing POTS and also to access novel
therapies for POTS. Read more about Vanderbilt's research on our website
at:
http://www.dinet.org/studies.htm |
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Texas |
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Dr. Benjamin D. Levine, Professor of Medicine
Institute for Exercise and
Environmental Medicine
Presbyterian Hospital at Dallas
7232 Greenville Ave.
Dallas, Texas 75231
214-345-4626
Will treat children 15 years and olderDr. Levine is currently examining the
mechanisms behind the remarkable gender specificity of POTS. Interested,
newly diagnosed patients who live in the area can contact his office for
further information. Dr. Gil I.
Wolfe
Department of Neurology
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd.
Dallas, Texas 75235
214-648-9574
PAF, Autonomic Peripheral Neuropathies
Autonomic Laboratory
Treats adults |
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Dr. Amer Suleman
The Heartbeat Clinic
7777 Forest Lane
Suite A 236
Dallas, Texas 75230
972-566-4327
POTS, NCS
Autonomic Laboratory
Treats adults
Dr. Suleman is an electrophysiologist with a
special interest in dysautonomias. |
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Vermont |
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Dr. Robert W. Hamill
Department of Neurology
Neurology Ambulatory Care Center
East Pavilion Level 5
111 Coalchester Avenue
Burlington, VT 05401
802-847-4589
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Autonomic Laboratory
Treats adults |
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Virginia |
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Dr.
Hasan Abdallah
The Children's Heart
Institute
3301 Woodburn Road #104
Annandale, VA 22003
(703) 369-9090
Treats Children
Click here to view four other locations
Comments submitted by a patient:
Dr. Abdallah is wonderful. His practice is
almost entirely dedicated to dysautonomia. He sees patients up to the
age of mid-twenties. |
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Washington, DC |
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Dr. Alan
Pocinki
2141 K St. N.W.
Suite 606
Washington, DC 20037
202-223-2282
POTS & NCS
Treats adultsPrimarily sees patients that have orthostatic intolerance
as a feature of another syndrome, such as CFS, Ehlers-Danlos and related
hypermobility syndromes. |
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West Virginia |
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Dr. Robert D.
Hoeldtke
Department of Medicine
West Virginia University Medical School
P.O. Box 782
Morgantown, West Virginia 26506-9159
304-598-4861
POTS, NCS, PAF/Secondary Autonomic Failure, MSA
Autonomic Laboratory
Treats adults
Dr. Hoeldtke is interested in seeing POTS/OI patients who are
dissatisfied with their current therapy, as he is evaluating new
treatments. The patients must be willing to travel to Morgantown, West
Virginia. |
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Wisconsin |
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Dr. Safwan
Jaradeh and Dr. Alexandru Barboi
Department of Neurology
9200 W. Wisconsin Avenue
Milwaukee, WI 53226
414-805-8710
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Small Fiber Neuropathy,
GI/GU dysautonomia, Sweat Disorders
Will treat childrenComments submitted by
a patient:
Dr. Barboi has been an exceptional physician
during the treatment of my personal autonomic condition. He is
open-minded to trying a variety of medications as well as alternative
activities such as acupuncture and massage therapy. He is truly
dedicated to his work, making you feel better, and genuinely cares about
each individual who walks through the door. I have never been under the
care of a more competent and kind physician as he. He is a diamond in
the rough. |
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Dr. Ryan L. Cooley
Heart Care Associates LLC
2801 W. Kinnickinnic River Parkway #777
Milwaukee, WI 53215
414-649-3390
POTS, NCS, PAF/Secondary Autonomic Failure/ Inappropriate ST
Will treat adolescents and olderComments
submitted by a caregiver:
I took
my son to see Dr. Cooley from your Wisconsin list. He was wonderful. He
didn't talk down to my son, he listened patiently, and he even took the
time to check for any news or updates online before prescribing a
medication. |
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Dr. Hiner
Medical College of Wisconsin
Department of Neurology
9200 West Wisconsin Ave.
1000 N. Oak Avenue
Milwaukee, WI 53226
414-805-8710
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Diabetic Autonomic
Neuropathy
Autonomic Laboratory
Treats adults |
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