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Dr Chris O'Callaghan is a Clinical Pharmacologist who sees new patients in his private practice and he also runs the Blood Pressure Clinic at Austin Health which specializes in diseases of the autonomic system including POTS, chronic fatigue syndrome and autonomic neuropathy.

Comments submitted by a patient:

Julia is an absolutely brilliant doctor.

Comments submitted by a patient:

Dr.Kaitalin Juhasz-Poscine did a Tilt Table Test on me in February of 2006. With this test she diagnosed me with POTS. She told me I should see a cardiologist. She could not treat this condition.

Comments submitted by a patient:

I saw Dr. Frisca Yan-Go for my POTS. I was not comfortable with her approach. She totally disregarded EDS 3 as a contributor to POTS. She told me yoga, deep breathing, stretching, Centrum silver, Tums and V8 would be the base at calming down my autonomic nervous. I had done a lot of holistic/eastern experiments long before I saw her, and it was insulting almost to have her lecture me on the basics of relaxation. She is obviously incredibly intelligent and does a lot of work with sleep disorders...but didn't seem to listen to the patient. I was not comfortable enough to go back to see her. I would not recommend her for POTS if you live in California.

Comments submitted by a patient:

I found Dr. Friday to be an extremely kind, caring, thorough and knowledgeable professional in the area of cardiology and autonomic dysfunction. The appointment was 2 ¼ hours.  During that time she went over my health history thoroughly, examined me, explained and educated me about autonomic dysfunction very thoroughly and then answered all of my questions very thoroughly.  She said if I had any more questions I could call or e-mail (which would be faster). She made some recommendation for follow up with a gastroenterologist who also specialized in autonomic dysfunction along with some other changes.  I would not hesitate to recommend her and rate her an A++ doctor.

He is with Los Angeles Cardiology. He is a world wide expert with dysautonomias that occur with the heart.

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His specialty is not dysautonomia.  Dysautonomia is never mentioned in a single one of his 41 articles on PubMed. The biography on his website doesn't mention dysautonomia either.

Comments submitted by a patient:

It isn't very often that I find myself leaving a doctor's appointment feeling so happy, relieved, and overall impressed. Between Dr. Kusumoto and Dr. Thompson, it isn't so bad being a
Floridian with POTS anymore.

Comments submitted by patients:

Dr. Thompson diagnosed me with POTS back in January of this year. He is a very caring and compassionate Doctor.  He has POTS himself, so he truly understands what I am going through. He is always available to help and does not hesitate when I need him. He has been so supportive throughout my ordeal. He is a truly great doctor and person. I feel that I am getting the best help possible. I thank God for Dr. Thompson and his help.

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I thank God everyday that Dr. Thompson was there when I got sick.  I was being given so many diagnoses but no answers by my other doctors.  I lost faith in the medical system and felt out there by myself.  Dr. Thompson gained my trust back.  His compassion and knowledge in the field and willingness to try new things puts him on the forefront in his field.  His quest to get answers to things puzzling him or see what others are trying or investigating shows he cares.  He was giving me fluids back in 2002, long before any literature was showing up on the web about hypovolemia.  I highly recommend Dr. Randy Thompson, not only for anyone to go to but any awards out there for his compassion to help those of us suffering while he himself has this puzzling syndrome that takes on many forms.

Dr. Gilden can also be seen at:

RHC/St. Mary of Nazareth Hospital Center
2233 W. Division Street #200
Chicago, IL 60622
312-770-3455

Comments:

Dr. Deal is a cardiologist with a special interest in dysautonomia.

Dr. Zia specializes in Autonomic Disorders and did his fellowship at Harvard. He is my physician, and I know from personal experience he is wonderful! 

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Dr. Zia has been my doctor for over two years now. I had symptoms for quite a while, but no one was able to come up with a diagnosis. After seeing Dr. Zia and receiving a diagnosis, I have a lot more peace. This is an extremely difficult disease to deal with and I had been told my some doctors that it was all in my head. Dr. Zia always reminds me that I am not crazy and not to let anyone tell me so. That this is a serious disease and I am trying to cope with it day by day.

Comments submitted by a patient:

Dr. Nsah is an electrophysiologist, and only sees patients with autonomic dysfunction (primarily POTS/NMH) or with heart rhythm abnormalities.  As of March 2004 he is accepting new patients from the Baltimore/DC/Delmarva region. You can contact one of his POTS patients at oct02mom@yahoo.com if you wish.

Comments submitted by patients:

I would not recommend the Beth Israel autonomic disorders center.

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It went very poorly, and I do not think I will ever get and answer from them.

Comments:

Dr. Hohler treats dysautonomia, MSA and Parkinson's disease with autonomic dysfunction.

Comments:

Dr. Rosenthal is not a specialist, but he does perform tilt table testing and prescribe therapies for NCS.

Comments submitted by a patient:

I have POTS resulting from Chiari malformation and EDS. This was really the worst experience I've had with any physician.

Comments submitted by a patient:

He is a wonderful doctor!! He is the first doctor I have seen that didn't rush me through the appointment. He sat down with me for almost an hour and was really listening to what I had to say. Anytime I have had a problem, he personally speaks to me on the phone. I have had a wonderful experience with him, and I will continue to see him!

Information on Dr. Stewart's current research study is available on our website at: http://www.dinet.org/studies.htm

Dr. Blitshteyn specializes in autonomic disorders, headache medicine and general neurology. She is highly recommended.

Dr. Lindsey Lee Lair completed her fellowship in autonomic and peripheral nervous system disorders.

Comments submitted by a patient:

I just wanted to say that Dr. Blair Grubb, MD in Ohio is the most informed and kindest doctor I've ever encountered in my lifetime. He always takes the time to listen intently to you and always tries to give you new ideas and new things to help you even if nothing has worked in the past. He doesn't give up on you. He is very knowledgeable and skilled . His clinics often run behind schedule because he takes time with each and every one of his patients. He cares so much about each one of us. He once sent me the book "When Bad Things Happen to Good People". It was after my first visit to see him, and I didn't even know that he'd remember who I was.  He is the best and nicest, kindest, smartest doctor ever and he knows an awful lot about dysautonamia and NCS and POTS. He's written many articles and journals and books. Thank you for letting me tell you about Dr. Grubb.

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He is an EXTRAORDINARY physician-- the brilliant, yet compassionate, doctor everyone wants. My 24-year-old daughter visited every cardiologist and electrophysiologist in our Colorado metro area. She tried every treatment and medication imaginable over a period of 8 years. There seemed to be no help for her. Though those doctors were also good, reputable physicians, in the end we were referred to Dr. Grubb. My daughter is now getting her life back on the treatment he prescribed on her very first visit. We think Dr. Grubb walks on water!

Comments submitted by a patient:

I went to Dr. Grossman for my diagnosis and my treatment. He is very good at treating this disease, and he also listens to what you have to say. He answers all your questions. I never felt like he was pushing me through the appointment. Very smart.

Comments submitted by a patient:

Dr. Fouad and her entire staff were knowledgeable, thorough, and respectful. She closely followed all testing and then made recommendations as she discussed results with staff members and me, the patient. It was impressive and a relief after I had a terrible experience at another institution that had a good reputation for evaluating dysautonomia patients. Things can change quickly at any institution, so I appreciate the value of this service. if you can afford it, go to Cleveland! Your health is worth it.

Michael W. Consevage can also be seen at two other Moffitt Heart and Vascular Group offices:

Carlisle Office
977 Walnut Bottom Rd.
Carlisle, PA 17013
717-243-6557

&

Chambersburg Office
757 Norland Avenue
Suite 201
Chambersburg, PA 17201
717-217-6881

Comments submitted by a patient:

I don't think there are enough kind words in the English language to describe Dr. Goodkin.  I think the way that he became a POTS specialist explains it all; he learned about POTS because his daughter has it; and he became a specialist in it to help other people.  He is attentive, prompt, and phone calls are always returned extremely quickly.  The best thing is that he has a whole assembled team of other doctors for comprehensive treatment, so all of your specialists are always on the same page.  After two years of struggling to find a diagnosis and several doctors, it was the most comforting feeling in the world to walk in and within 2 minutes it was "Yep, you have POTS.  I understand how you feel, my daughter has it, and this is what we can do about it".  I've been making progress ever since.

The Vanderbilt group has ongoing research studies attempting both to understand the physiology causing POTS and also to access novel therapies for POTS. Read more about Vanderbilt's research on our website at:
http://www.dinet.org/studies.htm

Dr. Levine is currently examining the mechanisms behind the remarkable gender specificity of POTS. Interested, newly diagnosed patients who live in the area can contact his office for further information.

Dr. Gil I. Wolfe
Department of Neurology
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd.
Dallas, Texas 75235
214-648-9574
PAF, Autonomic Peripheral Neuropathies
Autonomic Laboratory
Treats adults

Comments submitted by a patient:

Dr. Abdallah is wonderful.  His practice is almost entirely dedicated to dysautonomia. He sees patients up to the age of mid-twenties.

Primarily sees patients that have orthostatic intolerance as a feature of another syndrome, such as CFS, Ehlers-Danlos and related hypermobility syndromes.

Comments submitted by a patient:

Dr. Barboi has been an exceptional physician during the treatment of my personal autonomic condition. He is open-minded to trying a variety of medications as well as alternative activities such as acupuncture and massage therapy. He is truly dedicated to his work, making you feel better, and genuinely cares about each individual who walks through the door. I have never been under the care of a more competent and kind physician as he. He is a diamond in the rough.

Comments submitted by a caregiver:

I took my son to see Dr. Cooley from your Wisconsin list. He was wonderful.  He didn't talk down to my son, he listened patiently, and he even took the time to check for any news or updates online before prescribing a medication.