icesktr189 Posted April 9, 2011 Report Share Posted April 9, 2011 I feel like i have a big ball of anxiety in my chest, like i cant relax it. Sorry sounds weird but i could probably make myself panic right now if i wanted to. Feels like someone shot adrenaline right into my chest. Its awful. Im not sure what to take for it either. I have klonopin but i dont want to be drowsy tomorrow. Quote Link to comment Share on other sites More sharing options...
Godsgal Posted April 9, 2011 Report Share Posted April 9, 2011 A good POTS friend of mine told me she walks around a little bit when she get's those and it seems to help me too. Claritin helps me too if it's related to some type of food. I know that sounds silly to suggest Claritin but my MCAD type responses feel better with that. Quote Link to comment Share on other sites More sharing options...
lieze Posted April 9, 2011 Report Share Posted April 9, 2011 Can you sit or lay down and close your eyes and just focus on your breathing. I spend a lot of time calming myself.You might also try drinking some water to flush all of those stress hormones out of your body. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted April 10, 2011 Report Share Posted April 10, 2011 I get this too - your description isn't weird. It feels to me like a ball of electricity - anxious energy right in the center of my chest. I hadn't had it in a while - but everyday lately. Other than breathing I haven't figured out what to do. I don't think I'm MCAD, but I am hyperadrenergic, and associate it with my wacky sympathetic NS dancing around and acting up. Doesn't feel good - especially right now when I should be asleep! Hopefully some folks will hop on with suggestions Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 10, 2011 Report Share Posted April 10, 2011 I get this too when I have a flare up. People with POTS either produce and/or have trouble clearing stress hormones from their body from what I understand. Breathing exercises can help me. Breath w/ diaphragm rather than upper chest; breathe in, hold and exhale, slowly. There is guidance for calming breathing techniques in various places including Dr. Weil's materials--perhaps on-line. Exercise/stretching can help if you are up for it. Also making sure I am well-hydrated. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted April 10, 2011 Author Report Share Posted April 10, 2011 UGH they are horrible! They always hit at night time really bad and I am usually kept awake all night. I helps for me to go out in the cool air and walk around. Praying we all get some relief soon! Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted April 10, 2011 Report Share Posted April 10, 2011 Spring brings allergies, and my sons suggested could it be all this new pollen? I wish you the best ~Bellamia ~ Quote Link to comment Share on other sites More sharing options...
juliegee Posted April 11, 2011 Report Share Posted April 11, 2011 Read my last posts to you, Dani. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted April 11, 2011 Author Report Share Posted April 11, 2011 Hey macks mom, which one? I am starting claratin tomorrow but my bp issues are out of control. Still waiting to see rhemetologist. Who handles mcad? Do you have to have flushing? I rarely turn red Quote Link to comment Share on other sites More sharing options...
juliegee Posted April 11, 2011 Report Share Posted April 11, 2011 Under "Itchy Adrenaline Surge." Hate to be a broken record... If you are having MCAD symptoms, claritin will help with BP issues. It needs to be taken daily. Take careful note of how you react to it. Flushing is one symptom of MCAD. It does NOT have to be present to make a DX. Check out: www.tmsforacure.org to learn more. Click on mastocytosis on the top to learn more about MCAD & other mast cell disorders. Hugs-Julie Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted April 11, 2011 Author Report Share Posted April 11, 2011 Thank you so much Julie!You have given me SO much awesome advise for awhile now LOL. I just dont know how to bring it up to my doctor because he probably has no clue about it. What specialist deals with this? Sorry I have been so spacey and all over the place, its just so crazy right now beacuse I am in such a rush to hurry and be better. Freak out mode has commenced LOL.I do have very bad allergies to grass but I dont really leave the house. I have sinus issues too. Is that pretty common with MCAD? The reason I fear benadryl is because i once took nyquil and had a HORRIBLE reaction. I know they are different class drugs, but any liquid thing that can make me tired makes me panic. (so annoying)thanks again! Quote Link to comment Share on other sites More sharing options...
juliegee Posted April 11, 2011 Report Share Posted April 11, 2011 Dani-Look on the DINET home page; MCAD is listed as a cause of dysautonomia/POTS. Print that page (which has references to research) and show it to your docs to begin the conversation. A mast cell specialist is the best doctor to see, but there are very few. IF you improve on the MCAD regimen that I have previously described, that will be very telling. MCAD is NOT an allergy problem, it affects every bodily system- especially your autonomic nervous system. I have NO allergies and very low IgE. During an episode, take a zyrtec or claritin if you are so fearful of benadryl. Any H-1 ought to ease things for you. Once again, check out tmsforacure.org to learn more. Click on mastocytosis for a description of MCAD & other mast cell disorders. Feel better-Julie Quote Link to comment Share on other sites More sharing options...
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