Nicole's Mom Posted November 9, 2004 Report Share Posted November 9, 2004 I think to some extent this has been discussed before but here's the problem. It's about POTS and menstruation and while we're at it let's throw menstrual irregularities into the mix. Nicole has PCOS (polycystic ovary syndrome) which automatically means a constant struggle with her hormones to try and get them on an even keel along with menstrual irregularities. She has been to a specialist - who cannot offer much except that Nicole takes the Pill to try and help. Sometimes Nicole has breakthrough bleeding which ends up being a full blown period. Anyway recently for two months she got her period at the proper time with the Pill cycle and each time went downhill from whatever the period does to women with POTS. Then last week she started the Pill again and within 4 days into the Pill she began spotting and then suddenly she had her full blown period and hadn't even recovered from the prior period. She's already so debilitated that to go downhill from her period constantly isn't helping her at all. By the way she had asked her local doc for a higher estrogen dose of the Pill to hopefully stop the breakthrough bleeding and he said he would only give it to her if he gave her a gyn exam which she does prettty regularly but she put it off a bit (that was before this relapse within the relapse while she was climbing out of the May relapse). Anyway now she can't get there at all for the gyn exam. She hasn't seen the specialist in a long time as there was nothing further to gain and has relied on the local doctor to give her the gyn exams. So when I last wrote to this forum about Nicole she was about to get IV saline for a day and then she nixed it because she never ended up heaving. And then this whole period business had made her feel so awful - (plus she is affected by her period way more severely of late than before she was so sick in this present relapse)- so she asked the local doc again for the IV and got on it for a week which is almost up- in two days. So here she has been on the IV saline and got her period again (on top of the prior one) and hadn't recovered physically from the other which erased the benefit of the saline and took her down even more in several ways.I am wondering very strongly if maybe Nicole is a good candidate for that period suppression treatment. I called a relative who knows a mid-wife with her masters degree from Yale. This midwife works at a local hospital delivering babies and she also knows a lot about many gyn issues. She has agreed to call Nicole on Thurs. to discuss ways in which a woman can suppress her period. I don't know if these are natural and/or pharm ways. Do any of you think after what I just told you that suppression of Nicole's period might help her get a foothold on climbing out of this bedridden state she's in? The midwife won't write the prescription so how we get it will be another matter. My brother who is a (recently retired) pharmacist just told me that there is something called Seasonal which is a patch I think that suppresses the period for 84 days. And the midwife may have a few suggestions.How about you all? How do you fare that time of month? I know it depends on your state of health as to how susceptible you are to downturns from periods. Or maybe some of you don't get affected. I have seen it twice in the POTS literature -(ony a few sentences here and there) that periods make a POTS woman worse and sometimes suppression is tried. If you aren't sick of discussing this would you mind giving me some feedback about yourself and maybe your opinion about what I told you about Nicole and should she try to suppress her period as it seems like a major factor that is keeping her in the bedridden state. Also do any of you have menstrual irregularities or do any of you have PCOS? Also I can't help but wonder if there's a relationship to the severity of this illness to the severity of menstrual irregularities. It's not like Nicole bleeds heavily. Her recent hemoglobin count was actually normal. Any iron she takes helps in that way.Also if any of you know of any links that really go into detail about hormones and periods and worsening POTS it would be so helpful then I could show it to Nicole before her phone consult with the midwife.Anything you could offer will be so appreciated.Thank you,Beverly Quote Link to comment Share on other sites More sharing options...
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