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Bruising?


kayjay

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My Dysautonomia doc believes a connective tissue disorder (either a type of EDS or something similar to EDS) is the cause of my Dysautonomia because of my skin and joint characteristics. They're not as bad as a lot of EDS people, but they're just as problematic. I bruise very easily, which is a symptom of it. Would you say you have loose joints?

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Me me!!! I wake up every morning with new bruises on my legs. I get them occasionally on other parts of my body but literally every day a new one appears on my legs. I have EDS and was told that it is because of the thinness of the skin, and that it causes easy bruising. I recently went for my first appointment with a hematologist (my cardiologist recommended it for treatment of the EDS). I can't remember exactly how he explained it, but something about the legs bruise the most because that is where the majority of your blood is through out the day when you are upright... again I don't remember his exact explanation but it made sense when he said it!

I go back to him in a few weeks to discuss things further but last time I saw him he ran a bunch of blood work and was looking for something called "Von Willebrand". He said that is it a bleeding disorder that is very common in people with EDS and that it is basically like a very mild form of hemophilia. I also know that my bleeding time test was abnormal. I haven't noticed a difference but the doctor said that sometimes patients who have this disorder and the severe bruising notice that increasing their vitamin C, just with a daily supplement causes a reduction in bruises.

Hope this helps!!

-Staci with bruises all over her legs

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Do I Bruise Easily?

- Bruises occur when small blood vessels break and bleed beneath the skin.

If you bruise easily, here are possible reasons why, courtesy of the University of Cincinnati's Net Wellness program:

* If you take blood-thinning medications, such as heparin or warfarin; over-the-counter medications such as aspirin or ibuprofen; or certain herbal supplements.

* If you drink too much alcohol.

* If you have a vitamin C deficiency.

* If you have certain conditions of the liver or kidneys.

* If you have certain bleeding disorders, including hemophilia or von Willebrand's disease.

* Normal aging.

from Drugs.com

* aspirin

* celecoxib (Celebrex)

* diclofenac (Voltaren)

* diflunisal (Dolobid)

* etodolac (Lodine)

* ibuprofen (Motrin)

* indomethacin (Indocin)

* ketoprofen (Orudis)

* ketorolac (Toradol)

* nabumetone (Relafen)

* naproxen (Aleve, Naprosyn)

* oxaprozin (Daypro)

* piroxicam (Feldene)

* salsalate (Amigesic)

* sulindac (Clinoril)

* tolmetin (Tolectin)

info from MedicineNet.com

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Health Tip: Why Do I Bruise Easily?

- Bruises occur when small blood vessels break and bleed beneath the skin.

If you bruise easily, here are possible reasons why, courtesy of the University of Cincinnati's Net Wellness program:

* If you take blood-thinning medications, such as heparin or warfarin; over-the-counter medications such as aspirin or ibuprofen; or certain herbal supplements.

* If you drink too much alcohol.

* If you have a vitamin C deficiency.

* If you have certain conditions of the liver or kidneys.

* If you have certain bleeding disorders, including hemophilia or von Willebrand's disease.

* Normal aging.

Drugs.com Med News

What NSAIDS are approved in the United States?

The complete list of approved NSAIDs is very long. The following list contains only NSAIDs that are commonly used:

* aspirin

* celecoxib (Celebrex)

* diclofenac (Voltaren)

* diflunisal (Dolobid)

* etodolac (Lodine)

* ibuprofen (Motrin)

* indomethacin (Indocin)

* ketoprofen (Orudis)

* ketorolac (Toradol)

* nabumetone (Relafen)

* naproxen (Aleve, Naprosyn)

* oxaprozin (Daypro)

* piroxicam (Feldene)

* salsalate (Amigesic)

* sulindac (Clinoril)

* tolmetin (Tolectin)

Reference: FDA Prescribing Information

MedicineNet.com

:)

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the hemo. had me to do a little test and told me not to take advil for 2 weeks (generally take it daily), I definitely noticed that my legs were less bruised. Unfortunately it is the only thing that helps my pain, not even prescription pain killers so I started taking it again. I take florinef as well, I never heard that it caused bruising.

I will let everyone know if I learn anything new when I see the hemo next and get my results from the von wille test.

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I read all the printouts and google for more info. When I need more information than that, I ask the pharmacist to print their complete PDR info as it has much more than what you would get with your take home print out.

Anything that goes into my body I find out what it is and may cause.

http://www.drugs.com/sfx/florinef-side-effects.html

take care all~

bellamia~

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FYI

Because I can't take Beta Blockers they tried me on a trial of Ibuprofen 600 or 800 to blunt the heart rate. (my brain is gone this week due to my fall off, "mount princess bed." ) I broke out with bruises on my stomach. ( my PC said that's the first place they show up when it's getting real bad ) so we cut the dose, then I started getting petechiae starting at my ankles and going up my legs to my knees. It had to be STOPPED and blood cultures x's 2 drawn to make sure I was not going septic. I learned interesting that I was on diflucan at the time and it interferes with all blood culture tests. All antibiotics and antifungal meds will interfere with blood cultures and the docs don't know this. MY portacath surgeon told me you have to be off all of these meds for 10 day before blood cultures can be done to get an accurate test.

I was told to never take Ibuprofen, but once again we were running out of options.... :P

bellamia~

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YOU say your a weeble and you wobble and you don't fall down, are you just bumping into things all the time? that would make one bruise. I've been using that quote since my dx, I actually bought a toy that wobbles to explaine to my grand babies.

Enough to Make Your Blood Thin: Dietary Supplement Dangers - Women's Health Support Forums

http://www.womens-health.com/boards/genera...nt-dangers.html

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Amy, we'd be quite a pair walking across a room together. I walk into everything and walk people right off side walks. I just fell again yesterday after my dive off my bed a week ago. hope you figure out your bruising... I just have to laugh or I'd go crazy.

Take care sweetheart!

bellamia~

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  • 7 months later...

I've always thought that it was normal to have bruises in various stages of healing on my legs at all times. However, I've been going to physical therapy for the past 10 weeks for a back issue and every week she tells me that she's astounded at all of the bruises on my legs. Finally this week I asked her if this was normal and she had a resounding "No!" in reply. I also notice bruises on my arms and have no idea how they got there.

I am not overly flexible (the opposite, actually). But I do have visible pooling in my arms and legs. I like the explanation some gave earlier in this thread that these bruises on our legs are from the excess blood that accumulates there throughout the day.

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Me me me! I didn't start bruising until I got POTS!!

my roomate always comments that it's a great mystery where they come from because all I do is lay in bed!

Bellamia, in regards to the Ibprofen, it surprises me that it would be a long term solution... I got serious stomach ulcers from taking over-the-counter stregnth ibprofen for too long, and that was only a few months! Besides the bruising, did you have any other problems?

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I did have pancytopenia and suggestived that I may have low grade lyphoma along with a history consistent with a Won Willenbrand type bleeding diathesis. I just found soe old doctor's note with all of this and want to readress these issues as of since the gallium scan and cat scan I haven't been able to have contrast scans of my body due to allergic reaction to iodine.

Once again I'm a delicate flower, as I'm sure we all are. I like that so much better than complicated. That's what I think we all should use as a term and my infusion clinic nurse who has gotten to know me has come up with it. Thnk the Lord there are understanding people who see me on a biweekly basis.

xxx's to all~*

BellaMia

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I have had bruises all my life...but I can never remember getting them, even before I started florinef. I've alway just chalked it up to me being weird :ph34r:

Blhorn

my mom used to tell me it was a lack of vitamin c... 8 ) bellamia~*

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I think that in my case there is a familial history of weak blood vessel walls. All of the women on my mom's side have horrible vericose veins. My mom bruises easily also. I've had a couple of specialists suggest a collagen disorder as the cause for my POTS, but I've been thoroughly tested and all results are negative so far. At least there's no history of ruptured vessels or aneurysms. Still, I take vitamin supplements every day (D3, B complex, multivitamin, and calcium with D), just in case a vitamin deficiency is causing any of my issues.

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