Janey Posted September 8, 2009 Report Share Posted September 8, 2009 Yet another symptom thread from me, but my body is going weird at the moment. Woke up, felt awful while lying there (eyes couldn't stand the light, head was already starting to thump, really wanted to go back to sleep) HAD to get up and started very slowly trying to get to my feet, got the usual crazy head, heart thumping, POTsy feelings then suddenly stomach cramps and soiled myself right there and then. I ran to the toilet and cleaned myself and felt like I really needed to lie down. I went back to bed and lay there for ten minutes, deep breathing, felt fine again. Decided to try to get up again, went through the entire process again, soiled myself AGAIN, but now have just stayed standing up. I feel terrible. Is this sympathetic nervous system/POTS? It is only upon standing up that this happens! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 8, 2009 Report Share Posted September 8, 2009 I'm not sure if immediate diarrhea is a POTS symptom(I don't have it). My first thought was Addison's. Have you been checked for it? I know with Addison's vomiting and diarrhea are prominent symptoms when their cortisol is way low. Good luck. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted September 8, 2009 Report Share Posted September 8, 2009 I went through a 2-3 month period where I would have incontinence with my bowels like that. I would always be standing, and then I'd suddenly have to go - and it was too late to get to the restroom. How embarrassing! My neuro thought it was related to my POTS, and thankfully, after about 5 or 6 episodes it hasn't happened again. It can signal some other CNS difficulties/diseases, though, and like sue 1234 said, perhaps Addison's. If it keeps up, I would definitely check into it.Good luck,Jana Quote Link to comment Share on other sites More sharing options...
bjt22 Posted September 8, 2009 Report Share Posted September 8, 2009 I've had this happen. Not totally sure what it is, although sometimes it seems to be when fluid distribution is weird in my body. Quote Link to comment Share on other sites More sharing options...
Janey Posted September 8, 2009 Author Report Share Posted September 8, 2009 Thanks for your replies guys.. I've always felt I had an affinity with the symptoms of Addisons but doubted it when I got diagnosed with Ehlers Danlos (as EDS became the "cause" of everything) rather than anything else.Jeez, I am so fed up of feeling like this... nausea...pressure behind eyes...stomach ache... dizziness.. blegh. Quote Link to comment Share on other sites More sharing options...
Janey Posted September 8, 2009 Author Report Share Posted September 8, 2009 Just one other questions - can you have Addisons AND Ehlers Danlos? Obviously they'd both be the cause of POTS, but could they come together? Or is the likelihood of having two rare syndromes pretty impossible?!Janey Quote Link to comment Share on other sites More sharing options...
sandymbme Posted September 8, 2009 Report Share Posted September 8, 2009 I have had this happen and it is scary and horrifically embarrassing. I don't have any good insight, my doc says I do not have addison's. But I commiserate with you! Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted September 8, 2009 Report Share Posted September 8, 2009 It had happened to me too. So embarrassing! Quote Link to comment Share on other sites More sharing options...
iheartcats Posted September 8, 2009 Report Share Posted September 8, 2009 I never had this type of accident until I had POTS. I've had it once (in the car! it was awful!)...just wouldn't hold.I think it was a combination of my eating habits of the week (not as good), some extra stress, and just the whole digestive issues we sometimes have.No fun. I didn't think I'd have to deal with that type of thing for oh, 40 more years? Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted September 9, 2009 Report Share Posted September 9, 2009 I get this horrible reaction at times. It comes mostly when I am exposed to wide changes in physical activity or changes in temperature. It happened just three weeks ago in a supermarket...I never thought I would share this...Well, as it happened, I had to help take one of our cars to the repair shop. On the way home I decided to stop into the supermarket and get a few items. I don't usually have this brisk activity this early in the morning. The activity and the abrupt change of my body going from the warm outside to the cold supermarket was all it took to send me into an abrupt and irreversible process where just as I sensed the need to use the restroom...oh no, I lost it all in my pants. I was mortified. I had to flee to the restroom and find a way to clean myself up real well. Not one of my better mornings I have to say. I was ever so glad to get home to do my laundry and take a bath.Now, if I think I will be exposed to these changes, I am more inclined to wear protective panties. I also have a change of clothing in my car trunk.It is amazing that some people just never have to think about the things we are always managing. Digestion, elimination, walking, standing, temperature, heart rate, blood pressure, hydration, sleeping, activity, rest, cognition...best regards,tearose Quote Link to comment Share on other sites More sharing options...
Janey Posted September 9, 2009 Author Report Share Posted September 9, 2009 I'm so glad some people get it. I feel more "in control" of this whole illness if I feel I've got symptoms in common with people. Somehow it makes them more normal for me and I don't feel as sorry for myself as I would if I thought I was the only one!Thanks for replying.Janey Quote Link to comment Share on other sites More sharing options...
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