futurehope Posted February 26, 2009 Report Share Posted February 26, 2009 I just ran the 500 mg Turmeric pill past my neuro and he said he is uncomfortable with me taking that dose (esp because I see no improvement) and that the only studies he was aware of re Turmeric is in relation to Alzheimer's patients? So, I'm assuming that the positive Turmeric response in some people is anecdotal not scientific.Also, just be aware of hallucinations. That's all for now. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 26, 2009 Report Share Posted February 26, 2009 I'd be curious if your neuro knows anything about high B-vitamin dosage causing hallucinations? Since both are supposed to increase energy and brain activity...(still looking for an explanation to my "incidents." ) Quote Link to comment Share on other sites More sharing options...
Sunfish Posted February 26, 2009 Report Share Posted February 26, 2009 firewatcher -obviously i'm not futurehope's neuro , but i've been on very high doses of B12 for years as prescribed by one neuro originally and - over the years - agreed upon/ represcribed by several other neuros, cardios, PCP/ internists, autonomic specialists, etc. all that to say that, between my conversations with a good number of doctors in a variety of specialities and my own research/ reading/ knowledge, i'm pretty confident telling you that B12 is NOT something that has any association with hallucinations of any type.hope this helps (& hope you do find the answers you're looking for!), melissa Quote Link to comment Share on other sites More sharing options...
futurehope Posted February 26, 2009 Author Report Share Posted February 26, 2009 My neuro was comfortable with my increased dose of B-1 and my 3 liver pills/day for naturally occurring B-vitamins and minerals. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 26, 2009 Report Share Posted February 26, 2009 firewatcher -obviously i'm not futurehope's neuro , but i've been on very high doses of B12 for years as prescribed by one neuro originally and - over the years - agreed upon/ represcribed by several other neuros, cardios, PCP/ internists, autonomic specialists, etc. all that to say that, between my conversations with a good number of doctors in a variety of specialities and my own research/ reading/ knowledge, i'm pretty confident telling you that B12 is NOT something that has any association with hallucinations of any type.hope this helps (& hope you do find the answers you're looking for!), melissaI've had three different explanations from three different doctors (REM sleep intrusion from sleep deprivation, electrolyte imbalance and/or Alice in Wonderland aura.) I KNOW that whatever happened was a result of whatever was in my B-vitamin (I am beginning to wonder if they were tampered with since it was only one bottle ) I just don't want "that" to EVER happen AGAIN!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted February 26, 2009 Report Share Posted February 26, 2009 many TYPES of B vitamins. B 12 is water soluble and one of the most benign and from what I have read for 19 years is almost impossible to overdose..you just pee out excess.Are you speaking of a SPECIFIC B vitamin variation? Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 26, 2009 Report Share Posted February 26, 2009 Yeah, that's what I read too. Like I said, so many explanations, so few answers. I just know that WEIRD things happened when I took them! Perhaps that bottle had been tampered with. Quote Link to comment Share on other sites More sharing options...
juliegee Posted February 27, 2009 Report Share Posted February 27, 2009 BTW, there is tons of scientific evidence that turmeric is helful for fatigue and improved cognitive function. Don't forget, I learned about this from one of the scientists conducting one of the studies. There is no way that a dose of 500MG could cause hallucinations. It is extremely LOW. Ask your neurologist to provide proof of THAT. (One of my pet peeves is uninformed docs unnecessarily scaring patients!) One of the scientists that I learned about this from- is taking a dosage of 5 GRAMS a day and getting great results. If you don't see improvement, stop taking the turmeric. I am very sorry it wasn't helpful for you. Firewatcher, my oldest brother has just been DXed with NMH and POTS. He also had experienced "Alice in Wonderland" syndrome. I thought he was bonkers. I can put you in touch with him to compare. Be forewarned he runs a company called "Need a NERD."Julie Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 27, 2009 Report Share Posted February 27, 2009 Julie!OOOOOooooooooooohhh! As an avid NERD myself, maybe there will be a connection! Seriously, nobody knows what "it" was, except that it happened in the presence of one of my doctors...his carpet was crawling across the floor. Took me a while to be able to go past the flooring section of Home Depot after that, berber carpet still gives me a bit of a chill! Honestly, it could have been any of the three theories: I was working on 4-5 hours or less of sleep a night for a month straight, it was at the onset of the polyuria/diabetes insipidus, and I got a migraine within a day after each "episode." Quote Link to comment Share on other sites More sharing options...
all4family Posted February 27, 2009 Report Share Posted February 27, 2009 I too find that doctors will poo poo any thing natural that might help, and in the next breath offer double the normal dose of a prescription drug without blinking an eye. Firewatcher, I have had the alice in wonderland effect. That is when they said it must be migrains. I have had other strange visual effects too. but the Alice in wonderland one was weird.Suzy Quote Link to comment Share on other sites More sharing options...
futurehope Posted February 27, 2009 Author Report Share Posted February 27, 2009 I am in no mood to get into a forum fighting match. My neurologist is a very good doctor who happens to be from India. He knows of the medicinal qualities of turmeric and sees no problem with it on food. One of his patients had hallucinations on it, so he did not make it up to scare me. I was not scared.I was sharing what he told me in case it could be useful to someone.If you want to take turmeric, who am I to stop you? Just ignore my post and move on. Touche...... Quote Link to comment Share on other sites More sharing options...
yogini Posted February 27, 2009 Report Share Posted February 27, 2009 Futurehope, thanks for mentioning this. I'm somewhere in the middle. I think turmeric might be helpful. I am optimistic, but realistic, about it and will continue my trial. I think 500 is the standard dose available, so I feel OK with that. To the extent rates for certain illnesses are less in India than the US, it would be hard to attribute that to tumeric because they have a completely different lifestyle. And any benefit probably really depends upon the person and the underlying issues in our bodies, which doctors don't know enough about yet. Quote Link to comment Share on other sites More sharing options...
all4family Posted February 27, 2009 Report Share Posted February 27, 2009 Future hope I certainly wasn't trying to say anything about your doctor in particular, I don't even know him. I did read the post, and took it to heart. I was just making a general statement about doctors in general. Sorry if it offended you. I have no desire to fight with anyone. As a matter of fact I just picked myself up off of our backyard, and was coming in to ask for some advice. I appreciate the advice you offered, and have had trouble with natural things as well as prescription. That is why when I tried it and got diareah I haven't tried it again since. There has to be a middle ground somewhere where you try something, maybe a smaller amount, and if you find it helps keep trying. But I cannot breath right now, and am going to have to be done here. Suzy Quote Link to comment Share on other sites More sharing options...
juliegee Posted February 27, 2009 Report Share Posted February 27, 2009 Oh Dear, FutureHope- no forum fighting match! We generally don't do that here. Please forgive me if I came on too strong. I am the one who initially shared my good experience and I am deeply sorry that the turmeric didn't work for you. Truly. I wasn't being flippant. I hate that you wasted your money and possibly endangered your health. Just google turmeric and health benefits. There are oodles of medical studies. The benefits aren't "anecdotal." That's all I was trying to say. I'm very glad you like your neurologist. So good of him to share his patient's experience as a warning. Instead of "touche", how about TRUCE- Julie Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 27, 2009 Report Share Posted February 27, 2009 I'm gonna stand in the gap on this one. Because most people don't have screwy reactions to certain things doesn't mean that some of won't have them too (not sure that made sense.) I know that my reaction was directly related to whatever was in the jar labeled B-complex because I have since reproduced all the variables (including the sleep deprivation) and NOT had the same reaction I did when I was taking it. Whatever is in that jar is the only thing I have not repeated. ANY substance that messes with brain chemistry can MESS with brain chemistry and cause altered perception!!!!!As my Doctor of Pharmacy father pounded into my brain as a child and adult, just because it says "natural" or "supplement" does NOT mean that it is not a DRUG! IF it has pharmacological action in the body and IS A DRUG!!!Everything in moderation, especially for US! If it works for some, great, but THERE IS NO CURE! yet. Quote Link to comment Share on other sites More sharing options...
yogini Posted February 27, 2009 Report Share Posted February 27, 2009 Firewatcher, you said it well. Any substance can be very dangerous. If one person can tolerate it, even in high doses, it doesn't mean another can. Also, if one person can tolerate it in high doses now, it doesn't mean that it won't cause him/her problems down the road. Forget about supplements, this is true even with FDA-approved drugs that have been used for years. For example, birth control pills cause increased risk for blood clots. My doc told me this only happens in 1 in 10,000 cases, but it is a scary side effect that is important to know about. I don't think empirical evidence is always enough, b/c if you knew the 9,999 other people taking BCPs, you might think there were no side effects. Even for drugs that have been approved and thought to be "safe", we find out about side effects down the road. I remember the fiascos with Vioxx and Seldane, among others,...I took Seldane back in the day! Not meant to encourage or discourage anyone, but these are the things that run through my head when I consider trying supplements. This is why I mostly feel comfortable using drugs that have not only been FDA approved, but have been on the market for ages. I think supplements can be helpful, and hope that they are able to standardize and test some of these supplements soon. Quote Link to comment Share on other sites More sharing options...
beggiatoa Posted February 27, 2009 Report Share Posted February 27, 2009 People that have multiple myeloma use as much as 20 grams of curcumin a day. I've never read any reports of hallucinations and such. I myself have used curcumin in high doses for years and have only positive things to say about it. Quote Link to comment Share on other sites More sharing options...
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