dizzygirl Posted November 15, 2008 Report Share Posted November 15, 2008 hey folks....MY GI symptoms are kicking up pretty badly. Nearly everytime i go from laying/sitting to standing.. I immediately have the diarrhea urge..it is instand with in seconds...but its not just diarrhea... I get the chills and hot at the same.. I break out in goosebumps from head to toe.. i shake uncontrollably internally.. my mouth gets really dry...and i get horrible flushing. oh and really bad cramps in my lower intestines....intense nausea..oh yuckand i have to get to a bathroom immediately...Uhm I've found really nothing to calm my system down.. as i go thru this at times many many times a day... its an obvious autonomic response... i just dont know how to slow that response down!i take levsin for bowel issues.. but when its such a rapid response the repeats over and over.. the levsin doesnt do squat!this has been an ongoing problem for literally as long as i can remember.. even before i had full blown pots symptoms. However.. its becoming quite a pain in my rear...uh literally! LOL... to others that have this type of issue .... have you found anything to help it?thanks Quote Link to comment Share on other sites More sharing options...
delphicdragon Posted November 15, 2008 Report Share Posted November 15, 2008 I get the same thing (exactly!!) when I over-exert. I have no idea what to do to help this other than wait it out. (Sometimes Rescue Remedy helps, rest definitely does.) Wish I had more answers for you, but wanted to say you're not alone. Sara Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 15, 2008 Report Share Posted November 15, 2008 Hi,I have the same problem and it's worst the worst my POTS is. Of course doctors don't know what to do! Quote Link to comment Share on other sites More sharing options...
Maxine Posted November 15, 2008 Report Share Posted November 15, 2008 Dizz,Ugggg! That sounds so miserable---- I wish there was something I could suggest to help out. I'm still trying to get my intestines to move.Have you seen a GI doc? You probably have at some time in the past I'm sure. I hope you can find someone to help you with this and not get blown off.Even though I wish I could get my guts moving, I know that the guts moving too quickly isn't any fun either.Is there a happy medium for us? BIG HUGMaxine :0) Quote Link to comment Share on other sites More sharing options...
EarthMother Posted November 15, 2008 Report Share Posted November 15, 2008 I go thru stints of this (weeks or months) when I am in a bad crash. Some kind of rapid gastric emptying or "dumping syndrome"? I have no clue.Two things that seem to help me are vegtable glycerin -- 1-2 TBL in large glass of water, seems to slow down the rapid stomach emptying. The other thing I still use frequently is 2 ounces of aloe vera papaya juice. Tastes nasty, but seems to help pain, bloating, and other GI ickies.Hope you find something to soothe your system soon.~EM Quote Link to comment Share on other sites More sharing options...
ken870 Posted November 15, 2008 Report Share Posted November 15, 2008 I go thru stints of this (weeks or months) when I am in a bad crash. Some kind of rapid gastric emptying or "dumping syndrome"? I have no clue.Two things that seem to help me are vegtable glycerin -- 1-2 TBL in large glass of water, seems to slow down the rapid stomach emptying. The other thing I still use frequently is 2 ounces of aloe vera papaya juice. Tastes nasty, but seems to help pain, bloating, and other GI ickies.Hope you find something to soothe your system soon.~EMwhere can you get aloe vera papaya juice because my stomach is very painful and bloated. Quote Link to comment Share on other sites More sharing options...
MelissaCrystal Posted November 15, 2008 Report Share Posted November 15, 2008 When I'm really exhausted I get the chills/nausea/diarrhea urge, but usually if I move at all, I throw up in my mouth, even when I'm not full. It isn't as bad as it sounds, but it's embarrassing and annoying, and burns my throat. =/ Quote Link to comment Share on other sites More sharing options...
EarthMother Posted November 16, 2008 Report Share Posted November 16, 2008 where can you get aloe vera papaya juice because my stomach is very painful and bloated.I do a search on the web and buy who ever has good price on shipping. I think I'm using VitaCost right now. Quote Link to comment Share on other sites More sharing options...
delphicdragon Posted November 16, 2008 Report Share Posted November 16, 2008 I take papaya pills when this happens. You can get those at any health food store and they help too.Sara Quote Link to comment Share on other sites More sharing options...
tsampa Posted November 17, 2008 Report Share Posted November 17, 2008 I'm stymptom are the same worst are my pots worst it is.I try to stop this doing sport. but for the moment it is not possible to do sport has usuasl because 2 weeks ago i had an operation of the vesicul, so know my symptom are not not good.presure very down and diahree in the morning... Quote Link to comment Share on other sites More sharing options...
jump Posted November 17, 2008 Report Share Posted November 17, 2008 This happens to me, too, although not as frequently as you describe -- it happens to me when my other POTS symptoms flare, so usually just in the mornings, except on bad days....I've found doing things that control all my other symptoms help with this. I get up reeeally slowly, and when I have that symptom I lie back down again. That usually helps with the chills and sweating although it doesn't help with the diarrhea. I salt load and drink a lot of water. I try not to get too fatigued.I'm sorry you're dealing with this, it isn't fun. I hope some of the advice in this thread helps you.jump Quote Link to comment Share on other sites More sharing options...
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