Dawg Tired

Mine was consistently low for a long time but is now high. I am taking atenolol then Lisinopril was added - at first just at night, then over a course of a couple years it was daytime too so I now take it twice a day.

HA!!! How can we NOT be paranoid??

I feel the same. He was a tourtered , misunderstood soul.

Reading all these posts on this topic make me SO THANKFUL that they were able to diagnos my POTS almost immediately. My frustration now is with finding the best specialist to treat it. After hearing all these awful missed diagnosis I'm now looking back and appreciating the fact that I haven't had to go through all that. How much can a person take without ending up with a psychiatric dx. Good luck to all of you and these have been helpful to read. I often wonder if I'm depressed but I think frustrated is more accurate for now.

Brye

In my book I relate the first Dr kept trying to pass me off as depressed and after many visits - with symptoms worsening - I finally burst into tears and he jumped up, pointing, "AHA!! Here is PROOF! You are depressed!!" And he tried to give me Zoloft.... I told him I wasn't depressed - I was FRUSTRATED beyond belief.

I told him to kiss my rosy red patootie. Well, maybe I wasn't quite that nice....

Good grief! I know I spent several months arguing with the PCP I had at the time - when all this started - that I was NOT depressed; I was frustrated! But it seemed he stayed on that track so I fired him.

I think this is an issue most of us end up dealing with... It's easier for the doctor to call it a psych problem and hand out pills than to find the real problem.

I'm in!

My sisters also seem to be insomniac so we Skype in the wee hours of the morning.

I have a policy - if I am awake more than a half hour I get out of bed. Sometimes I'm up a half hour or so and return - sometimes I'm just UP all night.

Sleep?? What IS that???

Earth Mother - I love the video! Thanks.

Flop, Thanks for letting me know. I am so happy it has helped!

Well, you know, sometimes I make enough to buy a pair of dangly earrings off of e-bay, What more could I ask for?

I have had a lot of positive feedback and people have told me it has helped them understand us better - and THAT was the main goal!

Amazon is now listing my book!!

Dawg Tired on Amazon

I checked in to listing it on there when I first published, but it was too expensive. Now they are listing it at no cost to me!

Maybe instead of my usual $3 a year I make off of it, I will make $4 this year LOL!!

My wonderful husband and I spend more time together.

I had time (!!! LOL!!) to write and publish a book.

Now, when my sisters want to take me along on their travels, I'm free to do so - and they always have me installed in a room by 2pm.

Coffee is a must-have for me. Without it I am more symptomatic. At first, the doctor told me to stay away from it, But I got worse and worse.... To the point where I felt like I was going to fade away and die.

And so.... Since I was "going to die", I decided to enjoy coffee.... I mean, I figured if I was gonna go, enjoy what I had left!

But a strange thing happened - I got BETTER!! Hmmm....... So now 1-2 cups of coffee every morning is a MUST.

Congratulations! You are extremely fortunate.

I know exactly what you mean. For me, just getting out of the house wears me out. Even the walk to the mailbox.

I have been married for 9 years to the most amazing man alive. When we got married I was a nurse, working full-time and he had crashed a plane 9 years ago - so he had medical issues (and needed insurance) of his own. 2 years into the marriage, I got sick.

Never has a man and his WHOLE family, rallied around anyone like he did.

But there are some days when he simply says, "I'm sorry, I just can't deal with you today". And I understand. We have friends who can step in for the odd day now and then.

There ARE people out there who understand, and who will (willingly) deal with us.

Just keep looking!

No, it isn't just you...

I have times when I feel like I just can't get flat enough on the mattress!

As for what to do about it - We would ALL like to know that. Unfortunately, it just seems to be part of it.

Early on, I just knew I would find an answer, get a "magic pill" and I would be well. But it seems all of us are still on that search.

Rest. Try not to "push through it" because you can't.... you just end up wearing yourself out worse.

I'm on lisinopril. I take it at night because I tend to have "supine hypertension". It doesn't seem to have any effect on my symptoms.

Thanks!! She was out jumping around enjoying the sunshine yesterday.

Born New Years Eve, her mom's name is Holly.

Her name is Nina - pronounced "9-uh" since she's our '09 blessing!

Momma Holly checking on her new daughter.

Holly says we have peeked long enough!

Ugh....

We had some elderly friends, and every time they heard me or Hubby (head injury!) had seen a new doctor they acted like we were "cured"! THEN they would complain to us because we weren't!

Surely they would.... I mean, I would think it would be deemed "Medically necessary"....

Echoing the healing thoughts for Sunfish and Flop.

Hoping for news... willing to wait for GOOD news.

Pat57 - I think *many* of us on here might be related.... LOL!!