Dawg Tired

I do have brady issues - and they have had to set mine to kick on around 50 - which was a normal resting HR for me before I got sick. However - since my biggest problem is tachy, and it does nothing to help that or correct arrythmias, I'm just viewing it as another down side to this stuff.

The big upside for ME?? I no longer have to get MRI's - they always came back negative anyway and since I'm claustrophobic, that's a good thing!

I have sick sinus syndrome and a pacemaker. Can't tell it has helped.

Ugh... I lose so much other people actually complain about my hair being everywhere.

I cringe when some unkind %&*#@!*@ comes up to me and hands me several strands of hair and gives me a hateful "Here, this is YOURS!" like I can glue it back on or something. I have even cut my hair short and it is still very pronounced. Kind of like I leave a trail of shed hair behind me.

I know what you are talking about! I have the same problem. I just chalk it up to another thing that has been taken away.

I quit driving the second time I got "lost" driving home from work (10 miles in a straight line). I would be driving along then suddenly I didn't know where I was.

Brain fog, vertigo, gray-outs. It has to be early morning AND I have to feel really good before I will even try!

I suppose I am "blessed"... When Hubby and I married, HE was the sick one. He had crashed an airplane in 1990. Just a few days ago we celebrated the 19th anniversary of the crash. Why did we celebrate? We thanked God that he didn't die'

I didn't meet him until 1997 - before I was ill - while I was a nurse in a clinic and he was a medical courier. His family all chose to be in denial about any residual problems he might be having due to the HEAD INJURY he had from crash! They kept telling him he was fine. They ignored the daily depression, frustration, and physical pain he was in. Don't get me wrong - these aren't mean, cold, unfeeling people. They were simply presented with a situation none of them could understand - a gead injury.

So we married in Feb of 2000 - I might add we were married within 3 weeks of when he proposed. I would have waited a few months but I recognized an important truth. HE NEEDED MEDICAL INSURANCE!!!

Antidepressants and a neurologist made a real difference in his quality of life. We still don't have a handle on his headaches - but things are better now. Also, due to my income, he was able to be a househusband. I mean, really, anyone who looked at him from day to day could see he had no business in the working world.

But in 2002 I became ill. Fortunately, I had a wonderful husband who was extremely well versed in chronic illness. We were able to take stock of our situation and do what we needed to do.

At this point - for over half of our marriage we have both been ill.

While I realize that is a bot unusual, it has had it perks. We understand each other, we both make a lot of doctor/hospital/testing visits. We both know what pain is, we are both very aware of what fatigue is.

Looking back - me marrying this man who had many medical problems of his own has been a blessing to me. I can't help but think that at some point - for these men who have walked out on the women who love them - THEY will need care and comfort and it will NOT be there for them.

Kind of poetic justice. (Uhm, yes, I have seen this happen!) The Universe has a strange "leveling" effect...

I am SO sorry to hear this! Please, take care of yourself during all of this.

I noticed on my LTD there was a clause that said if I started getting SSDI then the LTD would deduct the amount of the SSDI payment from the amount I received from them. However... Since LTD kicked me off after their review it never came to that. They decided my "condition did not meet their criteria". My SSDI lawyer filed suit against them but it never went anywhere. just another way for the "system" to mess with us.

Happens to me too. Doc says it is just a fact of life for me.

Yes, good for him to be LOOKING!

As a matter of fact - I feel better if I have a course of antibiotics once a year or so.

I say "autonomic nervous system problems, things that are automatic in you are manual in me""

Pretty much what I say too.

Yesterday morning I was stung on my left index finger by a bumble bee... I immediately made an aspirin/water paste and applied it and the initial pain went away, but I grayed out and woke up on the floor.

I took 2 Benadryl (per Dr instructions last sting I had) and when the finger was throbbing, heart racing, and still foggy I took 2 more Bebadryl 30 mins later - still Dr instructions,

I have known for some time that red wasps will do major BAD things to me - and admittedly this is the first bumble bee sting.

But I wonder if I reacted to the sting - or just anxiety from being stung? Yesterday afternoon I took an extra Atenolol because my HR stayed over 120 all afternoon.

BEEware of BEES!!

Okay - did a different search under "centchroman" and found this:

centchroman

Looks interesting.

I have never heard of it. I talked to my niece - she is a nurse in an Ob-Gyn office and she talked to the doctor and he had not heard of it either. I tried doing an internet search and didn't really find any answers either.

Are they a prescription item? They seem to fit in the "Natropathic" category, but there just doesn't seem to be much info.

Right now, my world is couch/bed. We are having a family reunion the end of this month, but I have already warned everyone I will NOT be going on the outings.

About half of the time I can make church once a week.

YAAAAYY!!!! I know exactly what you mean - a few monihs ago I went on a "road trip" with my sisiers - the first time ever it was just us girls. I had to be careful, and do a lot of thinking ahead - but I had a blast!

Sisters were a bit upset because I spent the next month flat - but I didn't care! It was worth it for the great time.

Enjoy, and savor the trip.

Fire your doctor. Then forget about it. Ill informed opinions aren't worth worrying about.

I heartily agree!

Thanks Ernie! Morgan, glad all went well!

My Blackberry is my best friend - it tells me when to take my meds, it holds MANY lists and it is my calendar. When I leave the house, hubby or David check me to make sure I have it on me. I have my "ICE" (In Case of Emergency) numbers in it. I also have a Medic Alert bracelet.

Good grief!! I find car repais one of the most stressful things that can happen.

I hope you enjoy Yellowstone - when we lived close we really enjoyed it. I loved sitting on the shore of Lake Yellowstone feeding the birds... Against all the rules, but I enjoyed it!! (I'm BAD!!)

Is this one of them?

APP mattress pad on e-bay

I used to be a nurse. Fortunately, at the time I became ill, I was an insurance nurse and not working on patients. I would be sitting at my desk and suddenly space out. I quit driving (BEFORE diagnosis) the second time I found myself driving down the road and had no idea where I was. Actually, I was on my way home from work both times - really fortunate for me, I was able to call Hubby and he knew the roads around Billings, Montana well enough to direct me home.

One morning, about 4am, I woke up and had no idea where I was - who I was - who was in bed next to me... I needed to use the potty and I had NO idea where the bathroom was. I was scared out of my mind. Gradually, things started coming back to me. But the episode made me understand why a person with amnesia would wander away from home and be lost.

Our brains don't get oxygen and we kind of lose consciousness while we are technically awake.

Mine didn't get better with my pacemaker or any other treatment.

Brain fog is one of the worst symptoms of this condition.

So sorry... I had to put my license on retirement status in 2003 because with -0- income I just couldn't afford it since I wasn't able to work.

But I know my way around the Medicare website and I help people file insurance appeals and such. I don't get paid, but it helps me feel like I'm making a contribution to the world.

Treasure your good days, sleep through the rest...

Sometimes a good cry helps. But most of the time I cuddle one of the kitties - they have been real lifesavers for me!