Jump to content

JAQUIROUIN

Members
 View Profile  See their activity

  • Posts

    81

  • Joined

  • Last visited

 Content Type 

Everything posted by JAQUIROUIN

  1. JAQUIROUIN
    Hello, I also I have Sjogren's syndrome and pulmonary hypertension.
  2. JAQUIROUIN
    Hello, this video is wonderful. I bought it, and I sent him to Mexico. Ga I served much. Thank you.
  3. JAQUIROUIN
    Good afternoon, I wonder if there will be some group will travel i To California since late November. I would like to attend. And knowing them. Thank you have a nice day.
  4. JAQUIROUIN
    Hi, How many of you have fibromyalgia with dysautonomia? Have a nice week!
  5. JAQUIROUIN
    PLease make de diference use the words: ask me which is the dysautonomia where ever you want Its for all that have dysautonimia http://www.facebook.com/photo.php?fbid=1712954387818&set=o.122709864474918&type=1&theater Have a nice day!
  6. JAQUIROUIN
    Hi! May 12th. World Day to raise awareness about the dysautonomia Wears a badge that read: ask me which is the dysautonomia Work together! Have a nice weekend. http://www.facebook.com/photo.php?fbid=1711885321092&set=a.1469671945909.2063729.1356916035&type=1&theater
  7. JAQUIROUIN
    Hi! I have POTS and Syndrome Sjögren. Any of you have this? Have a nice day!
  8. JAQUIROUIN
    I invite you to Mexico to participate in the second national meeting of patients with dysautonomia. www.disautonomia.com Have a nice day!
  9. JAQUIROUIN
    THank you, for yours answers. I´m going to investigate more about it. Have a nice day!
  10. JAQUIROUIN
    Hi! I want to know tha If We have dysautonomia, our inflamation its more than in other people? Have a nice week!
  11. JAQUIROUIN

    I am happy with the life!

  12. JAQUIROUIN
    Hi I have the experience with twitter and I can ?t make more contact with people. Why don?t make a twitter. Have a nice day Jaqui
  13. JAQUIROUIN
    HI SOME OF YOU KNOW ABOUT SOME CONGRESS ABOUT DYSAITONOMIA? THANKS JAQUI
  14. JAQUIROUIN
    So sorry. I undersand you, because some years ago I felt that. Really you need to go with a doctor, because your hearth need to rest. Maybe you need some medicine for don?t feel that. Could I put your yuotube video in my web? www.disautonomia.com Have a nice day. Sincerly Jaqui
  15. JAQUIROUIN
    Hi, I live nearly this places and are son pretty. Have a nice week
  16. JAQUIROUIN
    Thank you!! I?m going to talk with my dr about this. Have a nice day both. Jaqui
  17. JAQUIROUIN
    I don?t know if my dysautonomia have some relation whith POTS or SNC? Are you know something? Thak you, Have a nice week.
  18. JAQUIROUIN
    wow, that was I lived with my diagnosis. Do ypu know wish is the name o that season of "House" Thanks!
  19. JAQUIROUIN
    yes I was like 18 minutes and then they put me a medication for put me a tube for my lungs. I was in UTI for four days with the tube thaks for your aswer have a nice day
  20. JAQUIROUIN
    Hi! Some days ago I had a status epileptic, I didn?t know if this have relation with POTS. Are you know? Thaks for all have a nice day!
  21. JAQUIROUIN
    Hi! My Dr. said me that I have vasculitis and I don?t know if it have to be with POTS? Are you know some of this? Have a nice day!
  22. JAQUIROUIN
    Hi I have my ANA positive then the doctor made me a SS-A y SS-B for Sj?gren and it was positive I have POTS and for me its so tired because I have to live with both diseas. But I am studing all the treatments of tb oth diseas. Don?t worry. You need to have information and learn how to live with both. Have a nice day!
  23. JAQUIROUIN
    Are you know about some alternative medicine for help POTS?
  24. JAQUIROUIN
    Hi I had have many problems with my lungs and few days ago the neumology say me taht I have asma. Some of you have asma and POTS? Thank you Have a nice day
  25. JAQUIROUIN
    Its an other good idea, now I?m thinking about what kind of help I?m going to buy. than you, Have a nice night!
×
×
  • Create New...