SunsetParadise49

Thank you SO much everyone! Someone from another site I belong to also mentioned the CI possibilty....when I researched it, I did have many of the symptoms.

Also, to whoever mentioned IBS, my family doctor thinks that I have IBS but I need my GI doctor to confirm the diagnosis...that will be sometime in January.

I have tried taking high doses of Cranberry pills but they have not helped what so ever.

I have not seen Dr. Grubb though I hear a lot about him! He's an excellent doctor, and you should be prepared to have a long wait in the waiting room. Make sure to take plenty of water and salty snacks for your wait. I think I've heard that your appointment with him usually lasts pretty long...not possitive though!

Good Luck!

I get the slow heartrate as well. Like April said, when it is slow, it feels like it is pounding and even feels like it's racing sometimes. I don't take beta blockers so I can't help you there.

Take Care!

My symptoms can change in an instant as well. Dysautonomia is very unpredictable.

For a little over a year now, I've been getting urinary tract infections. I get 1-2 a month, and once in a while I won't have one for a while....but that doesn't happen too often. I finally saw a urologist last Thursday. He is starting to think that they really were not uti's after all, but something else. Sometimes I will have blood in my urine, but no infection.....no kidney stones showed up in the stone study test (ct scan).

Does this sound like anything any of you have gone through? I doubt that this problem I've been having is related to Dysautonomia but I thought I'd post anyway.

(One possibility that the urologist mentioned are pelvic spasms.)

Thanks,

Gwendolyn

Awww! How cute!!!

Glad you're doing better!

Congratulations!!!!

Good luck on Friday !!!

Let us know how it goes!

I hope Chrissy has a great appointment!

I swear that I see things sometimes when I am feeling POTsy. Dont worry, you're not alone!

Me too!!

You're not alone though!

I had one two years ago before my getting sick.

I'm sure you'll do fine!

Take Care!!

My understanding on Florinef is that it does elevate your blood pressure.

Hope you feel better soon! And I'm sorry to hear about your mom! I hope that the sores heal quickly so they can operate.

Take Care and feel better !

Hi, I'm glad you joined us, Rose! Everyone gave you great advice!

Phenobarbital, a barbiturate, is used to control epilepsy (seizures) and as a sedative to relieve anxiety. It is also used for short-term treatment of insomnia to help you fall asleep.

This medication is sometimes prescribed for other uses; ask your doctor or pharmacist for more information.

from: http://www.nlm.nih.gov/medlineplus/druginf...682007.html#why

I know Shan, so I'm sure she won't mind me answering for her.....she's the first person, the other girls do not have POTS. They're just her friends!

Welcome! I'm glad you joined us!!!

I hope she wins!

Thanks for sharing that with us, Michelle!

Stress defiantly makes my POTS worse. I crash, and stay there for a while. Avoiding stress when at all possible is a good idea. I know it's kinda hard, but it does help!

I've been dealing with night sweats too. I crack the windows, open them up more if it's still not enough, I have a big fan sitting on my night stand that I turn on, and I have my ceiling fan! Maybe try experimenting with your blankets...take some off, see how you do at night. Another thing that helps me, is sleeping with no pants on, they trap my body heat which just sets me up to a huge night sweat!

Good luck Julie ! Let us know how it goes!!

Wonderful news!

I'm so glad you're home Melissa!

((((hugs))))) I hope that the day has been flying by for you!