SunsetParadise49

So sorry to hear you're in the hospital. Get lots of rest so hopefully you can be home very soon!!!!

Take Care, and thinking about you!

Gwen

Nina, those are great pictures!

Tell Teri Happy Birthday from me please.

That's great news Amy! I hope you continue to see improvement!!

Good Luck!!!! ! We're both entering our senior years just at different levels lol!

once in a while I notice that but it's just with one or two avators...never everyones. I'm always logged in so I'm guessing it's my computer or the avator itself.

Feel better Melissa!

I keep walking. I'm not sure if it's exactly the best thing to do or not but it works for me. If it's REALLY bad though I find somewhere to sit until it passes.

wow, that's neat!

Hi Madeline,

I don't like bananas very much either. I'll eat them if I have to but I defiantly don't want to haha! I take Florinef although I don't think it is helping me much. I'm glad that you've joined us.

Take Care

Hi Holly and Welcome! !

I'm glad you found us and had a quick diagnosis. I too had a really quick one. I passed out early in the morning and by noon time, my family doctor told me that he thought I had NCS...just needed some testing to make sure.

I'm glad that you got the results but sorry they were positive. Good luck at the consult.

wow! That's so great!

Hi, they also do have iron that you can be given by iv's. My mom is anemic and the last time she was in the hospital because of that they gave her a bag or two of iron. We then found out that iron given by iv's is very hard on your blood vessels and she was back in the ER after only being home one day. It turned out she had a huge blood clot from her hand up to where your arm bends. My mom takes iron pills too and the only side effects she's ever complained about were leg pain. We think that she does have POTS because she has symptoms like me.

I hope that you've found something that is working for you!!!

Congratulations!

Pleae keep us updated!!

I'm often freezing...for instance right now I'm wearing long sleeved pajamas and pants lol. I think it's because most of us here have poor circulation. My feet are usually always freezing and sometimes they turn a blue/black color because they're that cold!

Wishing you lots of luck at Mayo! I hope that you find it to be a little easier to get there then you are expecting it to be....good luck! Take Care!

Glad you are at home Melissa! Take Care and Rest Up!!!

I've taken so many kinds of antibiotics for UTI's. I keep getting them and we're trying to get to the bottom of them. Some did make me a little more dizzy and have more black out episodes but I got through them. Pyridium is a life savor. I get cramps more so then burning and tylenol/ibuprofen do not help at all. But as soon as I take Pyridium the cramps disapeer!

Feel better!

Wow, how exciting!!!! I'm so proud of you.....congrats !!!

I guess some doctors live in a dream life!

You said that right!

My first cardio. (who claimed to know about NCS but really knew nothing) said that I would get better when I was in my early 20's. And he said this, "I never see any old people with NCS...." We knew that was bull because the month that I passed out for the first time, a friend of my mom's and grandparents passed out and was diagnosed with NCS.....she's in her 50's or evven 60's!

The cardio who I have now (who dx'd me with POTS, not just NCS) said that it will take me 5-6 years to feel any better than I do today. He said that sometimes Dysautonomia can get bad again when you enter your 40's and 50's.

I'm glad that you are back from the ER. I'm sorry that you had to go through all that. I'm so glad that they had you out sooner then what the lady had said. Feel better!!!

That's so cute!

Wishing you lots of luck Alexia! I hope everything goes well for you!

Congrations! Wow, that must be so neat living close to Assateague!