SunsetParadise49

Since you do have TMJ, maybe your jaw is getting ready to act up again. My TMJ was undercontrol for about two years...no symptoms what so ever. But about 2 months I would get these extremely sharp pains in my face, and also around that time, my jaw began clicking. It stopped after a few weeks so maybe that's what's going on with you.

In the meantime for the pain, maybe try some kind of compress, heat maybe? Or take Tylenol or some other kind of pain reliever.

*hugs* Hopefully it will pass without giving you too much trouble!

Melissa, I am keeping you in my thoughts and prayers. I pray that they can find out what is and wrong and fix you up so you can get back to swimming! Take Care Melissa! *hugs*

Thanks Nina for clearing that up. I go to the dentist on Monday so I was freaking out a little!

I have a question, I thought that only MVP patients had to be on antibiotics for going to the dentist...should POTS and NCS patients be on them as well?

I know EXACTLY what you mean. I have a list of things that I'm not sure if I should bring up or not with my doctors. I'm always bringing something up with my family doctors. They're great, but I don't want them starting to think that I'm a hypochondriac....then there's my POTS doctor who answers rudely when I bring something up and either says, "that's normal" or "I can't do anything for that." So I'm a little hesitant bringing things up with him.....I know exactly what you mean though.

But, I think you should bring it up at some point especially if you end up getting urinary tract infections. (That's another part of my problem.)

My thoughts and prayers are with your mother. I hope they figure out what is causing all of the blood clots....*hugs*

I have this problem right now. I am trying to get it figured out....go in for some sort of Urology test this Friday to see if anything shows up. Deffiantly get it checked out though! *hugs*

Sorry, no clue as to why he would ask that! I'm sure somebody around he will have an idea though!

Good Luck, Susie!

Feel better soon Melissa!

I'm glad that it is out...but sorry they didn't keep you a little longer.

*hugs*

It wasn't a movie, I saw it too, it's really a tv show something like Grey's Anatomy and ER...it's called Strong Medicine. I know nothing about the diet either but from what the show said about it doesn't sound like it would be good for us.

Yep it's a fact that HEDS folks are not tall and skinny. On my EDS board (not EDNF) we did a poll on this and the results were all over the place. Some people were skinny but most were not. We also have many tall people as well as short!

You guys are too funny!

Here are some links that I thought you all would enjoy! The one is a game, use your arrow keys!

http://www.icq.com/friendship/pages/browse_page_19989.html (this is the game one)

http://www.icq.com/friendship/pages/browse_page_7944.html

http://www.icq.com/friendship/pages/browse_page_16959.html

http://www.icq.com/friendship/pages/browse_page_18991.html

Enjoy!!!

lol well I'll still be thinking of you!!!

When is your surgery?

I take .2 mg of Florinef, not sure about you, but if I were weaning off it I would do something like this.

(below is how I would wean myself off Florinef if I had to)

DAY 1- take .2mg

DAY 2- .1mg

DAY 3- .2mg

DAY 4- .1mg

and so on for a week

then

DAY 8- .1mg

DAY 9- cut the pill in half, and take one half

DAY 10- .1mg

DAY 11- take the other half from Day 9

use the schedule for a week, when you get to the week of taking the half pill and none, then you would probably just stop.

With the help of your doctor, come up with a plan like that (that's how I've been weaned off SSRI's in the past). I've stopped taking Florinef before cold turkey and I crashed real badly so it's important to do it correctly.

Hi Gayla,

I can not believe that I forgot to put this in my reply to you, but I did! Anyway, my surgery was in the morning and it was already planned that I would stay the night so they could be sure my vital signs weren't doing anything out of the "ordinary." We had to get it approved by the insurance company which was a big pain in the you know what but it was well worth it.

Take Care!

Hi Gayla,

I had my gallbladder out a little over a year ago. The surgery itself went fine. I had a little trouble waking up from the anesthesia though but it wasn't that much of a problem. Recovery was painful.... I was in SO much pain .

I hope your sugery goes well ! I'll be thinking of you!

Take Care,

Gwendolyn

I guess you're asking how we increase our salt intake? If so, I just salt my food a lot. Eat salty foods like pretzles etc. Some people take salt pills....I couldn't keep them down but I know that for some people they work.

Yay!!! I'm glad you had a great appointment!

It wouldn't hurt. If they feel that it's too out of their league, they'll tell you....I would say go for it and bring it up!

Take care!

Merry Christmas everyone!!!!

I give my friends information on Dysautonomia. If they really care about me, then they will take the time to learn about it. Giving the DINET brochure is a wonderful way of educating them. After they learn about Dysautonomia, they may know a little bit better what they can do for you.