JenniferInOhio

After Dr. Fouad confirmed POTS last week, she said that she would either start me on florineff or do another test (hemodynamic). It is supposed to track a red blood cell and see how long it takes to get from my heart to my lungs?!? They have to inject me with some sort of iodine I think. Has anyone had this test? Please tell me what I should expect... Dr. Fouad said that based on the results of this test, she'll know whether to prescribe the florineff. I'm thinking about cancelling the test and just seeing how I do on the beta blocker. I'm scared of tests and medicines. It's shocking that I'm even taking a beta blocker.

Where are these located? I'd like to take a look!

No, not yet, and I hope it's not something that I develop.

Wow - I didn't realize there were so many different medications used to treat this. Obviously, many of you take some meds for other reasons too. Thank you so much for sharing.

Another question for you all...resting heart rate? As I'm sitting here typing it is fluctuating between 53-58 bpm. What's the norm with everyone? What's considered too low?

Thank you for the warm welcome! Jennifer

Sorry for all of the questions. I will probably have a lot of them, as for some reason the doctors aren't giving me the info. I need. I was taking my beta blocker before bed. The last 2 days, I switched it to the morning. It has seemed to lower my heart rate more during the day than when I was taking it before bed. Just wondering what works best for all of you! Jennifer

Thank you ~ I'll go look right now.

I'm sure this has been asked a few hundred times before. Is there a past thread that I can look at? Just wondering what everyone takes? Right now, I'm on nadolol (beta blocker). Also drinking a lot of gatorade.

Hi. I'm so glad I found this site. I need some answers and hope that I will be able to find some. I'm 31 years old, married with 2 children, ages 3 and 1. I've always had palpitations that earlier this year was diagnosed as PACs, PVCs, and SVTs. I had a 24 hour holter test in March that showed my average heart rate to be 91 with several hours over 100 bpm, and an hour where I was over 120 bpm. My cardiologist was not worried and so, in I go for a diagnostic laparoscopy for endometriosis. Several hours after the procedure it happened. I got up and felt this warm wave rush from my belly to my chest (thank goodness I was already in the ER for a catheter because I was unable to void). My heart rate was around 130 lying down. I kept feeling the rushes of heat and then my heart rate would increase dramatically. I was admitted to the hospital where I was monitored for 2 days. Eventually, my heart rate was pretty normal when lying or sitting, but would dramatically increase whenever I got up. My cardiologist discharged me with the diagnosis of inappropriate sinus tachycardia. Well, after coming home and researching on the net, I knew that I did not have IST - I had POTS. I just got back from seeing Dr. Fouad at the Cleveland Clinic who comfirmed that is what it is. She took wonderful notes and history from me, the testing was wonderful. They told me I had POTS and basically wanted me to leave?!?! I started crying. I want someone to help me with this and they seemed uninterested. I'm hoping maybe someone could answer the questions that they "didn't have time" to answer... 1. What is the long-term effect on my heart? Isn't it bad that my heart has been racing like this for who knows how long? Is my heart damaged? If it's not damaged yet, will it become damaged? 2. At what point do I need to stop what I'm doing? My resting heart rate (with beta blocker nadolol) is around 65-75. The nurse at Cleveland Clinic told me to rest at 90. If I rest at 90, I'd be sitting around all day long. For example, if I'm cleaning at 110, should I stop even though I feel okay? 3. What is florineff (sp)? Any bad/good results from this drug? 4. Right now, all I have is the increased heart rate (weird feelings in my chest when this happens). Will I get more symptoms? Thank you so much for reading. I know it is so long. Thank you for your patience. Scared and lonely, Jennifer