MarcoS108

Whenever you do eat carbs are you eating them with enough fat and protein? You may find by doing so that it helps with reactive hypoglycemia. I sure know that if I do not eat fat and protein (Olive oil, coconut oil, nuts, seeds, meat) with a carb source (starches, fruit) I will have a severe reactive hypoglycemia reaction and will cause a big POTS flare up as well as major anxiety/mood issues. If this doesn’t resolve it maybe you should look into Addison’s disease as low cortisol will cause low blood sugar.

You can try one based off LMNT recipe. 16 oz water 1/2 teaspoon salt (Celtic sea salt or Redman real‘s) 1/16 heaping teaspoon potassium citrate powder (source nutrition brand) 1/8 teaspoon epson salts 1/8 or 1/4 teaspoon Stevia extract powder 1000 MG sodium 200 MG potassium 60 MG magnesium

Not sure, all the organ systems in the body are connected in someway, shape, or form so it would not surprise me.

The great thing is the human body has amazing potential for healing. If you look into the work of Dr. Joe Dispenza--according to him he has people healing their Parkinson’s disease, people stage four cancer, and other chronic health conditions through quantum healing methods and using the science of neurology and physiology to back it up.

I am supposed to see them next Friday as my mom wants me to see a POTS specialist. The one guy (Dr Barboi) has a year long wait

No, what I was trying to say is there are different ways someone can have a reaction to a food and that most doctors will test with only one of those ways (IgE). For example, someone may get a skin prick test with gluten or dairy and show up negative with IgE but if tested with IgG would show a positive reaction to that food. One may get blood testing for this, but truly one of the best ways to find out is to just cut out a food and re-introduce it a month later. Many with autoimmune conditions try the AIP diet and find it works wonders for their symptoms. Many with gut issues try the SCD or GAPS diet and find it is extremely beneficial. The IBS diet can be pretty beneficial at first especially if the individual has SIBO, but the only downside is those fermentable foods provide nutrition to our gut biome in the colon. The gut biome has huge impacts on human health ranging from the immune system, mental health, hormones, etc., so while it could be helpful at first it could be harmful in the long run. The important thing is that someone with POTS may find helpful, as well as other dysautonomias, is to find their inflammatory triggers as inflammation causes an increase in IL-6 which can increase the tone of the sympathetic nervous system

If you are dealing with auto immunity there may need to be some important lifestyle changes in order to dampen the immune system. Getting adequate amounts of Vitamin D can be important if your levels are low. . Two huge things that can worsen POTS symptoms though are food intolerances and blood sugar management. Most doctors are only testing for IGE reactions but those are immediate. The immune system will also react to a food with IgG and IGA which can be tested with a panel from Cyrex labs. I followed the auto immune Paleo diet, and it was extremely useful for me with finding food intolerances and managing autoimmunity. The other thing that can be very useful is stabilizing blood sugar. If you get a glucose monitor you can check what your blood sugar is when you’ve fasted for somewhere around 12 to 14 hours. If it is in the 50s or 60s that is a sign of Hypoglycemia and you’ll want to make sure to not go long without food although we already have to do this as it is hard to eat a large meal with POTS. You may also want to make sure to eat an adequate amount of fat and protein with carbohydrate to avoid reactive hypoglycemia cause that is also a huge sympathetic stressor. Hope this is helpful

Vitamin C you can potentially help if you’re having histamine issues so that’s a plus. Unless you are taking like 10 to 15 g of fish oil every day you should not experience blood thinning. I take both and have not had any issues.

Yeah I get this too usually when my cerebellum is overstimulated. Cerebellar damage is my cause of POTS and the cerebellum has an inhibitory affect on the vestibular nuclei while also receiving input from the vestibular apparatus in the inner ear. This is why gaze stability exercises are a prescription for POTS in functional neurology. They’ve helped me for sure. I've had it assessed by someone that gives RightEye exams. They are great for assessing brain and eye health

Yeah, the stretching of the rectum from the liquid is supposed to stimulate parasympathetic reflexes and the caffeine itself stimulates peristalsis so it’s supposed to have a synergistic affect versus just a water enema. There’s more info on it in case anyone is interested. I just know there seems to be a lot of digestive complaints with POTS and I’ve rarely had any myself. I was doing coffee enemas before I got diagnosed and then started doing them more frequently when I got diagnosed.

Does anyone on here use coffee enemas to improve their vagal tone? I know cardio is supposed to be good for the vagus nerve (heart rate), but coffee enemas are also supposed to be really good in terms of the digestive side of the vagus nerve as well as triggering the gag reflex and gargling. These are the brain exercises listed in Dr. Datis Kharrazian’s book “why isn’t my brain working” which was referred to me by my functional neurologist.

This doesn’t surprise me as my healthcare practitioner who’s a functional neurologist says the treatment he does for POTS is focusing on brain health (improving circulation, stabilizing blood sugar, addressing causes of inflammation, etc.) and gaze stability work.

According to my healthcare practitioner, who had POTS but has it in remission, POTS is always secondary to something else. He always emphasizes on working on my brain health versus getting fixated on addressing my autonomic nervous system. His mentor, dr. Kharrazian, has found that damage to the cerebellum is what he sees as the most common cause of POTS. Overactive basal ganglia can also be a driver of POTS which is seen in POTS patients from PTSD. In functional neurology vestibular rehab is commonly used to treat POTS which involves stability work (balance workouts) and gaze stability exercises.

Yes, I spent a few months doing one before I had pathsI spent a few months doing one before I had POTS as I wanted to see if I had any food intolerances

It is odd, I never had issues with my digestive system with my POTS (IBS, GERD, etc). If I eat a meal too big I’ll have to lay down for a couple hours. I can’t even imagine a couple days from one meal.

I am just curious to see if anyone else on here started to develop a fear of eating after developing their dysautonomia. Mine got to the point where I got down to 112 pounds as a 5’8 male and my metabolism got so low where I could only eat around 700 cal a day without it being too difficult on my autonomics. It turned out each time I was eating in fear it will create an auto immune response and I wasn’t absorbing any of The nutrients from my food

Also, do you take B12? Taking some methylated B12 and methyl folate may help if you have a slow methylation cycle

Have you tried seeing a functional neurologist? I think you will be able to get more I have a deeper look into what’s going on with you because that definitely sounds neurological. When that happens to you does it also feel like you are falling? A sensation as if the room or your body is shifting/moving? If so, that’s a pretty good indicator of cerebellar dysfunction which is also a very common driver of POTS

It may have helped with your POTS because it is helping clear out dopamine from your basal ganglia which are a common cause of POTS as well as OCD and a hyperactive mind. This is one of my drivers of my POTS as well as cerebellar damage. Vitamin B2, riboflavin, is also very important for the methylation cycle so taking that may help a lot. A fair warning your pee will get very yellow after you take it.

Yes

@ElizaangelicaWhen you sit upright with better posture it requires more muscular contraction therefore more oxygen and blood flow. In my opinion, it is also common to see more of a hunched over posture when there is a decrease in firing from your motor cortex which would indicate to focus on brain health. One of my causes of POTS is basal ganglia dysfunction which also includes anxiety, OCD like tendencies, and muscle twitches.

@MikeOThat can also happen if you eat a meal without adequate fat and protein to slow the release other carbohydrates into the bloodstream as well. Same goes for snacks

@MikeOYes, this will especially be the case if you eat a meal too large, too much carbohydrates (blood sugar/insulin effects on the brain), or too much fat/protein (take longer to digest). If you get sleepy after a meal that is generally a good sign you are eating too many carbs as the sleepiness is coming from GABA and serotonin in the brain. I find I always feel worse when this happens

@Haidar Badrando you also have anxiety as well? Muscle twitches, anxiety, and OCD like tendencies are usually a good indicator of basal ganglia dysfunction. They are a group of neurons in the brain that can influence your autonomic‘s and are one of my causes of POTS (as well as cerebellar damage). It may be of use if you find someone who is a functional neurologist or a functional medicine practitioner who has studied from the Kharrazian Institute.