DSM3KIDZ

I think I have some sx of I.C. that comes and goes but never had a full blown flair. My heart goes out to you and try to get some rest like your doc mentioned.

I hope you can get it undercontrol and I don't know if there is a connection. I personally think their is a connection as to why many parts of my body are wacky but the docs can't put it together.

Dayna

same with me my bp is fine it's my hr that goes up and that's how I got the POTS dx.

Dayna

I'm so glad Melissa is home finally home. I hope they can manange her pain soon.

Hang in there sweetie

Dayna

I've been on 75 mg of Lyrica for about 4 days and my hr has increased alot. 95 while sitting to 135 while standing. My normal is 80 sitting 105 standing.

Is this just a side effect that will go away? Has anyone else experienced this?

I'm suppose to addd another 75 next week but I'm not sure.

Any suggestions?

Dayna

I posted the same question last night. I started it today 75mg -1wk than 2x a day. I'm taking it for migraines also. The pharmist said I might have increased headaches for a few days but they will subside.

Today I just feel more tired than normal but it's better than incompacitated that I got when I tried Topamax.

Lets compare noted and see how it goes.

Dayna

My doc just px this for migraines. After alot of research I see it's used for ALOT of conditions. Does anyone use it for migraines? Anyone have success with it?

Dayna

My doc told me to take it once every 3 days. Haven't tried it yet and am still on.1 a day.

Dayna

I take airbourne if I feel a cold coming on or if I'm going to be around someone who is sick.

It helps me

dayna

first time I had the eggs . Second time I had a HORRIBLE beef/liver stew at 8:00 in the morning. I literally had to hold and pray I wouldn't puke otherwise we couldn't do the test.

With the eggs I layed down for 3 hrs.

With stew I stood up every 15min for 3 hrs.

I really hope you get the answers you need to feel alittle better.

Dayna

My husband has very very low testosterone and we're still searching for answers on why. So basically the pressure is off for now. He takes testosterone and it helps alittle but we are both capable and only have relations maybe once a month................maybe not. This used to be a big problem in our relationship for me because I didn't think it was normal for a young man to not have a sex drive that's why he had tests done and his testoserone was like 50 instead of 1200.

Now after this illness and 3 little kids (who knows how I got pregnant 6x) I secretly find it as a blessing because I don't have to feel like I'm holding out on him.

Don't get me wrong there are days I feel sad like our relationship is lacking, but over all health wise it's fine.

Dayna

That sounds awesome. I never thought of having a trainer come to my house. I always wanted to get one but was worried about having to commit to driving and leaving the house to go to an overstimulating gym. What a great idea Thank you for sharing this with us and I'm happy your enjoying it.

Keep it up

Dayna

I am so sorry to hear all that you are going through. I wish I had some suggestions for you. Do you live near family?

I wish I was close enough to help you. I won't be a big help but at least you wouldn't have to be alone.

I'm so sorry sweetie

Dayna

I thought I was anti-depressant intolerant because last year I tried them all and couldn't tolerate any. My doc decided to try Wellbutrin and what do you know I could tolerate it and it took my nausea away (not 100%) than I need something for anxiety/panic attack and zoloft didn't work in the past so I tried the name brand sertrline and sure enough I could now tolerate it. It did take about 8wks for all the side effects to go away but the major one I had was aggitation and I counteracted that with xanax for a short period of time.

Now every thing seems to be alright. I don't know if I was just too sick last year to handle them or what but maybe give wellbutrin a try if you haven't already. It is an activating drug so you might need something to couteract the aggitation it might make you feel for awhile.

Good luck I wish you the best

Dayna

I did a search and nothing came up for a beta blocker bisopolol. Anyone familiar with it?

Dayna

My mom has them and my doc also thinks she has signs of autonomic issues though very very minor. But my doc is whacky so who knows. I have a few small ones and wonder if I will get more like her.

She loves that capri's are in fashion!!!!

Dayna

That's great that you have an enviroment that is understanding of your illness. If I could find that I would take the opportinity in a heart beat. All you can do is give your best shot.

Good Luck

Dayna

That's horrible I will be praying for him and you as well.

Dayna

Julie thank you for the information. I will remain positive and hope all goes well for me. (and you)

As for dairy free, do you than take calcium supplements? also does your insurance cover therapy or do you pay out of pocket?

Thanks for your support

Dayna

Thanks everyone

I do have bone spurs in my shoulder and that's why it hurts. I should send my doc my MRI's.

Julie could you explain what Integrative Manual Therapy is.

Thanks

Dayna

Thanks Donna F. I'm actually not depressed just scared and feel alittle sad thinking one of my 3 kids might have to endure all this at 27. Know what I mean.

Thanks for your reply, It is a new doc and the other ones told me this is probally viral and should go away or get better I guess this is the first doctor that sorta gave me the worse senerio right off the bat. I guess I'm alittle stunned.

Dayna

Every doctor has their own opinion I just hate hearing news that I'll be facing this forever. I like being lied to only when they say their is a chance it will go away. It makes me feel less defeated.

I might not be posting alot lately I'm trying to adjust to my lifestyle with denial and I don't feel like thinking of this illness every minute anymore.

I hope you'll all have good days ahead. I'll check in when I'm more willing to accept my docs prognosis.

Let me mention he basis this all on my shoulder hurting for unknown reasons for unknown years so who knows. He was very human which I've been waiting to find a nice new doctor so that's good.

He also admitted that doctors can do the most damage to us by not listening to our problems. First doctor to admit other docs are ****.

Dayna

Do you do IVIG for the Autonomic Neuropathy?

Dayna

It has helped alot with my nausea. Everytime I try to stop it the nausea comes back.

Dayna

I love mine also. It took awhile to get used to but now I'm worried I won't be able to wear them in the summer because I feel they are helping

Dayna

That is so sweet. Sounds like you have a real caring husband.

Dayna