Elianne

Hi, I was diagnosed with Ehlers Danlos Hypermobility type about 7 years ago at age 52, bringing a lightbulb moment of relief that I wasn't a hypochondriac! I have subsequently had a secondary Fibromyalgia diagnosis. Ialso have CHD, having been referred because of chest pain, which I am not convinced was angina in nature, however following an angiogram, I do have severe plaque in my small arteries, and just diffuse in my main one. My symptoms are not constant stantith tupical angina pain so could be Fibromyalgia related i mentioned to my cardiologist when I last saw him about two years ago, about my dysautotonomic symptoms, and he said more or less that I should live with them. He suggested a referral to London, which after my GP obliging, was told by them that it needed a consultant rheumy referral. This all got complicated and I didn't bother takin it further i would just like someone's thoughts on my symptoms. I don't think I have pots as my Pulse is always slow i.e. in the 50s. If I get a sudden startle or anxiety it will go up to the 70s, but generally less than 60. my symptoms chronic fatigue ( comes with EDS and Fibromyalgia also) insomnia - never feel refreshed. New Fitbit shows only one cycle of deep sleep about 20 mins Could wake at night and be away for a couple of hours. Tried everything, and now on Circadin ( melatonin)see if it will help, but 8 days in not much happening chest pain ( particularly when really cold weather, ) hypotension ( just took it now and it was 88/60 but generally systolic 90s but when I go to GP or Any appts, it is usually 135 ( white coat!) postural hypotension - lots of faints in teens and twenties, but now know my limitations and always warn people if o a, having a procedure and get up slowly faulty thetmostat for heat/ cold. Clammy one minute and could be shivering the next cold hands/ feet nose- even if heather nglocks off in a warm home I am aware instantly IBS - could have sudden bloating, and with it comes yawning with inability to 'catch' yawn/ get breath when eating or afterwards reflux swallowing issues - food e.g. Rice, smallbits will stick in my throats and I will regurgitate and reswallow. Video fluoroscopy could see it happen but couldn't see any physical reason for it nocturia- as if not emptying bladder properly Over Reaction- startle response . E.g. If someone walks in and o wasn't expecting it would automatically jump, then get palpitations sensitivity to stimulants e.g. Caffeine, MSG, cold remedies sensitivity bright lights/ sounds pulsating sensation in eyes about 5 times, where I can actually 'see' my pulse Most of these symptoms I have had most of my life, but my faitigie is so bad today, I was surfing the net, to see if o could find some answers and advice, and stumbles across this site sorry of the long first email, bit sometimes it's good and therapeutic tote it off my chest what I am looking for is--does anyone here have symptoms like this, and possible suggestions of consultants Thank you all in advance