DizzyPopcorn

1 minute ago, yogini said:

In normal heathy people, the heart rate increases exactly how you describe here.   I would not be worried about this as a problem.  

I think i wouldn't worry about those if i wasn't having symptoms for 1 year and a half, sadly.

With my current anti-depressant, its a lot better and i feel less adrelanine surges. But i still have a pressure in my head when im upside down / bending. Also, when i stand quickly, my heart pound.  I never felt that way before, ever. 

When i discontinued my previous anti-depressant (citalopram) 9 months ago, standing was a huge rush of adrelanine and felt like the gravity was x3-4 that of the normal value. But not always and it happened more in the morning. Now im on lexapro.

What's funny is that i started taking an anti-depressant for my health anxiety problems. Could those possibly have "destroyed" my sympathetic nervous system and throw everything into disarray?
 

Im getting confused haha. Trying to put the pieces together, but its hard. I've been trying for a long time. But not having pots would be a huge plus (and no symptoms, of course).

43 minutes ago, yogini said:

Users on the forum might be confused but the medical definition of POTS is agreed by doctors.  It is a sustained 30+ increase, regardless of what happens to your BP.   Everyone's heart rate goes up a little when they stand but for POTS the difference is that it stays up.  If your HR goes back down then that is does not seem to meet the definition.  You can read more here.  Dysautonomia International is another good site.

 

 

Thank you for the read, appreciated.

I guess i will have to wait for more tests then. I don't know what i have.

At the very least, i have a good GP now. So i can finally move forward to at least either getting a diagnosis or feeling better.

I will keep you all updated. I agree that i may not have pots, because aside of the surge i get when standing and occasional lightheaded feeling, i don't really have symptoms . I can stand on my feet for 1h if i want, and my heart rate will not budge. Only when i stand from a different position etc. 2 weeks ago i went mountain hiking for 3hrs. Had to take breaks but i felt fine.

The most difficult task for me, is when i stand from the ground and not my bed. If i lay flat on my belly on the ground and then push myself quickly to a standing position, my heart rate will go from 70-80 laying to near 110 bpm standing for 20 secs, and then it goes down to 80-90 (+10). Blood pressure also increase.

Yes i am overweight (+40 pounds my healthy weight, which is 190 pounds), but i've seen people far worse than me and they don't have a problem at all (hr / blood pressure wise when standing).

My father, who's 57 years old, increase from 60 to 65 standing and then goes down back to 60. So if i compare myself to him, clearly i'm abnormal, whatever is my problem.

 

Most sports drink have a 1:4 ratio of sodium:potassium. i.e : 400mg of potassium for each 100mg of sodium.

There are many studies out there comparing the ratios of electrolytes in healthy individuals and what's beneficial, but no real answer as everyone as a different idea of what's "healthy".

31 minutes ago, MomtoGiuliana said:

Are you worried about people believing you because at times you need help or understanding from them?

Yes, exactly this.

Its like... If i stop "complaining" or talking about it, people will chalk it up to just being "in my head" and that in the end, it never existed.

Hi,

Just like the title says, have you ever felt like you were not allowed to get better, for fear of people not believing you afterwards?

I have this fear right now where i think that if i show that i'm having a good day and i'm asymtomatic, people will stop believing me long term. It's hard to explain...

Do you feel remotely like this sometimes?

3 minutes ago, MomtoGiuliana said:

@whoami--my thought is that if you are experiencing a change in hr 30 bpm or more (or over 120 bpm) when you stand up AND you have other symptoms, a specialist would consider treating you.  Even if the hr is not being sustained that high.  Assume you have seen a specialist?  GPs may not be well-versed in dysautonomia.  I still had a dr (neurologist)  tell me  this weekend that I don't have POTS bc my bp does not change when I stand only my heart rate changes.  It's best if you can be evaluated by a specialist in dysautonomia.

 

I had symptoms upon standing after discontinuation of my anti-depressant (citalopram) for 6 months (as well as a change in hr of 30 beats + -). However, upon starting treatment back on another antidepressant (lexapro / cipralex) of 15mg, most of my symptoms are completly gone. I still notice the 30 bpm change, however, and my resting heart rate is higher in the morning. I also have increased blood presure upon standing and also comes down after the 20 ish seconds of "ajustment" that my body does. Ex : 120 sys laying, 140 standing, and then settles at 130 standing.

I am not seeing a specialist right now as i've just changed GP (old one kept saying it was anxiety and thus didn't want to help or let me see a specialist). The new GP is definitely on my side and is helping me. I had a multitude of tests prescribed and im currently awaiting for an appointment with a specialist / nuclear medecine specialist

its disheartening that the neuro you saw is trying to undermine your situation / symptoms. 

On 5/4/2018 at 7:59 PM, yogini said:

If your HR goes up at least 30 bpm and stays up when you stand you have POTS, regardless of what your BP does.  Some people have high BP.  

I keep seeing this mentionned everywhere and no one has a consensus on this criteria. 

My heart rate goes up 30 bpms when i stand but goes back down to where it was (or +10). Some says its pots, others do not. I'm currently getting tested for multiple causes and its just... A bit frustrating that there isn't a clear cut line that defines whether you have pots or not. I understand that it might not be possible due to the nature of this syndrome, but its still annoying.

Wow! It looks yummy. And on top of it, no nuts and peanuts so i can eat it, too! Amazing.

Since it's easy to do, im tempted to try it. Usually i hate cooking, but for a desert, i might try

Its during those times that i remind myself how lucky i am to be a guy rather than a girl.

I'm sorry for all of you who have to go through this every month (For those of you who have it worse).

On 2/18/2018 at 7:39 PM, ramakentesh said:

All POTS by definition is a hyperadrenergic state. 

What do you mean by that?

Hahaha, cake is so delicious that people just can't help themselves for some more until there's none remaining!

Do you prefer chocolat flavoured cakes or you like vanilla more?

Hello!

Does anyone around here likes to game on PC? If so, which game are you currently playing?

For me, i'm currently playing Ni no kuni II, Black desert online and old school runescape :)!

Hope you're having a light pots / dysautonomia day!,

w

Nope, it's not.

OP, have you had any MRIs / Scans of your adrenal gland? Maybe you have a benign tumor causing your issues (Pheochromocytoma)? I'm not saying it is, but perhaps you should have that investigated.

Do you have any update on what it was in the end @Peter Charlton?

Are you taking any kind of medication? Like a Beta blocker or something?

12 hours ago, MomtoGiuliana said:

Yes some people diagnosed with POTS are profoundly and permanently ill and unable to work, but most people diagnosed with POTS are not permanently disabled, from what I understand from my doctor and from various published materials.  Many get better with time and treatment and many recover to high level of function.  Keep in mind too that people who seek out our forum and use it probably are among the most unwell, and I would not assume they represent the general population of POTS patients.  And as patients feel better they generally tend to move on.

 

Thank you very much for the kind words . It helps me a lot.

I have an appointment with a cardiologist here in Quebec (my gp tried to make me think it's anxiety but I pushed the opposite). I should get the appointment within a month if not faster. For now, I'm returning on anti depressants. Lexapro to be more precise. I used to be on citalopram 4 months ago.

Have a good one everyone

6 hours ago, MomtoGiuliana said:

If you have POTS you have reason to feel hopeful.  For many people the symptoms improve over time.  And there are treatments available.

Thank you for the kind words. I am someone who's very.. Negative in life. I always look at things from a bad angle due to past experiences. I have to tell myself that this isn't the end.

still, at 25 and if I become disabled, I probably won't ever find a girlfriend anymore nor any job for that matter. Which is my big problem. The symptoms are simply the icing on the cake

Possible, I did not consider this. However my symptoms started well before taking klonopin. They are my "backups" for days that I had too many symptoms.

However, since the appearance of those more.. "pronounced" symptoms, even a klonopin can't take care of them. It removes the anxiety, but not the symptoms itself, certainly not those upon standing or bending etc.

Thanks for the thought though, truthfully I do have to consider the side effects of that drug too.

Yes hopefully :(. Also wish it's something stupid like an infection or something but i doubt it if I've had symptoms on and off for 6+months now

Feeling a bit better now that I'm sitting. I'm at 93 bp is 117 / 70.

This cannot be anxiety I'm not even anxious before I get a spell

Today is a bad day I don't know, heart rate is going bonkers I'm sitting on my bed at 105. I'm scared. I'm dizzy and lightheaded. My GPA appointment is today. Took a klonopin in hope to make it go down.

Does anyone else get symptoms like this?

On ‎1‎/‎20‎/‎2018 at 5:08 PM, m@t said:

When you do a flat to stand test have you tried standing still for 10 mins

What i don't understand is so many site differ with the criterias to "diagnose" this. Some say it HAS to be a sustained 30bpm upon standing, others say that as soon as you get +30 BPM upon standing from laying, you have pots regardless of what it goes to after. Which one is true??

17 hours ago, m@t said:

When you do a flat to stand test have you tried standing still for 10 mins and seeing what your HR is then? I noticed in your vids after an initial spike things went back to around your base line +20bpm?

I did a test today in the morning. Here's my data :

**Keep in note that i was walking around the house while doing that (and watching TV at the same time)

Beats BPM | HH:ss | What im doing
96 BPM 07:43 | Standing
90 BPM 07:46 | Standing

91 BPM 07:51 | Standing

89 BPM 08:14 | Standing

90 BPM 08:28 | Standing

92 BPM 08:39 | Standing

88 BPM 08:43 | Standing

86 BPM 09:03 | Standing

83 BPM 09:05 | Sitting

92 BPM 09:06 | Standing

81 BPM 09:09 | Sitting

75 BPM 09:10 | Laying

79 BPM 09:15 | Laying

87 BPM 09:15 | Standing *** I noticed my heart racing, went to around 115, then got back down to 87 after. Felt a rush of adrelanine

90 BPM 09:20 | Standing

88 BPM 09:58 | After eating breakfast, start of light walking outside

106 BPM 10:46 | End of light walking outside, a bit winded down but felt refreshed

84 BPM 11:10 | Typing this thread. For unknown reasons, despite the "Low" heart rate, I'm shallow breathing and feeling a bit tired. Heart rate feels high even if it's only 84

I'm more confused than i was before :|. Oh well guess i have to wait for my TTT to know for sure.
Thanks for the help @m@t
 

Also, another thing I've noticed is that I feel waaaaay better at night. Hr when standing is like 75 but like mom mentioned pots peeps often feel better at night

Also.. While it pains me to admit it, I've been leading a huge sedentary life. Basically for the past 7 years I've been sitting on my butt for about 12-14 hours per day. I rarely did sports until recently when I started monitoring my heart rate (which led me to extreme health anxiety)

First, I'd like to thank you à lot for sharing details with me, I appreciate .

I take around 2-3L of water per day. My hr doesn't go any higher than what it settles for unless I panic or move. I'd have to test again to be sure but it's always hovering around flat 100 or 90

Welp walked a good hour today with no symptoms other than my heart rate being in the 120-130 range. Slowed back to 90-100 after that while standing. I went to the ER today and they ran ecg, took blood pressure standing sitting laying etc and basically told me all is fine stop worrying about it and wait to see GP for a Ttt because apparently urgentist cannot prescribe them. They said also that we all have hearts that beat to their own rhythm and that my 80-90 was normal.
 

I mentionned dysautonomia and she knew what I was talking about. She highly thought that it was not the case for me and think it's more an anxiety trigger following my reading on pots.

In any case, fingers crossed that it's not the case after passing a Ttt