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About m@t

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  1. A big energy day.

    Thats great news. How are you doing now? I'd be interested to hear an example of your daily diet incase I can copy it!
  2. Are you taking the HR readings from an automatic BP machine? If so next time it gives you a 199 reading also take her pulse manually and check that its reading accurately. When you say she is non compliant with a 10 minute test do you mean she passes out or feels as though she is going to?
  3. Hey. I have POTS but still manage to run a busy deparment and look after a team of people. Sure I can feel dicey from time to time but I know it wont kill me. Symptoms fluctuate and you can get both good and bad times. I just have to cut back on physical activity which is my main beef.
  4. Not sure if it helps but heres a log of my BP and HR on going from laying flat to standing and then standing still and going back to laying down: mm:ss sys/dia HR 00:00 Horizontal 00:47 144/98 @ 61 01:43 133/98 @ 63 02:46 140/86 @ 62 03:00 Stand 03:47 134/101 @ 127 04:41 124/101 @ 116 05:23 118/104 @ 117 06:01 124/105 @ 125 06:43 129/111 @ 130 07:28 129/115 @ 134 08:10 130/104 @ 128 09:29 123/109 @ 136 09:32 Horizontal 10:34 156/95 @ 59 11:23 141/93 @ 65 If you can walk for an hour and feel ok that day and for the few days after then definitely keep doing that. When you do a flat to stand test have you tried standing still for 10 mins and seeing what your HR is then? I noticed in your vids after an initial spike things went back to around your base line +20bpm? How much fluid are you taking on?
  5. Thats a commute and a half, I take ot you do one of his online consults rather than jumping on a plane? That pesky anxiety label is a difficult thing for doctors to look past once they have given it to you.
  6. Fantastic. Id say you are extremely lucky to have someone knowledgable, not that I actually know what is top of his list of things to try... I take a small dose of beta blockers which does seem to help a bit. Do let us know what he has planned.
  7. Ah thats really interesting, thats an on the ball cardiologist. I had noticed my symptoms when I wore a heart rate band but never thought much of it. Do you do much exercise at the moment? Mine definitely worsens after that. Have a look at the videos by York Cardiology on youtube. I like his pivot point analogy, it describes it for me perfectly. I think the anxiety goes along with having a bit of an overactive nervous system. People tend to think of mental health and physical health as two distinct things but there is really a blur in the middle which is where some of these symptoms sit.
  8. I was similar to you. I had the positional heart rate variability for years but was doing loads of exercise and had no ill effects from it. Then "something" changed and I started to become unwell. Thats not to say you will have the same. Out of interest what made you search out this forum and bow did you come to notice the elevated HR on standing You dont have to have a drop in BP to have POTS, in the hyperadrenergic form you can see a rise in BP.
  9. Interesting posts. My symptoms started with a series of migraines in 2014. I only ever get the visual aura and never any pain with it. I still get the odd one now where I sit there for an hour unable to see anything. I have often wondered if there was something structural that caused a change but wasnt picked up on the MRI or MRA. Kind of the only reason I can think of going from an atheletic life style to struggling to walk around the garden in a short period of time.
  10. Help too much weight gain!

    Sadly the same as you! I am thinking of experimenting with adjusting the propranolol dose on a day by day basis depending on symptoms rather than a flat dose. How much are you on at the mo? Whats your resting HR? Lets hope your flare up isnt too bad.
  11. Ah yeah thats familiar. I thought I was suffering from over training syndrome at the time as my performance had taken a dip.
  12. I was similar and able to do 5k runs, cross country cycling for a number of hours each week for a long time. Sure my heart rate raised on standing by 70bpm and Id feel a bit dizzy from time to time but it didn't really worry me too much. My resting HR was down in the 40s so a rise of 70 only took me to 110 but I was used to sitting at an average 155bpm for 3 hours when riding so 110 felt like nothing. Then I think my body ran out of things to throw at it over the course of a few months and it wasnt actually the heart rate rise symptoms that took me to the docs. It was the other symptoms of wacky stuff going on with my pupils and suddenly being totally exhausted from mowing the lawn.
  13. Help too much weight gain!

    Katcanny, hows things going now?
  14. Anyone in the uk ?

    Hey Bombsh3ll have you looked at seeing Prof Mathias in his private clinic? How did your symptoms start?
  15. Help too much weight gain!

    I'm exactly the same and it correlated well with the start of propranolol. In some ways its almost like the heavier I am the better I feel dysautonomia wise. Strangely dieting seems to make symptoms flare up. It will be good to hear how you get on.