bigtrouble

About the Cell phone vibrations in chest, left side, above breast. I was getting this often too. It would come for a month and then go away for a while. I have been taking venlafaxine (Effexor XR) 70 mg and it seems to have stopped.

For the purpose of blocking pain. I found out 2 weeks ago by watching a documentary about pharmaceutical practices in Canada. Apparently, you can buy it without a prescription (it is legal). I bought it but didn't try it. it has 300 mg paracetamol (tylenol), 15 mg caffeine (should have had the non caffeine version), 8 mg codeine. Does it make you dizzy?

My teeth aren't in good condition either. I had an old wisdom tooth that was rotten (the surface was black) and I had it since 2002. Last year, it started to hurt. Turns out, it had a root. I went in aug 2014 and I was feeling ok during that time, so it wasn't bad. The denstist used regular anastheic, probably lidocaine with epinephrine. The next few times I went, I mentioned I am taking a betablocker for heart pounding. He used polocaine without epinephrine. It's effect is much shorter. It lasts 2.5 hours.

Have they measured you guys at the clinic you go to or the hospital? I would think it is standard practice to measure it when you visit them. Mine was 98 to 99%. I don't feel fatigued (well most of the time).

m@t, athletes sometimes have very low heart rates (~40 bpm), so either you are an athlete or you are in great shape. It is impressive.

Squiggly lines, blurry vision and the headache are called ocular migraine. I get it about 2 or 3 times a year. In my case, it starts off with many small blind spots which I don't notice unless I am reading something. I notice that certain characters are missing so I move my head to be able to see them. And so, I realize it is a MIGRAINE! Squigly flashing lines appear later. Large parts of my vision go blind. My vision returns in about 1 or 2 hours and usually, I get a large headache and become light sensitive. My last 2 migraines were almost with no headache for some reason. This is actually normal. I haven't read about going numb as a symptom of migraines.

With dysautonomia, it is common. For me, it was at times hard to think. It was hard to process what I was seeing around me, when someone talked, I would miss a word here and there and it was difficult to understand someone and I had to make them repeat. I also became more forgetful.

Perhaps the verapamil is acting as a vassodialotor. That's one of the effects reported on wikipedia. Like I reported on another thread, a doctor prescribed clonazepam 0.5 mg, but only 30 pills. To my surprise, it was working very well. I also have PVC now. Which started on 7 oct and I have it all the time (been 4 weeks). It stopped about 3 times for a few hours. I get about 3 per min, sometimes 6 per min. The bisoprolol I take can suppress the "strong pump" that I get right after a PVC. I did some searches and found a site where I think someone was describing that he also had this burning sensation. Sadly, he says he has it all the time and he says it is intense. A few other people had the same issue but not constantly.

Even if you don't find a specialist on POTS, you have to keep in mind that the important part is to suppress the symptoms so that you can function. Perhaps get beta-blockers, Ca channel blocker, increase salt and water intake, etc.

Oh hello statesof, I didn't think anybody would reply to this bizarre case of mine. I have had the squeezing sensation as well, but that was a couple of months ago. It felt like veins getting squeezed in that same abdomen area / intestine area. It has somehow transformed into what I described now. Yes, sometimes it feels like weights are on it. Yes, it definitly can be described as a sunburn just below the skin. It is like something has activated all pain sensors and heat sensors at the same time. I have tried naproxen recently. Not sure if it is helping. Usually, I am taking either ibuprofen or tylenol.

Left chest pressure, then pain When I am asleep, I'm alright. Even when lying down and relaxing. When I get up, after about 1 hour, I feel this pressure on my left side, below the chest bone (abdomen area / intestine area). It is like an area of 5 cm in diameter. It then turns into a dull pain and I get some dull pain in upper left chest area as well. It progresses into an irritation like feeling. It seems as if over time, it might turn into a strong burning sensation around the breast area. This has been bothering me for a while. I was prescribed clonazepam which helped. I don't know why. Is this anxiety related? Does anyone have a symptom like this? Yesterday, I was walking (I go for 30 min walks at night). I always feel that dull chest pressure and dull pain but it started inflamming again. Luckily it lasted only 10 min. It is as if moving around activates this thing. Thanks for reading!

These days, it is 75 bpm while in bed. 80 to 90 bpm while seated. However, I am taking beta blockers (bisoprolol, 1.25 mg). At the hospital, it was 80 bpm while in bed and if I lifted my head as to sit, it was 104 to 112 bpm without the beta blocker. I need to measure it some more while standing and while not on beta blockers to see how my body is behaving nowadays.

Yes, I get this as well. It is called an occular migraine. I notice it when I am reading something. It feels like there are many small blind spots. Then I have a hard time reading. Then a zone starts to flash, with wiggly lines. Then it spreads and it clears up. It is possible that it can start up again. Usually, 1 hour later I have a big headache. Either behind my right eye or left eye. The solution is to close my eyes and lie down (if I am home). I have had this since I was 15. It has been more than 20 years. It happens 2 times a year. Recently, it is more like 3 or 4 times with my dysautonomia symptoms. My mother has the same issue with these migraines and she says her sister had it too.

"I don't necessarily feel dizzy when standing at first, but my heartrate does the 30 beat leap. My blood pressure is stable (always super low) and sometimes increases a bit when standing. Long extended stands are not good for me. And I don't have epsidoes so much as walking around all day feeling weird. Is that normal? " ==My heart rate also goes up when I stand up. If I am lying in bed and bend up (seated in bed) (bpm = 75), my heart sometimes shoots to 112. When my symptoms started in 2012, doing minor things was a huge problem. I would not feel tired but the heart racing and pounding was unbearable. My blood pressures stays at about 120/80. This sounds like Innapropriate Sinus Tachycardia. Standing for a long time make me feel uncomfortable as well (but not always). Yes, I also get days of walking around or sitting down and feeling just "malaise". In 2012, it was hard for me to go for walks. I would do 15 min max, sometimes 5 min. It improved in 2014 and I was able to do 30 min+. A few weeks ago I did 1h 30 min and started to feel like crap. I am not out of the woods yet.

I read about these drugs + more. The chemistry part is interesting and so are the details. Unfortunately, they don't explain what addiction means. Am I going to feel bad when I stop? It looks like a lot of these pain killers are marked as addictive and the effectiveness goes down over time. When I first took clonazepam (klonopin), I felt extremely dizzy for 15 min. That's the way it was the first 3 days but I guess my body adjusted to it. I'm not sure what kind of "high" you can get from clonazepam. Perhaps you have to take a high dose. Since it is written clonazepam enhances the effect of GABA by binding to GABA1 receptors, I'm wondering if taking GABA pills would have a similar effect. From the looks of it it won't work since it doesn't cross the blood brain barrier. ks42: "Without the Klonopin, I'd be bed-bound, and would probably be in the hospital every other day. So it's made a HUGE difference " ==Glad you have something that works.

Wow, that is pretty bad. I was also getting this weird feeling in my head, like electricity. I stopped taking it for a few days. I started to take it again. I take it at 3 PM now, when it is close to time to go home. It's is easier to tolerate. This stuff is for anxiety but I don't feel anxious, I just have anxiety like symptoms. The worst is the chest pain, left side, below the bone, near intestine. It starts to feel like a pressure, then inflammation, then slight pain. The pain extends to upper chest sometimes all the way to the underarm. The pain is sometimes intense. I had a hospital stay recently because of nasty symptoms. They could not find anything wrong except for a lot of PVCs. The clonazepam is an amazing drug. It works fast but its life is short. In 5 hours, the effect is gone. It was getting rid of the chest pain and I was feeling more functional in my daily life. Who can function with chest pain all day long?

I was prescribed clonazepam 0.5 mg, 30 pills. These pills worked great to get rid of the chest pain I was having (left lower chest, below bone and sometimes it rises all the way to underarm). I wasn't even taking them everyday just to save up. I went back but the doctor did not want to prescribe more. She said it is like a patch and I can't be on it continuously. She prescribed Effexor (Venlafaxine) 37.5 mg. This is manking me very nauseated and I feel very lightheaded for 2-3 hours at work. I have to take at 8 AM. If I take it at night, once I wake up, I can't go back to sleep. Plus on top of that, she says it is going to take 1 month for it to start having an effect.

Yes, I saw that article, Sylvie33. The temperature of the air goes down to -117 C (-178,6 F), so I imagine they use liquid nitrogen (-196 C) to cool the air. It sounds very risky to expose your skin to that. Might go numb and then you end up with frosbite.

What do they put in your IV fluid. Is it the standard salt solution?

That was an interesting read. What your site is suggesting is a mutation of the mitochondrial DNA caused by the statin. I'm not a biologist, but mutations tend to occur in random places some of which have no effect. If a nasty mutation happens in a cell, I guess the cell has to multiply a bunch of times in order to get a lump of them to cause some problems. I get a thud in my chest as well, so I know how uncomfortbale it can be. I have been having it since 9th oct. Hopefully, it will go away. You may want to do some minor exercises and measure over 5 min how many you get and see if it reduces them.

"This is really frustrating that I might have something lifelong all form take one pill" ==To me, it seems unlikely that a statin pill can cause dysautonomia. Overall, dysautonomia, like quite a lot of diseases, the cause behind it is unknown. It has been noted that quite a lot of them are female and quite a lot of them are nurses. I'm a male and I'm not even sure that I have dysautonomia, although the symptoms match up. That's why I asked a few months back to get a feedback. A problem is that not everyone has the same set of symptoms. Over time, the stress of having these symptoms take its toll. Are you still taking the simvastatin? "I have a history of anxiety and panic attacks so I dont know how the heck i can convince them this is real," ==Well, the fact that you lie down and then get up and your pulse has gone over +30 bpm. That doesn't sound like anxiety.

How long does it last for you?

I get these arrhythmias which I don't know what they are since I have never caught them on a EKG. Sometimes, they last 1 day, the entire day. Sometimes I get 1 per day (thump). Sometimes it last for 2 weeks. Most of them, I can see that my heart beat stops and then BANG, it pounds heard. Some of them, the heart rate is normal and then one of the beats does BANG. They happen 1 per min when I wake up and can go up to 3 per min, up to 10 per min. Yes, I have tried magnesium and potassium. I think what reduces them is slight exercise. I have to keep testing to be sure.

No, I haven't leaked but I was wonder what is going to be next surprise symptom. I have had total body sweating 2 times. It was sudden and lasted a couple of minutes. On other occasions, I have had sweat drops coming down my armpit while doing nothing (I was sitting).

Wow, you lost as much weight as me. I have lost a a few pounds more than you. However, my symptoms began 3.5 years ago and my weight was the same except for recently, in the past few months I lost 12 kg (26 pound). I bet that your poop doesn't look normal. Mine looks light brown and breaking up. I don't have POTS but sounds like you do. I guess I have some generalized dysautonomia. Anxiety pills might help, since recently (aug 14 to now), I began having stress like symptoms. Tightness in head muscles, a band of tightness in left chest with arteries feels like squeezing. There was also this weird sensation coming from chest area. It was very extreme. I would wet my chest as a temporary relief and was so bad, that I wanted to quit my job and just lay down in bed.