bigtrouble

I have seen one really bad case of IST (Innapropriate Sinus Tachycardia). The video is on youtube and the girl is bedridden most of the time. Lucky for her, her boyfriend understands the problem. I was in a similar situation. The tachycardia was very uncomfortable, the heart pounding was extreme. My favorite time was being asleep since it was only then that I didn't feel anything. Going to the emergency was useless and I had to search on my own and self diagnose. I didn't work for over a year because of all the discomfort. 1. I don't have acces to that plus I think stimulants are bad. Caffeine and chocolates aren't recommended. Chocolates aren't so bad since the theobromine that it contains isn't as strong as caffeine. 2. Not sure what other tests there are. 3. You can also drink a lot of water along with salt intake to keep a good volume. Unfortunately, it causes hypertension. What drug did you take?

What part of the body do you mean? My hands tend to be cold because of poor circulation. That was #9 (hands get red when down). Some other people have mentioned but I don't think all dysautonomia suffers have this. Yes, I've had dilated pupils since I was a teen. Everyone mentioned it from back then until now. 1 year ago, I found out that it has a name = mydriasis Some symptoms are ultra rare. A couple of times I started to sweat exceedingly for 10 min. My entire body from head to toe was wet. It was like someone opened a valve for sweat glands for 10 min. (15 sept, 2014. It happened 2 times in the same day) From my documentation: June 06, 2013 : sudden sweating. Forehead wet. June 07, 2014: Heart thumps once, Felt weird and sudden sweating. Forehead wet.

I don't have any means to measure blood pressure in my house, but I measure the heart rate. There isn't a big change between being in bed and getting up. I tried it in the morning and afternoon.

120 bpm is very high if that is your resting heart rate but at the same time, it is good since it gets the doctor's attention. Do you take beta-blockers? Mine was 92 to 97 bpm and since it was under 100, they considered it normal. Getting up to go to the bathroom and other minor things like putting on cloths all of a sudden became a big deal. A few times, it would spike to 120 and it felt like a fish flopping around in my chest. The chest pounding was really bad. Once, I had to just leave the groceries at the store and get out and lie on the grass. It took a while to finally get a prescription for beta-blockers. It helps quite a bit but I have a mix of symptoms and beta-blockers doesn't deal with the rest. You had to quit your job?

I was able to see a cardiologist in 2013, but unfortunately, he was dismissive and thought it is psychological. I've heard that story a bunch of times from other dysautonomia sufferers. He told me to not to think about it. The heart pounding was quite bad and I was wondering if it might be mitral valve prolapse. An echocardiogram was finaly done. All normal. @Katbug: "3) Do your symptoms feel better when you lie down?" ==Not right away. It can take 30 min. @BeforeTheMorning : I'm not sure how I can find a doctor in Canada. It would have to be in the Montreal area. I'll try to cut out milk (I drink a lot of it). @plaster89: I'll give it a try. If only I had a solution for symtom number #8. That one is a killer. Thanks everyone.

So, do I have dysautonomia? I think so. Hello everyone, I'm new here. I'm a guy, 38. The problem started 3 years ago. I'm in my 4th year. 1. It started with a weird feeling in my chest. Then one day, I get tachycardia. Up to 120 bpm. Yes, I realize this doesn't compare with people who have IST (200 bpm and more). 2. While seated, it was 92 to 97 bpm and it felt really uncomfortable back then (year 2012). 3. Heart pounding. Visible just by looking at shirt. 4. Dizziness, lightheadedness, difficulty to think. 5. Another major symptom is nausea. Sometimes, it feels like a tennis ball is stuck in your throat. 6. I use to get migraines once a year. It is 3 times now. 7. I get chest vibrations. I don't know what this is : muscles? They are very rapid vibrations, like a cellphone. They last 1 second. 8. Some kind of weird feeling in my chest. I can only describe it as electrified. It is like I'm shaking but I am not actually shaking. Sorry, I'm not really good at describing symptoms. 9. I also have poor circulation. Hands get red if they are down. I can see some white spots. I had this since I was a teen but they went away but now it is back. Very weird. 10. Blood pressure is fine, so I don't have POTS. Blood tests are normal. 11. Major chest pain at times. It feels like veins are squeezing. I can feel the blood pumping through on my chest side and in my back. This might be due to the heart pumping hard. I can say that my symptoms have improved since 2012/2013. It use to be continuous. My favorite time in my life was sleeping.

Yes, sometimes I get some strong chest pains, left side. Seems to happen often this year (problems started 3 years ago with tachycardia). I also feel it almost in the under arm area. It feels like veins are squeezing in the chest. It looks like a mirrored C, all around the breast area. I feel veins on the back as well. I feel the blood pumping through. I also get a lot of chest vibrations. My left arm is usually fine during such episodes, but I have felt tightness in the bicep area perhaps 3 times. My jaw is fine. Yup, I get nausea often. It feels really bad so I take an over the counter drug. No, I don't usually get sweaty hands. I have had a couple of episodes of being extremely sweaty all over my body. It was like someone turned on the faucets. Toilet : I am mostly ok but I seem to be having more diarrea now. Getting more migraines. Dizziness, lightheadedness, difficulty to think. There is also that really weird feeling that is hard to describe. It feels like my chest and arms are electrified.