lewis

The diastolic pressure is the amount of pressure in your arteries when your heart is at rest between beats. I can't get mine to raise. I tried taking 5 salt pills and drinking 5 liters of water in a short amount of time. It lowered my bpm and raised my systolic but diastolic remained unchanged. I have tried midodrine and it only raised my systolic. I am 10mg propranolol twice a day. Is there anything else I can do or try to raise my diastolic? It stays about 63. The reason I ask is I still feel my brain is not getting the blood it needs even after the increase salt and liquids and even with the midodrine. However on the very rare occasion when my brain feels like it is actually working my diastolic is closer to normal 80. My cardio just said that its the sympathetic not kicking in but didn't give me any help on how to kick it into gear. Thanks.

I have this. Had it for years before I got ill. I think it's the blood vessels dialating. I put something cold or usually take a cold shower to help.

So are these swallowing problems at the beginning where you physically control the muscles that make you swallow our are they the under controlled esophagus contractions? I don't have problems with what I can control but food gets stuck lower down where my esophagus makes the contractions

I feel my best after I have worked myself to exhaustion. It makes me so I can't sleep very long but I get more rest in that sleep. Also my heart palps are alot less. I gave up training for marathons since I got ill but still do some long hiking and working my butt off sawing lumber and moving logs around.

I haven't been diagnosed with mvp. My stress test showed slight regurgitation but within normal limits so they said. I have been trying to communicate with my cardiologist s through the hospital messaging systems since the end of June and just found out she is out on maternity leave until November with no doctor taking over her patients so I am seeing a new cardiologist on Tuesday. My pulse pressure is always around 60 and when it gets higher I getting a thumping feeling. My orthostatic intolerance has been almost gone the last 3 weeks but the heart palps and pulse pressure along with chest pain and air hunger are driving me nuts. I know they day you can feel the regurgitation but I definitely feel something that makes me think it is. They also told me there was no way I could feel a bruie in the anuerysm of my celiac artery but I could feel it and as soon as they fixed it, it was gone. I was the one that found that bruie and bright it to there attention.

MVP (mitral valve prolapse) Is MVP causing your dysautonomia? What symptoms does it give you? Can you feel the regurgitation? What brings on your symptoms? Does increased salt make it worse? Does taking a beta blocker help? Does taking anything else help?

I noticed this morning that I was feeling just fine until about twenty minutes after I took my propranolol. Is anyone else also taking this that had breathing trouble? I too feel like it also had something to do with gi issues.

This is currently my worst symptom at the moment, my orthostatic intolerance is barely even around anymore, only raises 10bpm at the most but the breathing problem is driving me nuts

Maybe I should start a new thread but, does anyone notice/ is it normal to have the heart speed up when breathing in. Sometimes it's just a few beats faster but sometimes it races ten beats faster when breathing in. Thoughts?

Thanks for the updated info.

Ever seen the movie chaos theory? He does a good explanation of what the heart does in the movie with it's tendency to always be moving around.

It used to make me cough every time I put a qtip in my ear. It doesn't any more but I use then frequently as it just feels good to scratch around in there.

After reading this I had a right that maybe the reason the dysautonomia symptoms are worse in the morning is because of lack of oxygen during sleep due to not breathing properly. Just a thought but I would like to try a cpap to see if it makes a difference in how I feel

The week before I had abdominal surgery in May my feet had no nerve pain and was almost symptom free. After the surgery I got worse than I had ever been. It's taken almost 3 months to get back to where I was before the surgery. I think it wad a combo of the anesthesia and pain pills that made me worse.

I have been gluten free for about 7 months. After a few threads on this forum about high folic acid levels ( my levels were above normal) I realized that possibly the reason that eating things with gluten in them might not be from the gluten but from the added vitamins in enriched flour. Last night I found some organic flour that has no added anything. I had my wife whip up a batch of my favorite cookies (chocolate chip, she used to make them for me every friday) that I haven't had in 7 months. In the past anytime I had gluten my heart rate would immediately start racing and my nerve pain would increase. After half dozen non-enriched cookies, I feel no different then how i have felt the past few weeks. I will continue to see if it affects me.Thoughts?

It took me a couple weeks along with taking propranolol. I Have been slacking off and can tell I need some when I start getting missed beats and have breathing problems. I will excersize and then get recharged

Have you read the ndrf handbook? http://www.ndrf.org/NDRFHandbook.htm Good information on dysautonomia

I have noticed that if my heart isn't racing while standing, just a little bit higher hr, that a quick touch of my cartoids will bring me back closer to normal

It's good to hear that your making progress on getting answers.

strict sleeping and eating schedule and pregnancy don't mix all that well. The thought of having a new baby with this disease, makes me sick to my stomach and I am not even a woman so I wouldn't have to go through anything even close that you would go through. I am not trying to discourage you, I just know I couldn't do it.

I have read ppi can repair or increase mitochondria? can't remember exactly what it said. also being on ppi would eliminate stomach acid affecting the vagus nerve from what I have read.

I tried the kegel exercise, it sped up my heart rate. wonder what is "normal"?

I have noticed when ifeel like this I take some salt pills, drinka bunch of water and then exercise. its seems to bring met back up to normal.

I am not sure if it was my high level of b6 or the folate, but by stopping eating foods supplemented and stopping multi vitamins definitely helped with the nerve pain I am having.

I tried effexor and cymbalta (although its not an ssri). Cymbalta made my nerves hurt the worse pain I have ever felt and effexor increased palpatations and skipped beats while also making my feel hypoglycemic all day. It did get rid of my orthostatic hypotension though.