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Shiner Kitty

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Everything posted by Shiner Kitty

  1. http://www.wired.com/wiredscience/2014/02/elizabeth-holmes-theranos/
  2. My vitamin D has been as low as 12. I don't feel better with supplements. I have Multiple Chemical Sensitivities with adverse reactions to multiple meds, and I'm afraid to take high dose vitamin D. High doses of some B vitamins have caused bad side effects for a long time, and they're supposed to be water soluble. I saw haloes around lights for a long time after my doctor had me take high dose vitamin B-2 for awhile for migraines. I also believe it caused me to have my first complicated migraine with stroke-like symptoms. it definitely didn't help my migraines, and I ended up in the ER. My vi
  3. I'm 43. I've been very sick with POTS/Dysautonomia since I was 23. I had some symptoms as a child that were likely also caused by Dysautonomia.
  4. https://ufhealth.org/news/2013/throbbing-pain-isn-t-matter-heart-uf-researchers-find Via UF Center for Musculoskeletal Pain Research: Have you ever experienced throbbing toothache or migraine? Throbbing pain, long believed to be associated with the beating of our hearts, has now been shown by UF researchers to be associated with brain waves instead. It is not yet known how the brain waves cause the pain, but they are believed to act as carriers of certain signals. This finding opens the door for a slew of new research for the treatment of pain, and means that future therapies and medicines mig
  5. http://www.wave3.com/story/22981070/fda-warns-of-massive-diabetes-test-strip-recall
  6. http://www.stonehearthnewsletters.com/fibromyalgia-finding-study-finds-evidence-of-nerve-damage-in-around-half-of-patients/fibromyalgia/?sthash.0Hov3gio.mjjo&goback=.gde_3691000_member_262015137
  7. http://www.prohealth.com/library/showarticle.cfm?libid=18232
  8. http://psychcentral.com/news/2013/06/19/skin-abnormality-may-prove-biological-basis-for-fibromyalgia/56233.html http://www.eurekalert.org/pub_releases/2013-06/itd-fin061713.php
  9. Via Dysautonomia International- Very good news... the first Multiple System Atrophy gene has been identified by an international team of researchers! The researchers looked at the genes of families that had more than one sibling with MSA, which is extremely rare. They discovered that having certain abnormalities in a gene related to the CoQ10 enzyme causes a mitochondrial problem that predisposes some individuals to develop MSA. This will likely lead to an acceleration in the pace of research focused on MSA, now that a gene has been identified. There are likely many other genes involved in MSA
  10. You've been in my thoughts and prayers! I hope you're okay.
  11. Many people with Dysautonomia/POTS have mentioned having back pain. "New research suggests that some 40% of chronic lower back pain (CLBP) could be caused by bacteria, and that a significant percentage of people with lower back pain following a herniated disc and swelling in the spine could find relief by taking an antibiotic." http://www.medscape.com/viewarticle/803858
  12. I'm in an HMO, and my insurance company had one of their nurses call me a few years ago. She was very nice to me, and she told me that she had been assigned to manage my case (or something like that). I think they were doing that with people with a lot of chronic health problems. She said I could call her if I had any questions about my health conditions. I never called her again because I didn't need her help at the time. I can't find the card she mailed me, so I don't know if she's still assigned to me or not. I figured they thought if I knew I could call her first, I might save them some mo
  13. They shouldn't be allowed to force you to take PE; there are a lot of reasons students wouldn't be able to participate in that. I can't find anything about Virginia, but students in other states have been able to get temporary or permanent medical exemptions/waivers for PE with doctor's notes. Some students were also allowed to substitute a health class for PE.
  14. I hope someone else can give you some advice about what to do. That doesn't sound fair to me, though. If you aren't able to attend school due to a medical condition, they should allow you to take all of your classes at home, but I don't have any experience with this. Don't be too hard on yourself about graduating 2 years behind. You're doing the best you can. I do understand how you feel. I was taking Honors classes in college, but I got so sick that I couldn't ever complete my degree. I tried going just part-time, but that didn't work out, even after dropping out for awhile. The last college
  15. This is a YouTube video. I keep trying just to post the link to the video, but it keeps inserting the actual video here. I don't know how to change it.
  16. I'm also thinking of you during this difficult time. I hope that you and your home will be safe, and I hope you will have a comfortable place to stay until you can return home. I hope this will be over soon with a good outcome for you, your neighbors, and their pets!
  17. I haven't read all of this article yet: http://journals.lww....cations.35.aspx. I don't think it mentions POTS, but it does talk about autonomic failure, baroreflex failure, and MSA. It includes a lot of information about how someone with autonomic failure may react differently to medications, anesthesia, infection, temperature regulation, etc. One thing in the article that really stood out to me was: "Liver blood flow in human subjects is relatively posture dependent. In healthy subjects, liver blood flow is only reduced 5% in the seated posture compared with the supine posture. In patients w
  18. I just found out last month that I have a congenital heart defect(s) too. I'm 41. That echocardiogram at a local hospital showed a patent foramen ovale (PFO) or Atrial Septal Defect (ASD); they couldn't tell how large the hole was on the echo and a larger hole would be an ASD. It also showed a Redundant Interatrial Septum (which from what I read may be the same thing as an interatrial septal aneurysm and may be an atrial septal aneurysm (ASA)), trace mitral regurgitation, trace tricuspid regurgitation, and tachycardia 100-126 throughout the study (due to POTS and Inappropriate Sinus Tachycardi
  19. I'm sorry you were feeling too weak and tired to go to your son's concert, but you did the right thing by not pushing yourself too much. I'm often too fatigued and weak to go anywhere too, and I know how hard it can be to miss out on important events. I'm sure your son understands. Maybe someone recorded the concert so you may still be able to watch it later. Could you ask? I hope the dietician and the specialists will be able to help you. I hope you feel better!
  20. This is a very good 2004 article from The CFIDS Chronicle written by Dr. Alan Pocinki discussing how Joint Hypermobility relates to Chronic Fatigue Syndrome (or CFIDS), Dysautonomia, Migraines, Irritable Bowel Syndrome, Interstitial Cystitis, Vulvodynia, etc. I searched the forum, but I didn't see this article previously posted. http://www.cfids.org...mer-feature.pdf
  21. I recently found Pinterest. It's a virtual pinboard. You can browse other people's pinboards or you can create your own. You have to request an invite to create your own pinboards. I thought some of you might be interested in it. http://pinterest.com/ http://pinterest.com/about/
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