Shiner Kitty

http://www.wired.com/wiredscience/2014/02/elizabeth-holmes-theranos/

My vitamin D has been as low as 12. I don't feel better with supplements. I have Multiple Chemical Sensitivities with adverse reactions to multiple meds, and I'm afraid to take high dose vitamin D. High doses of some B vitamins have caused bad side effects for a long time, and they're supposed to be water soluble. I saw haloes around lights for a long time after my doctor had me take high dose vitamin B-2 for awhile for migraines. I also believe it caused me to have my first complicated migraine with stroke-like symptoms. it definitely didn't help my migraines, and I ended up in the ER. My vitamin B12 is low, too. I had bad heart arrhythmias and other symptoms for a long time after taking a high dose of B12 sublingually. I think it was 2,500 mcg. I can tolerate 500 mcg. sublingually (8,333% RDA). My doctor wants me to take 1,000 mcg., but I'm afraid to do that. My Ferritin level also runs low. I never feel better taking any vitamins or minerals even when my levels go up some. I've also had kidney stones, and I've read that some vitamins and supplements can cause them. I know I need to take them, and I hope I never get anymore kidney stones. I lost my older half-sister to melanoma, and my younger half-sister has had melanoma, too, so getting vitamin D from a lot of sun isn't an option for me. I'm also very heat intolerant, and I sunburn very easily. I hope you'll be able to get your vitamin D levels up and feel better. My vitamin D has never been anywhere near 80. I believe my vitamin and mineral deficiencies do play a role in my symptoms.

I'm 43. I've been very sick with POTS/Dysautonomia since I was 23. I had some symptoms as a child that were likely also caused by Dysautonomia.

Thank you! I have all three too.

https://ufhealth.org/news/2013/throbbing-pain-isn-t-matter-heart-uf-researchers-find Via UF Center for Musculoskeletal Pain Research: Have you ever experienced throbbing toothache or migraine? Throbbing pain, long believed to be associated with the beating of our hearts, has now been shown by UF researchers to be associated with brain waves instead. It is not yet known how the brain waves cause the pain, but they are believed to act as carriers of certain signals. This finding opens the door for a slew of new research for the treatment of pain, and means that future therapies and medicines might work by targeting brain activity rather than constricting blood vessels to lessen throbbing pain.

http://www.wave3.com/story/22981070/fda-warns-of-massive-diabetes-test-strip-recall

http://www.stonehearthnewsletters.com/fibromyalgia-finding-study-finds-evidence-of-nerve-damage-in-around-half-of-patients/fibromyalgia/?sthash.0Hov3gio.mjjo&goback=.gde_3691000_member_262015137

http://www.prohealth.com/library/showarticle.cfm?libid=18232

http://psychcentral.com/news/2013/06/19/skin-abnormality-may-prove-biological-basis-for-fibromyalgia/56233.html http://www.eurekalert.org/pub_releases/2013-06/itd-fin061713.php

Via Dysautonomia International- Very good news... the first Multiple System Atrophy gene has been identified by an international team of researchers! The researchers looked at the genes of families that had more than one sibling with MSA, which is extremely rare. They discovered that having certain abnormalities in a gene related to the CoQ10 enzyme causes a mitochondrial problem that predisposes some individuals to develop MSA. This will likely lead to an acceleration in the pace of research focused on MSA, now that a gene has been identified. There are likely many other genes involved in MSA, but this is an important first step in identifying them. For more information, you can visit our friends at www.MSAawareness.org or you can read the journal article below. http://www.nejm.org/doi/full/10.1056/NEJMoa1212115#t=article

You've been in my thoughts and prayers! I hope you're okay.

http://www.ncbi.nlm.nih.gov/m/pubmed/23720007/

Many people with Dysautonomia/POTS have mentioned having back pain. "New research suggests that some 40% of chronic lower back pain (CLBP) could be caused by bacteria, and that a significant percentage of people with lower back pain following a herniated disc and swelling in the spine could find relief by taking an antibiotic." http://www.medscape.com/viewarticle/803858

Thank you!

I'm in an HMO, and my insurance company had one of their nurses call me a few years ago. She was very nice to me, and she told me that she had been assigned to manage my case (or something like that). I think they were doing that with people with a lot of chronic health problems. She said I could call her if I had any questions about my health conditions. I never called her again because I didn't need her help at the time. I can't find the card she mailed me, so I don't know if she's still assigned to me or not. I figured they thought if I knew I could call her first, I might save them some money by not going to the doctor or ER if she could help me, but I'm not really sure. My insurance company even had someone else call me to see if I had scheduled a mammogram yet. Hopefully, that's all it is for you too. I'm sending positive thoughts your way that it's nothing for you to worry about! I see Jangle gave a similar reply at the same time that I was writing, so that's likely all it is.