Jump to content

Shiner Kitty

Members
  • Content Count

    70
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Shiner Kitty

  • Rank
    Advanced Member

Profile Information

  • Gender
    Female
  • Location
    Kentucky
  1. I really wish I would have seen this before today. I'm sure more people would have been able to vote if they'd had a chance. I wouldn't even have known about it if I hadn't received an e-mail from the CFIDS Association. After I voted for that, I searched for DINET. Maybe DINET will get the money next year.
  2. I don't know if DINET meets all of the qualifications to win the money from Chase Giving Community, but DINET is listed. The 1st round of voting ends today. You can vote by following these step-by-step Instructions: From your Facebook page, go to Chase Giving Community: http://www.facebook....CommunityGiving "Like" the Chase Giving Community by clicking on the "Like" button. Then go to http://apps.facebook...?src=vote_share or "search" for "DINET." Cast your vote by clicking the "Vote Now!" button. (You have to "allow" Chase Giving to access your account info in order for your vote to count.)
  3. Many of us are also diagnosed with Chronic Fatigue Syndrome. Please help support CFIDS Association in the Chase Giving Community by following the instructions below. The CFIDS Association is funding research to learn more about the causes, how to better diagnose, and how to treat Chronic Fatigue Syndrome. This is one step in the right direction to help Chronic Fatigue Syndrome patients get our lives back and YOU can help. The first round ends on May 4th. Sorry for the late notice. I just found out about this today. STEP-BY-STEP Instructions: From your Facebook page, go to Chase Giving Communit
  4. Chrissy, here are some other links with information for you to consider in addition to your low Dopamine levels, Cushings, and PCOS: Low Iron and Low Ferritin can cause Tardive Dyskinesia: http://www.cmdg.org/...ive/tardive.htm. Diagnostic Tests for Tardive Dyskinesia and conditions with similar symptoms: http://www.tardivedy....com/diagnosis/ http://www.virtualme...dive-Dyskinesia http://psych.med.nyu...nesia#diagnosis Tardive Dyskinesia can occur after stopping the medication: http://www.medicalne...hp?newsid=13702 Tardive Dyskinesia after stopping Reglan: http://www.tardivedy...sia.com/r
  5. I'm so sorry you're having to deal with all of this! I really hope you don't have Tardive Dyskinesia, but this says that you can develop Tardive Dyskinesia after stopping medications: http://www.wemove.or...uroleptics.html Also, if you do a search, you will find lawsuits about Reglan having a black box warning and causing Tardive Dyskinesia: http://www.thelyonfi...ack-box-warning . I also have POTS, Chronic Fatigue Syndrome, Fibromyalgia, and a long list of other diagnoses. I have a lot of muscle twitching, tremors, and jerking, although mine isn't the same as yours. I've been diagnosed wit
  6. I deleted this reply because all of the links in my original reply are working now. It was very strange. When I reposted them in this post, 4 of the links worked. Then only 2 of them worked later, but no matter what I did none would work in my original one. Anyway, whatever I was doing wrong or whatever the computer glitch was is hopefully fixed, so you can open them now.
  7. Hi, I'm so sorry you're so sick, and I hope you'll get better very soon! I also have a very complicated case of POTS with an extensive list of neurological problems and other diagnoses. I've had to research my conditions for years too, and there have been many times when I thought I was going to die. I hope the information that I found will help you. I couldn't find any articles that said that MSA or PAF cause Tachycardia either. I've been very sick today, so I didn't have a chance to search for Progressive POTS or Pandysautonomia. I also had to try to retype everything because I someho
  8. Diagnosing Autonomic Nervous System Disorders – Existing Guidelines and Future Perspectives Hilz Max, Lahrmann Heinz, Rocha Isabel, Struhal Walter, Thijs Roland D European Neurological Review, 2011;6(1):52–6 Published: March 2011 http://www.touchneurology.com/articles/diagnosing-autonomic-nervous-system-disorders-existing-guidelines-and-future-perspectives?page=0%2C2
  9. Dr. Peter Rowe of Johns Hopkins discusses Orthostatic Intolerance (POTS and NMH) in this archived CFIDS Association Webinar from September 1, 2010 that is one hour and thirty-five minutes long. I've been pausing it and going back to watch more of it later, because I can't sit through such a long video. There are also links to other archived and future Webinars discussing Chronic Fatigue Syndrome, Fibromyalgia, etc. that are also listed if you also have those conditions like I do. If you've already been diagnosed with Dysautonomia and researching for years, there may not be a lot of new info
  10. My serum phosphorus level has been low several times since I became ill with Dysautonomia/POTS 14 years ago . It's never been high. As far as I know, my serum calcium has been in the normal range, but it hasn't been checked for a couple of years. I just found out this month that my Vitamin D, 25 Hydroxy is low (only 12.4 ng/mL). I also have low Vitamin B12, and my potassium is often low.
  11. Beta-blockers made my allergies and breathing problems much worse. They made a long list of my other symptoms worse too, and they didn't control my heartrate and blood pressure. When I was taking metoprolol, my electrophysiologist just kept telling me that my allergies and breathing problems would get better once ragweed season was over (they didn't). I kept telling him I had severe year-round allergies, and that I'd never been that bad before. I knew it was the metoprolol, but he wouldn't listen to me.
  12. I had normal brain MRIs in 1994 and in approximately 1998 (that one may have shown a sinus infection, but I don't have that report). An MRI with Gadolinium Contrast using a pituitary protocol in January 2001 showed mild sinus disease, and the report said the odontoid configuration was slightly unusual on the sagittal image (probably an incidental finding). I had an abnormal MRI of the brain in January 2005 (without contrast) which showed dorsal angulation of the odontoid with respect to the proximal cervical cord, and it showed non-specific periventricular deep white matter tract abnormalit
  13. Yes, Effexor can cause the symptoms you're having. I'm not a doctor, but I found these websites for you (some say to contact your doctor immediately with chest pain, etc.): http://www.mayoclinic.com/health/drug-information/DR202764 http://www.drugs.com/cons/effexor.html http://www.nlm.nih.gov/medlineplus/druginf...er/a694020.html http://www.medicinenet.com/venlafaxine-oral/article.htm http://www.walgreens.com/library/finddrug/...or&id=11641 I had written a longer reply, but I think I must have hit a button by mistake, so I lost it. There are many other websites that also list your sym
  14. I've had problems with hypoglycemia for years. Last year my fasting glucose level was high, though- 112 (I think). My doctor thought I was prediabetic, but when it was tested this year, it was normal- 98. I haven't ever had a glucose tolerance test. I thought you also might want to know that many medications can cause glucose intolerance, including beta blockers, corticosteroids, oral contraceptives, etc.: http://www.nlm.nih.gov/medlineplus/ency/article/003466.htm . I can imagine that you must have been feeling really bad during your test.
×
×
  • Create New...