carlacat

I tried the flaxseed oil and it made me sick and a few others have sai the same thing. Dont know...maybe its not going good with meds but it made me sick to my stomach. What about taking the fish oil pills?? I may try that. Any help and advice on how to get better is a precious gift. Carlacat

I live in West Virginia but I live on the Ohio border. Two minute drive and I'm in Ohio plus I go to Clevelnd Clinic also Dr. Fouad. Ohio and West Virginia is loaded with chemical plants. There is Dupont and GE down the road and five other plants I can think of right off up the road. There is diffenently something in the air. Carlacat

I can be standing doing the dishes or putting on my compression hose or just simple things and break out into a sweat and just burn up. Does this happen to anyone or am I starting to go thru the change at 40? This is something new thats started happening over the last month or so. Dan..so glad your okay. You do get the award for the "month". Carlacat

The only time I have to take tylenol is sometimes during my period cause of cramps but since I'm on the neurontin for my neuropathy I dont have to take tylenol as much as I used to. The pharmacist told me to only take tylenol with my meds. Carlacat

If only.....I have gained weight instead of losing. I was 130 pds and now I am 162 pds. Four of those pounds are from me quiting smoking in Nov 2003 but still I feel like a blimp. I know I shouldnt be complaining but I cant wear my jeans anymore and cant afford to buy new so I wear sweats. Oh by the way...I got rid of the dizziness. Guess what it was?? I ran out of my zoloft for two days and thats the effect it had on me. I have went before missing a day of my zoloft and it never affected me that way. I still get the little dizzys but not like it was. Carlacat

Okay..I usually get the normal dizzy spells when I turn my head too fast or if anything moves around me fast which I think is a regular fibromyalgia thing but when I got up this AM I have been dizzy every since. The only way I find to make it better is to lay down. Of course its "period" time also but its never affected me this bad before. I kinda over did it also yesterday so maybe that has something to do with it. Maybe just a bug..who knows but I want the world to quit spinning around me. Anyone ever have this problem of severe dizzines?? Thanks Carlacat

I've been catching up on everything and wow did you all hit it right on the head about feeling worse in the AM and better at night and also about before periods. I'm gonna try some of the things everyone is suggesting cause I hate feeling like I have a hangover everyday. Also I have been having this hot burning sensation in my right shoulder.it may be one of my other illness but it fells like its on fire. Carlacat

Hi Jessica I know how you feel. My cobra runs out in April, right now I'm paying $333.00 a month and if my disability happens to go thru by April then they will give me an 11 month extension on my cbra but my monthly payment goes up to 590.00 and my check will only be 695.00. So we are having to sell our home and move back where I lived before cause at least I can get help from the state there. West Virginia wont help you unless ya live in a box..I was told that I am one of those people who fall between the cracks. The health care is terrible...I take 6 meds everyday and I need my health ins. Carlacat

I have to tell all of you about this and I'm not sure what to do about it. I am so mad that I have to do something. My story is....I fell off my back porch so I went to ER at local hospital. I told the person at the desk when I first went in about my health problem with Pots and that I couldnt stand or sit a long time because I get dizzy, ill and may pass out. Well I told the same two girls who took my pulse and all info(they had no idea what Pots was and couldnt believe there was such an illness) anyways they told me to have a seat and they were putting me thru "fast Track" so I would get thru quicker. Then the lady took all my ins info 20 min later and I also told her about my health condition, she said that fast track didnt open up till noon. So I set....an hour later I went to the desk and asked when they were gonna start taking people cause it was noon..she said "oh they dont open up today til 1:00 so I explained my medical condition again. By this time I was starting to get the little signals that my blood was pooling in my legs so I told her that I cant wait out here much longer or I will pass out so she went back in the ER and came out and said"I'm sorry all the beds are full in the ER and it looks like its going to be a while cause we take people on this side of the room before fast track. I said you mean to tell me that this is a hospital and you have no place for me to lie down flat...the response was NO. Yes I could have laid flat on the floor but why should I have to embarrass myself by doing that, its bad enough that my life has changed so much to where I cant go places but when you have a condition and you need to lie down and a hospital cannot tend to your medical needs...IT MAKES ME VERY ANGRY!!!!!!!!! Sorry so long..had to share my frustrations and I feel like I need to do something with the hospital to let them know. Carlacat

I was nervous about having this also so I asked my Pots doc and she said no I did not have shy-drager and I do have the same symptoms as you do.

Hello I live in Parkersburg West Virginia and my experience with WVU was not a good one for my neuro doc I had there so I ended up going to Cleveland Clinic which is a 3 1/2 hr drive for me but my Pots doc and my neuro doc are wonderful. I see Dr. Fouad for my Pots. Just wanted to give you my doc info..hope it helps. Carlacat

I'm so tired of having to eat and take salt pills. Yeak....It seems also when I take my proamatine(Doc lowered it from 2.5 to half a pill) I get so tired after it wears off and have to take nap. Wonder why this is?? I have an appt in Nov when my neuro and cardio in Cleveland. Everyone take care Carlacat