
Tristessa
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Pain - Feels Like A Bruise But There Is No Bruise
Tristessa replied to Tristessa's topic in Dysautonomia Discussion
Oh my. I really feel sorry for those of you who have to deal with this type of pain daily and/or all over your body. I also deal with excessive sweating myself. I wonder if my pains are the beginning of something like what you are talking about? Did yours start out in smaller areas or all over? -
I really think mine might be related to MCAS as well but I haven't yet tried the H1/H2 blocker combo yet. I really need to try that. That would be so great if I could get some relief from benedryl. Sorry you have to deal with this too but it is so nice to hear that I am not alone.
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So here I am again... Yet another night of leg pain. I used to believe it was related to my many food intolerances but my diet has been clean for a while (unless I have more trigger foods!?). So anyway, how many of you deal with leg pain at night? I suspect mine is from the blood pooling in my legs all day or nerve damage of some sort. It feels like it hurts down at the bone. It is not a muscular pain. My husband will rub/squeeze them for me and that seems to help them feel better to some degree. Why do you all think?
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I love both my heart rate app & my bp tracking app! I agree StephL, I have been testing like crazy now!
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Sorry to hear this. I hope you find many friendships and much support here! I just joined myself and so far feel right at home. (((hugs to you))) We understand.
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I haven't tried antihistamines - yet! I am looking for the dosage/type information. Perhaps you could point me in the right direction. I do something that feels like flushing. I get all hot and slightly sweaty but I haven't turned red. I am not sure if that qualifies or not for mast cell issues. I also seem to have a malfunctioning thrist mechanism. I hardly ever feel thirsty and sometimes forget and go long periods of time without drinking a thing. (Bad I know!)
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When I stand still to check my bp, I feel a strong urge to urinate and usually have to run off to the bathroom as soon as I get my reading.
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I haven't had an alcat test but I have had extensive testing through Enterolab which pinpointed my intolerances to gluten, dairy, soy, yeast & egg. I also have 1 full Celiac gene and the antibodies and malabsorption to go along with all of that. I agree with the others here and would definitely consider a good 3-6 month trial of gluten free (or more?). It has helped me enough for me to NEVER want to eat gluten again!!!
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Blood Pressure-What's Everyone's Standing Or Sitting Bp
Tristessa replied to Jacquie802's topic in Dysautonomia Discussion
My bp tends to fluctuate all over when standing from 80/50s up to 130/100s. My resting (lying) bp is usually 80/50s to 90/60s. -
Thanks for your reply. I am about to search for your post but wanted to add (after seeing your signature) that I also suffer from Interstitial Cystitis and GERD but directly linked to food intolerances. I actually had IC as a child but it wasn't diagnosed as such. I also have a weird jaw (TMJ?) that 'clicks' out of place if I open my mouth wide. I also get extremely frustrated and overstimulated quite easily with lights, sounds, smells, etc. Our symptoms do sound very similar. At least I don't feel so strange anymore. There IS at least ONE someone like me. Thank you again for replyin
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I was diagnosed with Mitral Valve Prolapse and Vasovagal Syncope about 10 years ago. At the time, I was having palpatations, shortness of breath, chest pains and fainting. No treatment was started until the symptoms again reappeared in 2005. I did start Atenelol for about 1 month back then but had adverse reactions to it (lower bp, lower pulse, dizziness, more fatigue and fainting). I stopped taking Atenelol because I found out I was pregnant. Since that time I have had 3 children and increasing 'odd' symptoms. I have been doing a lot of research over the past few months and have now come