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About ophelialit

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    Advanced Member
  • Birthday 08/14/1974

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    Somerset, PA

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  1. Hi, DizzyGirls & songcanary, Thanks for the responses! I'm able to combine Benadryl and Atarax if I space them out and take very small doses; because my hives seem to reach a crescendo around noon and abate after 5, I don't necessarily need the heavy sedating antihistamines--as such, I'll start adding Claritin during the day tomorrow and see how I do on that one. And! Concerning food allergies--I'm allergic to shellfish and walnuts and eggs and all kinds of fun things, and I'm pretty careful about what I ingest....when I said, "hot dogs," I should have clarified and said
  2. Hi all! Man, it has been a WHILE since I've been on here to post...since the last time we spoke, my husband and I have moved back to our little mountaintop hometown in PA, effectively escaping the endless, murderous heat of Dallas. Needless to say, I do not miss The Big D. Health-wise, I was hanging pretty tough until about a month ago when some creepy little hives started to pop up from time to time. Now, this has always been a thing that lurked in the shadows like a hockey-mask wielding pain in the behind, but THESE hives were epic....truly something to behold...angry and red and
  3. Hi all, For what it's worth, I have a FitBit Charge HR because I'm always suspicious of my heart rate and wanted an easy, quick way to check it when I thought it might be acting up....I've found that's it's actually surprisingly accurate. It's spot-on with the heart rate monitors on gym equipment and only varies 1-2 bpm at most from my chest strap/Garmin watch combo. It's inexpensive, comes with great app capabilities for Android/iOS and has some neat features like the ability to participate in step challenges with other uses, sleep tracking, etc. Also, it looks like a thin watch, and everybo
  4. Hi all, My Fitbit Charge HR is here and fired up....and I love it! It tracks your sleep cycle automatically, and in the morning you can see when you were restless, awake, sleeping, etc. I don't know how useful that information actually is, but it's interesting! I LOVE how it tracks my HR and steps constantly, and it has a GPS tracking function for exercise (I just returned from a bike ride, and it worked beautifully!). To add friends, simply go to the Dashboard on your app, go to "Friends," click the "+" sign and select "Invite by email." Once you enter someone's email address, they get an i
  5. Hi there! My Fitbit Charge HR is on its way even as we speak; after trying a slew of "wearable technology" gadgets for workout/fitness purposes, I decided to give the Fitbit a try for everyday activity. As soon as it's delivered this afternoon, I'm going to hook it all up and give it a whirl. I'd love to join the dashboard and compete with you! I'll shoot you a PM as soon as I'm up and running, and we can go from there. Thanks! Erin
  6. Hi Kellygirl, Thanks for the post--I think, sometimes, we're all so focused on the minutiae of dealing with our everyday symptoms, we forget how many other aspects of our lives are affected...and that includes the sexy bits! Personally, I've not noticed any anatomical differences, but sexual activity triggers me BIG TIME. The "big O" will set off an episode of dizziness, tachycardia and a feeling of general flu-like illness for a few hours after. There are all kinds of things I have to avoid, and it *****...no morning sex because that would take me out of commission for the rest of day....no
  7. Hi cctalk, I know EXACTLY how you feel with this one--I've had this particular symptom for as long as I can remember. When I was in elementary school, in fact, I used to get reprimanded all the time for yawning CONSTANTLY in class. The teachers thought I was being rude, but I was just trying to live, apparently! It still affects me on a nearly daily basis...I especially notice it if I'm on the phone and walking around while I'm talking. For some reason, the combination of walking and talking absolutely saps my ability to breathe normally, and I end up panting into the phone while the person I
  8. Hi guys! Thanks for the feedback--I'm not on any medications at all right now (weird, right?) because I've actually been feeling kind of human-ish for a while. And I'm still not certain how much to worry about this turn of events because the doc told me repeatedly that the report at the top of the EKG read-out is simply the computer's interpretation of what it's looking at and that it's all meaningless without an actual person's eyeballs looking at it. And, the other thing is that all of my previous EKG's may have said the same thing, but I never got a look at the actual reports--I was just al
  9. Hi Katybug! Ha! Lack of boyfriend = projectile vomiting. Well, if that were the case, you'd think I'd have been really, really dehydrated for the better part of high school and college. Doctors! Who needs 'em! Oh, wait. Right I do. ****. Well, anyway, I feel like this guy is pretty on top of things, but I still feel creepy about the whole thing. I'll keep you posted once I find out what's what...never a dull moment! Take care, Erin
  10. Hi all, It's been many moons since I last posted--I've been busy with works and life and other bits, and, for the most part, I've been feeling pretty OK-ish for me. Until the return of the dreaded PVC's about two weeks ago...the kind that make you breathless and suspicious that a donkey has sneaked into your house with the express intent of kicking you in the chest...stupid donkey. Anyway, I already had an appointment with my new cardiologist on the books (the previous was kicked to the curb when he suggested I try "woman things" like manicures for my palpitations. Yep.), so I went to meet wi
  11. Hey there! From what I understand as someone newly diagnosed with a spinal syrinx, nystagmus can sometimes be a result of Chiari; I'm not sure if you've been evaluated for--or diagnosed with--Chiari, but nystagmus is actually listed as one of the presenting symptoms on my handy-dandy little pamphlet the neuro gave me.
  12. Hi all, I struggle with this from time to time since I have 8 billion doctors, and on occasion, one or more of them run offices that are slightly less organized than I'd like. In those instances, I become "The Woman On The Phone Who Won't Go Away"...my entire family is in the medical profession, and they all advised me early on to be a powerful advocate for myself right out of the gate. If I feel like I'm not getting appropriate, timely responses, I simply refuse to hang up until someone gets on the phone and tells me something. I've been put on hold for as much as 30 minutes, I've been asked
  13. Hi there Katie, I have this ALL THE TIME; and they're not exactly double-double....but more like a very strong ghosting; I've got recurrent corneal erosion syndrome, and I notice the problem is much worse when my eyes are having one of their dry spells. And it's always just lettering....text on computer, TV, street signs...I'm telling you....I feel like a walking one-woman circus act....so good! Not.
  14. Oooooohhhh, thanks, guys! Sue, my fiancee and I were giggling about the plural of syrinxes last night....like....syrinxeseses? I don't know....I was tired, and it was easier to laugh than cry, right? I've got a follow-up first thing Wednesday morning, so we'll see what's what...never a dull moment, right?
  15. Hi, all... It's been forever since I've posted anything new and exciting....that's probably because there hasn't BEEN anything new and exciting going on for some time...and for that, I've been thankful. Ever since the idiopathic autoimmune optic neuritis whacked out my right eye last September, I've been laying low in the hopes that any other weird stuff wouldn't befall me. Well, two guesses how that turned out! My neuro-ophthalmologist continued to push for MRI's every 5-6 months as he was on the hunt for evidence of MS post-optic neuritis. I put it off and put it off because, well...it's no
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