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About Potsygal

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  1. I haven't been formerly checked, but I can do all but one of the test markers for hEDS. All of this is just hard to handle. I want a life back.
  2. Thank you! I'm glad to know I'm not alone in how I feel.
  3. I've been having a very hard time lately with what I'm now understanding is a bad POTS flare. My joints hurt, I'm having GI issues, fainting spells, horrible pains in face and head, etc. I have appointments scheduled with Dr. Grubb soon, but have seen another cardiologist and PCP, who gave me little to no help. The cardiologist gave me yet another tilt table test that landed me in the ER because of tremors after it, and a huge bill, but then never followed up with help. The PCP told me pains in my joints and face, along with GI issues don't fit the POTS profile and has me going to s
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