Steph06

I saw Dr. Grubb back in January and he told me that his wife's tumor came back and that he was going to take her to see a doctor in Maryland to see if surgery could be an option. If anyone has a more recent update please let us know. I think about her often and keep the Grubb family in my prayers.

I am so sorry to hear about your son. I will keep you and your son in my prayers. Please believe God is by your side and will give you and your son the strength to get through this difficult time. Steph06

Let me know how your appointment goes. I wish you luck! Take Care

Hi Blondie, Dr. Goodkin is my doctor as well. Did he refer you to Dr. Bellew in Delaware? If so, you have nothing to worry about, he is a great doctor. I went to him several times but have not seen him recently. I'm not sure if it helps or not because I did not go consistently. I just told my husband that I was thinking about going back to Dr. Bellew. The atmosphere is very relaxing. Good luck and please let me know how you make out. Steph06

Cold is better for me than hot. I am actually not scared to go outside with my son and have to worry about getting sick. But today I was really cold and my fingers started to go numb and felt like someone was poking them with needles. It really hurt:( Then they started to turn blue and red. It was really weird. It was only in my left hand. Anyone else experience this? Hope everyone is doing well. Steph06

Hello Again!! So I'm in the process of applying for disability and I want to scream. For my first interview I sent in all my paperwork along with all my records from my doctors and hospital visits. About a week later they sent my records back to me. Then they made me fill out about 3 packets that were about 10 pages each. I also had to have a third party fill out another packet answering questions like what I do from the time I get up to the time I go to bed, do I do chores, who do I take care of, do I shop, do I go outside, ect. Now they want to send me for a mental exam in Oct. Is all of this normal?? They are driving me crazy!!! Just received a letter Thursday stating that they requested my medical records from my doctors and hospital visits and they are not getting a response. Are they kidding me? I already sent them my records and they sent them back to me. Now they want me to send them again. I want to scream! Has anyone had a similar experience? Thank for listening!! Steph06

If you need to talk please let me know. I am so sorry to hear what you are dealing with. Do you have any support from your family? Please keep me up to date on how you are feeling. Hope to talk to you soon. Take care of yourself and God bless. Stephanie xo

I want to thank all of you for the great advice. I am very blessed to have all of you as my support group. Like Maggie said I am not going to waste my energy on things I can not control. I am going to try and ignore what she thinks but I know sometimes it will be hard since she is my sister. In the meantime as soon as my sister tells me the magic words to make all of this go away I will be sure to let everyone know!! Thanks again for everything. Hope all of you are doing well. As always I will keep all of you in my prayers. Stephanie

Hello Everyone, Recently I found out that my sister believes that my symptoms are due to stress and what I have is not real. She said that popping pills is not the answer and if I would just talk to a therapist this would all go away. My Mom & Dad have been really supportive and have tried to talk to my sister but she does not listen. My husband even sent her an email letting her have it. I don't know what to do. Does anyone else have family or friends feel the same way? Stephanie

Great idea!! I love Dr. Oz. Please let me know if you get a response. Steph06

Hi! Just wanted to see how you are making out. You are in my thoughts and prayers everyday. Stay strong and take care of yourself. Stephanie

Hello, I am so sorry to hear what you and your wife have been through. When I read your post I thought I was reading about myself. Along with having POTS, I was recently diagnosed with Dystonia. I was also having seizure like movements and the doctors could not find anything wrong with me. Finally I was told I had a form of Dystonia. Its a neurological movement disorder. My brain sends signals to parts of my body that I can not control. It is very rare to have both chronic illnesses but it can happen. Dr. Grubb in OH said he only has about 5 patients including me that have both POTS and Dystonia. When you mentioned seizure like movements I thought this is something you and your wife may want to talk to the doctors about. If you have any questions please feel free to send me a message any time. I am praying for you and Kristin to stay strong and don't give up. Take Care, Stephanie

Hello, I am so sorry to hear what you and your wife have been through. When I read your post I thought I was reading about myself. Along with having POTS, I was recently diagnosed with Dystonia. I was also having seizure like movements and the doctors could not find anything wrong with me. Finally I was told I had a form of Dystonia. Its a neurological movement disorder. My brain sends signals to parts of my body that I can not control. It is very rare to have both chronic illnesses but it can happen. Dr. Grubb in OH said he only has about 5 patients including me that have both POTS and Dystonia. When you mentioned seizure like movements I thought this is something you and your wife may want to talk to the doctors about. If you have any questions please feel free to send me a message any time. I am praying for you and Kristin to stay strong and don't give up. Take Care, Stephanie

My heart goes out to you. Everyone is giving you great advice. Please do not give up. Becca could not have said it any better. God will give you the strength to get through this. I will pray that this all works out for you. I don't know you but just reading your post I believe the kids know how much you love them and that you will fight for them. If you give up it will be like you are give up on your kids and with all the love you have in your heart for those kids you know that is not an option. I hope you find a great lawyer. i will keep in touch to see how you are making out. Take care of yourself. You have a lot of support. Just look at all the kindhearted responses you received. You are in my prayers. Take Care. Stephanie.

Thanks for the response, I will look into it!