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Everything posted by Nauthiz

  1. Hey guys i was diagnosed with Dysautonomia about 2 years ago, and i just want to share some stuff. I have been a member here for awhile but stopped posting awhile back. Just little about me i am 23 year old male from Arizona. I have been making some good improvements, and i believe i will fully recover in time, probably less than 6 months i am estimating at this rate(or be very close to optimal). I still have evolving symptoms that change into new stuff fairly frequently but i take them as they come as a challenge. Dysautonomia is a challenge of mental and physical strength that will make you
  2. just remember lots of fluids, fruits are great also contains vitamin C and majorly water.
  3. If you don't like mercola you can also watch the video by CBS on his page... the point is the idea of swine flu is highly inflated by the media and people need to relax. What did they find? CBS reported: "The results reveal a pattern that surprised a number of health care professionals we consulted. The vast majority of cases were negative for H1N1 as well as seasonal flu, despite the fact that many states were specifically testing patients deemed to be most likely to have H1N1 flu, based on symptoms and risk factors, such as travel to Mexico."
  4. This is normal. Most people(healthy and unhealthy) will have a increased heart rate after eating. It has to do with the fact your body uses increased energy to digest food. I think for pots patients it is simply more noticable and a slightly higher heart rate. Also the more calories you eat the greater this will be. If you eat several small meals a day you might never have a problem with this.
  5. I have seen alot of worried people here about the swine flu so i thought i would post this. If anyone reads Dr. Mercola's website i read good article today about the majority of swine flu probabe cases not being swine flu. Here is the chart he posted. So if you think you had the swine flu and are immune don't take that as fact, also don't take the swine flu as any type of so called pandemic. http://articles.mercola.com/sites/articles...restimated.aspx
  6. I ask this because it seems like its becoming less of a problem for me, but my other symptoms are still there and new ones still come. My heart rate usually goes from 80ish sitting to 100 or up too 120ish on standing but slowly starts to normalize around 80-100bpm. However i still get swallowing problems(one of my biggest symptoms), digestive upset alot of burping etc, headaches, eye stiffness, calf/ fore arm stiffness. Can anyone relate too this? It seems like im getting more neurological symptoms lately and i am hoping i don't have MS or something, makes me scared.
  7. sounds kind of scary. When you think about all these weird causes. Lets just hope none of us have these weird degenerative diseases. Im going to my first neurologist in a week also in tucson, lets see if he knows anything like this guy lol.
  8. I seem to get muscle stiffness (not really weakness) in the same areas of my body frequently.... I've noticed it mostly in my left fore arm, and right calf, kind of strange alternating sides. Does anyone experience this and if you do is it general in the same areas? Have you found anyway to help reduce stiffness?
  9. i thought a heart transplant didn't really make sense either for the doctor to suggest. I thought in POTS the heart was not defective but the nervous system, so would a heart transplant really do anything?
  10. This is a statistical survey, so numbers are the most important information needed. If you would like you include more information, you are welcome to. 1. How long did your doctor tell you it would take you to fully recover from Pots Syndrome? (if possible, please state answer in years) He asked me that question actually. And i said i read 2-5 years, and he said "yes that is true, but sometimes people don't get over it, and its life long." He also said its life altering to me and not life threatening. 2. How many medications do you take daily to help you deal with Pots Syndrome? (please count
  11. Does anyone get this? I used to think it had to do with headaches alone, but sometimes i get it without a headache. My eyelid visually looks the same as the other but it feels stiff, or tense, or tight? Im not sure why this is, its kind of confusing. it feels like it sticks when blinking or something. Can anyone else relate to this?
  12. I worked out my arms real hard yesterday and they are super sore, but another thing i noticed is they feel itchy all over too. Is this something from pots?
  13. OK this might sound wierd i don't know. Today i am having a "bad" day and i noticed something. I get very full engorged veins in certain areas. Examples would be, laying down i felt a fully / puffy vein in my temple. Standing up the vein in my head went back to normal, then my veins in my feet felt engorged puffy. I sit down my feet return to normal, i start palying guitar then a vein in my hand becomes engorged. Is this blood pooling, what is this ?? It seems to be directly related to position. If i lift my arm up the puffy vein in my wrist becomes smaller. If i put my hand down it becomes en
  14. It seems like i feel pretty good if i get a decent 8-9 hours of sleep. But i noticed if i sleep too long like 12 hours for example i feel worse when i wake up. Brain fog, and just generally worse feeling for the rest of the day. Has anyone else noticed that?
  15. I just wish I could get an appetite to eat! Drinking ensures are getting old! OJ really affects my reflux. I will look into the almond crunch. And I do eat almond butter straight out of the jar! Thank you! Rene Yeah almond crunch tastes amazing. You can get it also from iherb.com i order snacks from there, also pumpkin seeds are high calories as well. These all have omega-3's which are good for you. Also try flax oil by the tablespoon, 1 tablespoon = 120 calories with great omega-3.s Also for orange juice Try low acid no pulp orange juice. Its alot less strong that regular OJ and has same c
  16. Anyone notice headaches after working out / lifting weights? I seem to always get them its kind of a pressure headache/deep aching. I also get a bit fogged out.
  17. i have a lot of Gastro problems and i have lost A LOT of weight, with trouble gaining as well. I don't know if have gastroparesis or whatever, but i def have esophageal spasms, Acid reflux, IBS etc. I have found that so far i have had success getting more calories eating a diet high in healthy fats. I take flax oil(3-4tbspoons), and eat alot of almonds, and drink Orange juice every meal. You'd be surprised how many calories those additions can add. For example a bag of almond crunch, i snack on that alot, is easy to eat and contains approx 800 calories right there. This may not work for you bu
  18. I think i do. I usually feel worst after waking up, pretty bleh around lunch time, then after that a bit better. Then once its really late i started to get worse again.
  19. nope i don t take any meds at all. I don't get any syncope but i think my BP is low sometimes.
  20. It seems to me that lately alot of my symptoms stem from action along the vagus nerve possibly. For example eating causes symptoms, digestive problems(burping, bloating etc), sometimes standing even causes digestive problems, Bowel movements can cause symptoms even heart palpitations(feels like a flopping my chest kind of unusual). Could this all be from stimulation of the vagus nerve? I also have problems swallowing sometimes, and drinking liquids.
  21. i feel your pain man my bladder hurts alot after holding water in. I also feel a increased urge to go when i need too, more pain, more pressure.
  22. Article i read, i am trying to change my mind from a victim to a fighter. Here is the article if anyone is interested. This article gives a good idea of how we can change or perspective. I know our illness is worse than some of the examples of this article, but for the most part it fits. Hope this helps the spirits of others here. The Choice Why is this happening to me?!! Why do I have to suffer like that? This is just more than I can bear! Do those phrases sound familiar? Usually, people have different responses to similar problems and so, when life gives them a hard time, some may cry, other
  23. i just hard an attack like this last night. I woke up, well i guess the morning technically. i Woke up with insane brain fog, i felt so dazed and confused, like my brain was deprived i just felt terrible.
  24. Anyone get strange random weird feelings? Like stuff that doesn't make sense or can't really be categorized? Like for example some weird feelings i get suddenly include, feeling like im not breathing right, but it appears i'm breathing fine, feeling like my voice has changed and it feels different when im talking(but audibly it hasn't changed), feel of warmth on my face, yet to the touch feels normal etc.
  25. I think anxiety may have played a roll. If it was anaphylactic shock you probably would of needed a epipen to stop it. Benadryl might of made a difference to that it might not of. Anaphylactic shock is a severe drop in blood pressure, that often has hives, major swelling, respiratory distress etc, usually happens within the first few minutes of exposure. Its hard to say though, to be positive you would have to get a allergy test. I have had a anaphylactic reaction before, so when i get bug bites i immediately get anxiety even if i dont have a bad reaction.
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