dizzy

I had similar reactions during both my pregnancies with near syncope during the glucose tolerance tests. I felt horrible every time I had to take them. Luckily I had someone with me each time. I failed the 1 hour test both times....but passed the 3 hour test both times. With my second child the Dr thought for sure that I had gestational diabetes but I passed the 3 hour test. I wish I know if that meant anything with my POTS....sorry I don't have any answers. Hope all goes will with the rest of your pregnancy and delivery !! Best Wishes !!

I think there is also a place to deduct things that make your home more energy efficient such as a new heat pump. Just something else to consider.

I cannot tolerate vitamins either. When I was pregnant, my Ob had me take the chewable childrens vitamins and take 2 a day instead of one.

Just wondering if you have EDS? EDS can cause a prolapsed uterus.....I think I read that somewhere.

Sorry to hear what you are going through. I would make the appt. with Dr Grubb and try to get a tilt table test done while you are waiting. My neice was diagnosed and treated by Dr Hummel in Columbus. He recently moved to Ohio State along with several other colleages. I would try to get into Ohio State.........or get an appt at Cleveland Clinic for Dr Fouad for a tilt table test....you do not need a referral there to get an appt. unless your insurance requires it. Wishing you luck!

I had testing done at Cleveland Clinic. I was scheduled for Tilt table test one day. After it returned a positive result I was scheduled for more testing the next day. I went back at a later time for a follow up. They did a good job with the testing......I was not so pleased with the follow up treatment. But, that has been several years ago...it may be different now.

I recently started on Wellbutrin XL 150mg (the brand name). I had a prescription filled to increase to 300mg......and I got a generic Budeprion XL 300mg made by Teva. The guess there are 2 different generics for Wellbutrin now........Bupropion and Budeprion (how confusing) Does anyone have any experience with this generic Budeprion XL 300mg? I was doing ok on the Wellbutrin XL 150mg. If I take this generic 300mg and have problems how will I know if 300mg is too much for me....or if it is the change to generic? Thanks for any help!

Mestinon did not make a difference for my POTS symptoms. However, it did give me bad diarrhea which I did not need. It is worth a try because we all react differently to these meds. What works for one....may not work for someone else. It is all trial and error....and you won't know until you try.

My father, who I am certain has POTS also, had his parathyroid gland removed several years ago. His calcium levels went sky high and they recommended it be removed. He had a visible scar for awhile but it is no longer noticeable and he has no complications since the surgery.

I am getting closer to forty everyday.....no let up for me yet..... My dad in his late 70's....still passing out my grandfather I'm sure had POTS until he passed away in his early 70's Same for my Aunts and Uncles in their 60's and 70's I guess age doesn't matter if it is in your genes anyway.

I am sorry to hear about your bad experience. I was referred to the CC Pain clinic also several years ago, but chose not to go. Several things just did not seem right to me. The Dr that referred me.....said that everytime they say "pain" substitute "dizzy" in its place.......as I do not have pain but extreme disorienting dizziness. Knowing that my dizziness and passing out is hereditary....and also diagnosed as having low blood volume...I didn't see how that would be much help. I was told I would live in a dorm style room and go to the clinic each day. Being 5 hours from my home and family I would be alone for the 3 weeks. At the time, my dizziness and syncope was so bad I couldn't have walked across the CC campus alone......let alone crossed the street in the busy traffic. I also had a 9 month old child who they expected me to leave for 3 weeks. I was made to feel very guilty for not obeying the Dr's orders, but I just didn't see how I could do it. I also had my doubts that my insurance would pay for a pain clinic to treat dizziness. I would like to hear if anyone has had a positive experience in this program for POTS.

I don't know about OSU. I had a tilt table test done at Riverside Hospital in Columbus with Mid Ohio Cardiology. They did not offer any other testing to me. I had more testing done at Cleveland Clinic.

This is just a thought....last year my mother ended up in the ER with the same symptoms...she does not have POTS. They did an upper GI on her and found her esophagus was consticted. They stretched it out slightly and put her on a stomach medication (Prilosec or Prevacid...I can't remember which one). They said that excess stomach acid will constict the esophagus. Might be a possibility to look into. Hope you feel better soon!

Congratulations !!! How Wonderful !! I wanted to add...that I had horrible pain and ended up in the hospital when I found out I was pregnant also. I still don't know what caused all the pain but I have a healthy little girl. After an untrasound, The ER nurse told me I had a tubal pregnancy and the Dr was coming to "take it out"........after many tears that day....the Dr showed up and told me she was wrong luckily. I read the unltrasound report the next week and it said that I clearly was in the very early stages of pregnancy....I can't figure out why that nurse would do such a thing I think that all the pain might have been from the implantation...but I don't know...just glad things went well and hope all goes well for you too !!

You're welcome

There is a potassium sparing diuretic called Spironolactone. But, you probably don't want to take a water pill. Also, the ACE-inhibitors like lisinopril (Prinivil or Zestril) can increase potassium but they lower blood pressure.

Luv the poems !!! One of the best posts I have read on here. It sure did brighten up my day ! Thanks !!

I believe it is a test for inner ear dysfunction.

I get bruises on the tops of my feet occasionally. But, I get them very frequently on the backs of my thighs. I have know idea how they get there ??

smalltown southern Ohio

Four generations of fainters here too !! My niece, me and my brothers, my dad and most of his 6 siblings, and my grandfather. Until a few years ago - like Ernie - we all thought we were "normal" too. Many thought they had low blood sugar. Many of them are still in denial also and will not even discuss it. Without giving names - if anyone else has family roots in northern Ky near Maysville or Bracken county - or southern Ohio -send me a message. I would love to know beyond my grandfather which family it may have been passed from.

Klonopin 0.5mg every morning helps lessen my dizzyness. Ocassionally I take 0.5mg in the evening. I have less dizziness if I take 2 a day - but because of the addiction potential I tried to stick to just 1 a day. I'm considering going to 2 a day everyday because I would be able to be much more functionable. I would rather be able to enjoy life more !! I have gone off of it several times to see how I would do. No problems with stopping it, other than my dizziness gets so bad I am back in bed nearly 24 hours a day.

Thanks Steph! Great article

I had the blood volume test done a few years ago at CCF. My memory is not great but I do not remember it being painful. I have very poor venous access and they had some trouble getting a good vein to put the access in. They inject you with the T99 and wait awile and then draw some blood. They also take pictures of your heart at different times. It is a little uncomfortable because you have to lie still getting injected and then having blood taken out all while there is a large machine over top taking the pictures of your heart. I felt like I couldn't move. My test seems like it took most of the day. It was a long day, but mostly you just lie there. There were several rounds of injections and blood draws and pictures of the heart. The last injection i had to sit up to get the heart pictures so they could see the difference from lying down to sitting. They told me to drink as much water and gatorade as I could the night before and the morning of the test so they could get a good vein to use. I had to stop in the middle of the test to use the restroom after drinking so much. That took some time to get unhooked from everything just to go pee. I wonder about drinking all that excess fluid - if it interferred with the test. My results showed mild hypovolemia. I wonder if it would have been worse had I not drank so much, but I did what they said to do. They tried me on Florinef to increase blood volume, but it did not help my symptoms. Dr Grubb is considering procrit for me - but he never said it was because of low blood volume. He told me that procrit would be one of his first choices for POTS if it weren't so expensive and it was easier to take and monitor. Hope that helps Good Luck - it is not painful - just boring.

I don't know if this relates to your condition or not - but I was told that EDS could lead to uterine prolapse.