worththewords Posted July 11, 2006 Report Share Posted July 11, 2006 I have been getting sinus infections on and off since spring started. A couple times my allergist placed me on prednisone. Practically all of my POTS symptoms disappeared. I was even at my cardiologist while I was on the prednisone and told him how much better it made me feel. He agreed that prednisone could do that and warned me of having a crash when I came off of it. (Boy, did I!) While I was there though we did some experimenting, I could go from lying to sitting to standing without any changes in BP and very little changes in HR.Since then I've been really curious about taking prednisone to help with my POTS symptoms. I have heard it is not a good medication to take long term and I've heard various reasons why. However, it is the first thing that has truly made a difference!! Go figure. I felt almost completely normal, which was very odd to feel. I noticed on the 'what helps' portion of this site prednisone was listed. So I'm curious, does anyone here take it to help their POTS? I noticed this site mentions it helps patients in the acute post viral phase. I don't think my POTS was caused by a virus but regardless, it is helping!I've tried Florinef, Clonidine, Mestinon, etc. unsuccessfully and I'm allergic to beta blockers. Any thoughts or shared experiences would be appreciated! Quote Link to comment Share on other sites More sharing options...
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