Kitsakatsa Posted June 30, 2006 Report Share Posted June 30, 2006 So, I've had my standing pulse taken on a number of different occasions since having POTS and for the last year, it has come out to be around 90 beats per min. When I was initially diagnosed, it was 150 on tilt. Last year at Mayo is was, again, around 90- so we all thought that I was getting better right? This was actually distressing, because I still feel like crap and a few MDs said that I don't have POTS anymore. Well, I had to go off all meds for 48 hours for a Gastric Emptying Test. It was horrible, but while I was there and off everything, I had the cardiac center run an EKG after standing 10 minutes. Ta Da! 148 beats per minute and I got it printed. I just wanted you guys to know in case you are on what I'm on (see below)- your tilt table or standing pulse rate results can be altered by these medicines. At least, in my case they were dramatically. I guess that is why they make us feel better, but not totally mended. Maybe everyone knew this, but Wow- it was new to me! Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted June 30, 2006 Report Share Posted June 30, 2006 i'm glad that the meds are working for you. i hope that they continue to do so and you can live atleast a somewhat "normal" life. congratulations.dionna Quote Link to comment Share on other sites More sharing options...
dano2718 Posted July 4, 2006 Report Share Posted July 4, 2006 I noticed that you mentioned "trying exercise" for treatment. I'm still figuring out my situation regarding POTS - I get lightheaded but never any syncope. One thing that really surprised me is my heart rate delta has gone from consistently around 50 BPM (with a systolic BP delta sometimes around -20, -30 mmHg) down to 28 BPM over the last few weeks since doing about 2-3 hrs exercise a week. Fatigue has ameliorated too (which I already knew it would but had forgotten again!). ...Still learning. Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted July 4, 2006 Report Share Posted July 4, 2006 I guess that is why Dr. Grubb still diagnosed the POTS after a "normal" tilt table.My pulse did go up 30 BPM---but it took a while----I was on beta blockers. I was just too unstable to go off them----I would have ended up in the hospital. My BP also went down. Could you imagine what my pulse would have been off the BB-----if I still get tachy on them............ Julie :0) Quote Link to comment Share on other sites More sharing options...
AJVDK Posted July 4, 2006 Report Share Posted July 4, 2006 I am glad they where albe to get it on a EKG for you. I know its so hard some times when they say you are doing better and still feel so bad! I hope things will get better for you, and that them know you still have POTS they will be able to treat you, and able to start feeling better! Quote Link to comment Share on other sites More sharing options...
mom4cem Posted July 4, 2006 Report Share Posted July 4, 2006 One would think dr's would realize that beta blockers affect the pulse,,right? They are the ones who prescribe it!Hope you are on the track to wellness! Quote Link to comment Share on other sites More sharing options...
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