Clairefmartin Posted March 17, 2006 Report Share Posted March 17, 2006 Hi everyone,I keep reading all of your diagnosis at the bottom of your posts, and I had a question about getting tested for all those things. Did you see one doctor who specialized in dysautonomia, and if so, do you have suggestions as to where I should go? I live in Virginia, but am willing to travel. I am so frustated with the specialists I've seen, and my poor PCP admits he doesn't know what to do with me, so we basically picked the closest doctor from a list of centers for autonomic studies. I am scheduled at UVA with Dr. Phillips, and he has me scheduled for an EMG, but I think I need a TTT instead, or maybe both.I need to get tested for movement related near fainting (I have only blacked out once from standing up, but get lightheaded often), heart rate increases when I stand, GI problems, and these weird tremors and shaking sensations when I get tired or am trying to fall asleep, and a whole bunch of other minor things, like rhaynodes (I spelled that wrong!) in my hands. Just wondering what tests you guys had doen for your diagnosis, and if you had suggestions as to doctors.Thanks! Quote Link to comment Share on other sites More sharing options...
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