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About rdslots

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    Advanced Member
  • Birthday 04/14/1955

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  • Location
    Piedmont NC
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    With a s/n like rdslots? Avid reader, gardener, cook and cookbook-reader, recipe-try-er; miss water sports, esp. sailing off coast of NC, SC and VA. Daughter in 1st year college; wonderful supportive spouse, and great little 14-year-old Jack Russell Terrier. Recently forced into retirement from teaching HS English by NCS, et. al.

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  1. A lot of people get significant benefit from Florinef, but like you, I could not tolerate it. I was swollen too -- so much so, you could hardly recognize me. I got my husband to take me to the DR's office, and he agreed it was not a good choice. Several years later, another DR wanted me to try it, and when I shared with him my previous experience, and asked if he was going to monitor me on the Florinef, he said very matter-of-factly, "No," and advised I go to the ER if I ran into a problem. Can you imagine? I told him to 'stick it' -- well, actually my husband did. I had a bad first reacti
  2. Maryfw, good luck with the 30 day event monitor. I went from the telemetry unit in the hospital after my initial episode and TTT, to a 30 day event monitor, to having a Reveal monitor implanted just beneath the skin, following an EP study. While most Reveal monitors only last about 9-12 months, mine continued recording for close to 18 months, so that was a nice surprise. It gave the info the cardiologist was looking for, and while I am a candidate for a pacemaker (at some point), I seem to be able to function on a time-released beta blocker that I take at bedtime. Originally, I took the Inn
  3. OK, I am sharing this in the event someone else may be as odd as what I am (and possibly Melissa/Sunfish), and may benefit from the info I have gleaned from a couple of sources. It seems most compression hose are made of the same materials, nylon, spandex, and silicone, in varying %, and while it is not UNheard of, it is unusual for people to be allergic to the fabric in the hose -- for most, it may be the silicone in the thigh-high band. Some elect the panty hose style, and do well. Others are allergic to the fabric itself, and it may be the nylon or the spandex. I made a call, after conduc
  4. Unfortunately, the hives appeared all over the leg. The PA at the DR's office suggested I contact Bright Life to see if there were any other suggestions, or compression hose available made of different materials, but she said I may have to "chalk up" wearing compression hose. She had never heard of people being allergic to the fabric. I'm glad I had had some feedback from you folks, and my husband was home to see it for himself. I am really afraid to try it again.
  5. And to think you had time, and felt up to, responding to my little troubles. Hope this passes for you soon, and you feel better.
  6. Because I had not had the hose on since Saturday, I thought I would try this this evening -- a run-through of sorts. So much for that. Withing two minutes of pulling them up, my legs started itching -- mildly. I thought perhaps it would pass, but after 30 minutes, I wanted to scream. Now I have a nice pink rash and the itching is driving me nuts -- a lot like hives. Unless there is a compression hose out there of completely different material, I think I may well be out-of-luck. ARRGGHH.
  7. Promised I would get back to you all. I saw the PA at the vascular surgeon's office today, following the scan on my legs -- much to my chagrin I seem to have valve problems and varicosities in both legs, and according to the nurse, it's just a matter of time before the right leg starts bothering me. We compared the materials in the JOBST hose to that in the Mediven, and while the materials are the same, some of the % are different. Because we haven't been able to rule-out an allergy to the actual fabric of the hose, I am supposed to try them again to determine if the rash on my legs was in
  8. Thanks again for the feedback. I'll be sure to let you know what I find out tomorrow when I call the vacular surgeon's office, and go by the Medical Supply place. I don't think the Med Supply carried anything but the JOBST, but I do recall seeing the Mediven brand advertised in the surgeon's office. It's worth a try, I think, too. I am not chomping at the bit for surgery if other measures will help with the leg pain I experience.
  9. Thank you very much, all of you. I had the rash/blisters first thing yesterday morning, and it made me cringe to even bathe in a cool shower. The rash is better but the blisters are still there, and it all continues to itch and burn. I really think it is a sensitivity to something in the hose, and in the grippers at the top of the thigh-high variety. I'm not sure exactly what the vascular surgeon will want to do, but I will be calling his office first thing in the morning. For the most part, I had the impression we were sort of 'jumping through hoops' as required by my INS carrier before h
  10. The stockings are about three weeks old. I noticed from the first time I put them on, my legs itched, but I assumed it was just an initial 'getting-used-to-the-compression' sort of thing. I wash them as directed in a mild detergent that has never caused me any problem (I have to be careful about that too). I don't use lotion. I was also fitted for the stockings so I don't think that is the problem. These are actual blisters like I have gotten from skin sensitivities in the past -- a burn of sorts, which is what a bad allergy to latex is like. (My husband, the chemist, says it's xylene in
  11. If it helps you feel better, I was forced into early retirement because the public school system where I taught could not accommodate my NCS. Each time I hit the floor, they were required to call the EMTs, and I would find myself at the ER. I was lucky in that I did retire with 25+ years service, and was able to keep my INS benefits. Looking back, I could not have continued to teach, anyway. I am unable to sit or stand for long periods, and the demands of teaching were too much with these disorders. I hope you are able to find employment. You WOULD think such a thing would be illegal but I
  12. Your question caught my eye, so, for what it's worth. . . I have been seen by a vascular surgeon for leg pain, and had one Doppler scan done on my legs (and am scheduled for another this coming week). I have spider veins on my ankles, at my knees, and on my thighs. I have had them since I was a teen, and they were more pronounced when I was pregnant. The PA in the surgeon's office explained to me that spider veins were varicosities of varicose veins, and while I don't see any varicose veins, they are there -- deeper. I found that interesting. Varicose veins and spider veins tend to be here
  13. Sensitive skin, here -- always has been, but this is a new one to me. The PCP and a vascular surgeon to whom I was referred, prescribed thigh-high compression hose. I have been wearing JOBST, and have been wearing them at night to help with leg pain. Today, I had a rash, and actual blisters, where I must be allergic to the material at the top of the hose. I am allergic to latex, and most adhesives (like what you find on EKG stickies, and Holter monitors). NOwhere on the box did I see 'latex.' They do have 17% spandex and 11% silicone in addition to the elastic fabric. Anyone here familiar
  14. Good for you, Brown Eyed Chick. Sounds like you are trying to deal with it, and learn from a bad situation. I don't think age has much to do with maturity -- we tend to assume that by certain ages, people are 'grownups.' Keep in mind that adolescence, for many, believe it or not, lasts well into their 30s. I have known many adults, who by all indication of age, should've been grown-up or mature, emotionally as well as physically, but for whatever reason weren't. Try to keep in mind we are the sum total of our experiences, including our upbringing. The ex's behavior may well have been model
  15. My original diagnosis was NCS. My BP runs 90/60 but I have seen it as low as in the 80s/40s -- and once, it dipped into the 30s (but I had already been hospitalized so others were 'monitoring' me, too). My HR never gets out of the 60s, regardless of what I am doing. It has been the fatigue associated with all of this that gets me, as well as the unpredictablity of symptoms, etc. As time goes on, I have learned to pay attention to my body, and what goes on with me, and 'around' me, and I am more attuned to what may trigger an episode (which will cost me anywhere from 3-5 days, and has on occ
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