Family Doctor that knows about POTS needed

[shayden]

I live in Columbus, OH and I currently have a Family Physician who knows nothing about POTS and is not willing to learn. For the past 1 1/2 months I have been having severe POTS symptoms and have been seeing him approx. 2 times per week since this began. I thought everything was going alright..I mean...I wasn't extremely impressed...but I thought he atleast knew a little something. Then during my last appointment, when discussing what was going on, he says to me, " Well, it is probably just due to the Postular Orthostatic.......what is it that you have again?".

This brings me to why I am writing. Does anyone know of a Doctor in this area or close that knows what they are doing when it comes to POTS?

Thanks in advance for your help!

Susan

[Sue]

Susan

I don't live in your area, but how I found my primary care doctor was by calling the physician referral system through our area hospital . If you call a nearby hospital they should offer something like that. If they don't, call your insurance carrier and talk to them about this, they may be able to help you.

Boy don't I remember going to doctors who have no clue whats going on, why bother!!!

I wish you luck

Sue

[Reputta]

I don't live in Columbus, but my local neurologist referred me to Ohio State Univ. because he couldn't figure me out. I was diagnosed there by Dr. Kissel, professor of neurology. I have only seen him twice. Once for the initial visit and then once after my tilt table. He was very nice. Unfortunately at the time I had never heard of POTS and everything went over my head. He referred me back to my local neurologist whom has never heard of POTS either. He is trying though. Dr. Kissel is very hard to get in to see as he is very busy. The only reason I had an in is because my local neurologist had him in college. He had his home phone number.

[purplefocus]

Susan,

I don't have any suggestion for you about knowing a new doctor unless you want to commute to Alabama. But my advice is for you to find a new doctor immediately. With a doctor that doesn't listen to you about your symptoms can cause you harm. I have seem this first hand as a nurse working with uncaring doctors. Too many doctors are over worked (trying to get those extra patients in the office ) to have time to listen. There is some very wonderful doctors, please try to find one before this one fails you.

Paige

[calypso]

Primary care docs often haven't heard of POTS because it's really only been recognized in the last 10 years or so. Maybe younger doctors would be a better option (although my sister is one, she's early 30s and she hadn't heard of it either). But the key is not that they are an expert in it, but that they're willing to learn and work with a specialist to keep you functioning as best you can.

Make sure you continue to see a specialist and ask him/her to recommend a good internist or family doctor. Or print out info from this Web site and give it to the family doctor. That's what I did, upon recommendation from my neurologist.

[morgan617]

i have nothing against family practice doctors, but they tend to know a little about a lot. you are better off going to a speialist. as above, i would advise calling ins carrier to see who's on their list. good luck. morgan

[shayden]

Thank you all so much for your help. I currently see Dr.Grubb and unfortunetly, he did not know of anyone in my area.

PurpleFocus: I agree....I feel like my Doctor is doing much more harm then good.

Thanks Again to all!

Susan