Sue Posted April 27, 2004 Report Share Posted April 27, 2004 Hi I picked up a pamphlet for you this morning at Dr. Grubbs office/it is pretty informative, perfect to give to someone who just doesn't get it. I picked up extras for myself. you can email me at breystarr@aol.com I'll just mail to youHope you are having a great daysue Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 27, 2004 Report Share Posted April 27, 2004 Would you be willing to make a copy for me too?!I'll pay you for the costs.oct02mom@yahoo.com Quote Link to comment Share on other sites More sharing options...
denabob Posted April 27, 2004 Report Share Posted April 27, 2004 Wouldn't happen to have a scanner would you? I was thinking you could scan it and we could print it off?Just a suggestion, I know alot of us will be curious to see what it says and I figure my Dr would be interested in it also.( He struggles to get even his Dr friends to take this seriously!)Thanks ,Deanna Quote Link to comment Share on other sites More sharing options...
briarrose Posted April 27, 2004 Report Share Posted April 27, 2004 Hey guysThe NDRF puts out a great pamphlet that my cardiologist shared with me when I was first diagnosed. If you call them they'll send you one.I think that Grubb hands out many pamphlets that are even dropped off to him. Quote Link to comment Share on other sites More sharing options...
purplefocus Posted April 27, 2004 Report Share Posted April 27, 2004 Sue, Thank you so much. See how the people are on here ........ Paige Quote Link to comment Share on other sites More sharing options...
Sue Posted April 28, 2004 Author Report Share Posted April 28, 2004 No prob. If anyone wants a copy please email me at Breystarr@aol.com I will make copies and send them out. the pamphlet is titledWhat you need to know about Dysautonomias and it is actually from NDRFwritten by David GoldsteinBlair GrubbPhillip LowDavid RobertsonIrwin Schatzwhat this 11 page pamplet goes over isOIS, POTS, OI Symptoms, Management, PrognosisShy Drager, Symptoms, Longterm OutlookPAF, Symptoms and Management, Difference between PAF and POTsNCS, Symptoms and ManagementWhat is the Autonomic Nervous SystemHealth TipsCoping TechniquesBasic TipsResearch FacilitiesCatecholamine DisordersNDRF Mission StatementI have already shown it to my sister, (AKA its only a panic attack) All she said was WOW, sorry. Sue Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted April 28, 2004 Report Share Posted April 28, 2004 I have the pamphlet, and it's really pretty darned good. I've been saving it in case I need to give it to my folks at work.nina Quote Link to comment Share on other sites More sharing options...
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