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Nina
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This my first post so Hi to everyone. I was diagnosed with POTS six years ago, I was subsequently diagnosed with gastroparesis. Since then I seem to constantly pick up new symptoms that are not typically related to POTS. I suffer from arterial and vascular spasms. I am wondering if any one has problems with tingling. Recently I have been experiencing tingling and numbness while swimming with flippers on, riding the bike in the gym and more recently at work either sitting at the computer or walking around. I have also been getting tingling down both sides of my face. Since being diagnosed with POTS I get pins and needles very easily just resting my arms on any thing gives me PINS and needles. One evening when the pins and needles turned into burning I took some nitrate and it seemed to eliminate the symptoms. My POTS doc is not sure what is going on and wants me to se a neuro doc. Honestly I have had enough of doctors so if any one has a simple explaination or even ideas I would be greatful.

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Hi Nina,

first, I don't often meet someone with the same name as mine, so :) to that!

Tingling can be a sign of neuro problems, so you probably should consider doing what your doc has asked you. It could be autonomic neuropathy...but it could also be nerve compression from the spine or other bony structures pressing on nerves. Having POTS doesn't preclude having any other disorder, like back troubles. Better to find out and possible fix the problem instead of letting it go--I speak from experience.

Many years ago I started having numbness and tingling and just chalked it up to my wacky body. Bad move on my part b/c it was actually back trouble, and because of how long I let it go, I now have permanent loss of sensation in my hands.

Welcome to the forum. I hope you find much help,

Nina :)

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Welcome, Nina. Tingling sensations can be a part of the whole dysautonomia package. However, since the sx is new for you AND your doctor wants you to see a neuro I would certainly get it checked out further. Tingling can be serious and does not need to be disregarded as just another POTSy thing until it has been investigated. The fact you are hesitant to see yet another doctor is understandable. Yet, at some point nearly all of us have had to see a neuro, just to be sure. Good luck to you and glad you decided to join the forum!

Carmen

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This my first post so Hi to everyone. I was diagnosed with POTS six years ago, I was subsequently diagnosed with gastroparesis. Since then I seem to constantly pick up new symptoms that are not typically related to POTS. I suffer from arterial and vascular spasms. I am wondering if any one has problems with tingling. Recently I have been experiencing tingling and numbness while swimming with flippers on, riding the bike in the gym and more recently at work either sitting at the computer or walking around. I have also been getting tingling down both sides of my face. Since being diagnosed with POTS I get pins and needles very easily just resting my arms on any thing gives me PINS and needles. One evening when the pins and needles turned into burning I took some nitrate and it seemed to eliminate the symptoms. My POTS doc is not sure what is going on and wants me to se a neuro doc. Honestly I have had enough of doctors so if any one has a simple explaination or even ideas I would be greatful.

HI NINA, MY NAME IS LYNDA. I HAVE A LOT OF TINGLING AND I DO NOT HAVE POTS. THEY STILL DON'T KNOW WHAT IS GOING ON WITH ME. THE TINGLING SENSATION IS VERY WEIRD AND IT REALLY MAKES ME FEEL CRAPPY AND IT CAN BE VERY SCARY AT TIMES. ONE TIME I THOUGHT I WAS HAVING A STROKE BUT TESTS RULED THAT OUT. MY AUTONOMIC DOC IS ALSO A NEUROLOGIST. HE JUST RECENTLY SENT ME TO CHICAGO TO SEE ANOTHER SPECIALIST. NO RESULTS YET. I'LL POST THEM WHEN I GET THEM. DOES ANYONE ALSO HAVE A PROBLEM WITH DIABETES? I AM POST GASTRIC BYPASS AND I HAD DIABETES BEFORE THE SURGERY AND FOR ONE YEAR I WAS RID OF IT AND AFTER THAT DYSAUTONOMIA SET HOLD AND I AM REAL BRITTLE WITH MY GLUCOSE LEVELS. ONE THING THE DOC DID SAY IS THAT THE TINGLING MOST LIKELY IS FIBROMYALGIA. THEY PUT ME ON ELAVIL AND THAT DID SEEM TO HELP A LITTLE.

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Hi. I have Pots and gastroparesis and autonomic neuropathy. Before I got sick I never really had problems with tingling unless I was sitting on my feet for a long period. Now I can rest my hands funny or sit with my legs crossed and get tingling in a few minutes. My newest thing is a tingling in my bottom lip. It's nothing major I just feel it sometimes. POTS, Gastroparesis and autonomic neuropathy are just specific names for an autonomic dysfunction so I just chalk up these symptoms to a malfunction in the autonomic system.

I know how you feel about seeing more doctors but I would get this checked out from a neurologist just to eliminate anything.

Dayna

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