Nina

My POTS has been stable for 5 years with florineff and 25mg bd of metoprolol. However over the last six months my tachycardia has come back. I have been put on 100mg bd of metoprolol which is a very high dose and reduces my heartrate to 35 at night and in the low 50's during the day. However the tachycardia is still coming back occasionally and it does not look like I can take any more beta blocker. I was told that if I have a pace maker to stop the bradycardia they could give me more beta blocker to stop the tachycardia. Does any one have a pace maker for this problems and if so what are you comments. Thanks Nina

Hi I take domperidone, I was diagnosed with gastroparesis not long after being diagnosed with POTS. Since being diagnosed with POTS I also became highly sensivtive to medication having seizures and requiring intubation after many medications. I lived in Boston for three years however I am from Australia and I am now back home. I did not respond well to regland so my mother sent me domperidone. For me it works extremely well and I have never had any problems. Although it is not used in the US it regularily used in many other countries. My gastroparesis seems to have good days and bad days so I use the medication when I need it. However in the begining I took it four times a day. Due to my sensitivities with medications I always take new medications in the presence of other people. Hope this helps. Nina

chest pain, I seem to be able to deal with every thing else but there is not enough drugs to take away the chest pain. Nina

This my first post so Hi to everyone. I was diagnosed with POTS six years ago, I was subsequently diagnosed with gastroparesis. Since then I seem to constantly pick up new symptoms that are not typically related to POTS. I suffer from arterial and vascular spasms. I am wondering if any one has problems with tingling. Recently I have been experiencing tingling and numbness while swimming with flippers on, riding the bike in the gym and more recently at work either sitting at the computer or walking around. I have also been getting tingling down both sides of my face. Since being diagnosed with POTS I get pins and needles very easily just resting my arms on any thing gives me PINS and needles. One evening when the pins and needles turned into burning I took some nitrate and it seemed to eliminate the symptoms. My POTS doc is not sure what is going on and wants me to se a neuro doc. Honestly I have had enough of doctors so if any one has a simple explaination or even ideas I would be greatful.