Jacquie802 Posted January 19, 2006 Report Share Posted January 19, 2006 Hi, I am wondering if anyone here knows whether or not the BP meds that some of us take will have to be taken forever...? Like if a person takes Florinef, Midodrine, or any med like that, can our BP ever be fine without it? Quote Link to comment Share on other sites More sharing options...
Richland acres Posted January 19, 2006 Report Share Posted January 19, 2006 Hey great question!! I dont know the answer but hope some one will be able to share some knowledge. Brenda Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted January 19, 2006 Report Share Posted January 19, 2006 Interesting question, I've kind of been wondering the same thing because I'm being really bad and not taking my Florinef right now. I've been to the doctors since this and my blood pressure is fine. Hope someone knows the answer though! Quote Link to comment Share on other sites More sharing options...
Ernie Posted January 19, 2006 Report Share Posted January 19, 2006 Hi,My doctors told me that I will be on meds for the rest of my life. I have accepted it now because I am plainly non functional without them. Quote Link to comment Share on other sites More sharing options...
yogini Posted January 19, 2006 Report Share Posted January 19, 2006 I took florinef for about a year, and then my BP came up on its own, so I stopped taking it. I have been taking atenolol for almost two years. I have been weaning off of it for the past few months and hope to be completely off of it (and med free!) in the next few weeks. I think just it depends on each person... Quote Link to comment Share on other sites More sharing options...
Meliss446 Posted January 19, 2006 Report Share Posted January 19, 2006 I have been told by doctors that it depends on the severity of your condition. Initially, they thought I would be off medications within a year or so, as mine was post viral and expected to resolve itself. Some doctors also told me I would just "grow out of it". But as the doctors realized that it is pretty severe for me, it seems like they are realizing that it will be longer and isnt resolving after four years. So I think that it depends on your specific situation, but for me I think I will be on meds for a while. My BP is more stable now, but if I accidently forget to take my medicine one morning, I can definitely tell because I get hypotensive. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 19, 2006 Report Share Posted January 19, 2006 Severity and duration of POTS symptoms varies tremendously from person to person, so probably no one can answer your question. Also, medical research is only just beginning on this disorder. Some people with POTS do remain on meds for very long periods, others improve and can wean off after some time. My bp has evened out over time in my case, but of course, it is not possible to know what the future holds.Katherine Quote Link to comment Share on other sites More sharing options...
persephone Posted January 19, 2006 Report Share Posted January 19, 2006 no, i don't think you'll have to take them for the rest of your life. I can go for months and not take anything when I'm well.Sometimes your body can kind of click back into normal mode. Well, for some people anyway. Quote Link to comment Share on other sites More sharing options...
Mrs. Glass Posted January 21, 2006 Report Share Posted January 21, 2006 I think that it probably depends on the person and how their body reacts to everything. As for me my docs dont know yet. They can not get my b/p under control. Vanessa Quote Link to comment Share on other sites More sharing options...
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