yikespanic Posted November 29, 2005 Report Share Posted November 29, 2005 Hi, I'm new to this forum and have so many questions. I had a bad virus last Dec 04 which left me with a long lasting ear infection which progressed to dizzyness and vertigo. Not quite spinning but very dizzy and had continual car sick feeling and fatigue. Underwent vestibular testing at the Cleveland Clinic. They said my ears were sending my brain one signal as to my balance and my neck nerves were sending a conflicting signal thus the vertigo. At this same time I was complaining of not only dizzyness, but when I would stand up, reach up with my arms for something, or stand in one place like in lines I would feel the blood rushing from my head seeing stars. It was happening while I was driving, and scareing me horribly. I began to have panic attacks during this time also. Finally after being bounced from several specialists, one even telling me it was my immagination, I was sent to a rheumitologist at the clinic. After telling him all my complaints, he took my BP, and continued to take it while I was in several positions over time. He told me he thought I may have positional hypotension. Finally something, a name. Maybe I wasn't crazy and immagining all this. He prescribed Atenolol. I was sent to Dr Fouad at Cleveland Clinic. After many tests, (tilt table, blood volume, medicated stress test, and a few I don't even know the names of, over two days.) She diagnosed me as having orthostatic dystolic hypotension, and rapid blood flow heart rate. Because I was on Atenolol at time of test, there is the possibility that I also have POTS as I was borderline for this and the Atenolol may have interfered with results slightly. My Atenolol was changed to Lopressor because the Atenolol seemed to make me feel depressed. The problems I am having is that now I am feeling depressed again and I am afraid it might be the Lopresor. I went to my Internal Med Dr and she said she understood about my condition and put me on Nortriptyline. I took it for about a week and noticed at Thanksgiving I couldn't even stand up without feeling like I might pass out. Called Dr. Fouad and she said STOP taking it, it isn't safe for me. Now I don't feel comfortabe with my internist. She prescribed something that she shouldn't have. I changed to her because after explaining my condition to my old Dr. when I had my physical she said it wasn't necessary to take my BP positionaly. I couldn't believe it. Why arn't Dr's aware of this problem and it's care? Where is someone to turn? I heard of a Dr in Toledo, Dr. Grubb, I am sending him my medical records, but they said no appointments till late May early June 06!!!!! Does anyone know of a Dr in Northeast Ohio, who understands these conditions and can properly treat? Dr. Fouad doesn't normally see patients only tests and diagnoses. She said she'd see me until I found a Dr. Even a bad sinus infection I had recently was a problem, cuz my internest gave me entax, Fouad said not to take it, it would increase my heart rate that is already to high. YIKES!!!!!!!!!!!!It's so frustrating!!!!!!!!!!! The other side of it is this. Everyone asks me my don't I go back to work! I don't look sick. They don't understand how I feel on the inside. Some mornings I am so fatiqued, I can hardly drive my kids to school. Then I am afraid of getting dizzy while driving. Then I'm franticly making sure I have eaten something saltly enough times throughout the day to keep BP up to keep bad symptoms down. Then because I've gotten dizzy while driving and it triggered panic feelings I have developed anticipatory anxiety even before I get in the car. I feel like how did this happen to me!!! On top of all this, about the time I orginaly got sick in Dec 04 I have been under alot of stress. Somehow I feel this has played a part in doing this to me. When I saw this site I was so happy to see that there are others in the same situation. (I'm not happy your all having problems, just that I am not alone.) I don't know a single person who has this type of problem. I feel like I am on a merry go round of symptoms, fear, panic, anxiety. I'd appreciate any suggestions Kim Quote Link to comment Share on other sites More sharing options...
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