briarrose Posted October 23, 2005 Report Share Posted October 23, 2005 American Dysautonomia Institute http://www.adiwebsite.org/index2.html Quote Link to comment Share on other sites More sharing options...
Gena Posted October 23, 2005 Report Share Posted October 23, 2005 This is interesting. I went to their links page and it had some other useful links as well. One of the links is great for really differentiating POTS, orthostatic Hypotension, dysautonomia, etc. from each other. Great info Steph. Thanks.Gena Quote Link to comment Share on other sites More sharing options...
futurehope Posted October 23, 2005 Report Share Posted October 23, 2005 Thank you so much for posting this. I pray that this disabling condition will get more and more of the attention it deserves. Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 23, 2005 Report Share Posted October 23, 2005 HI,Thanks for the link.It is so sad that funding for research is being cut. We need so much of that money to advance our treatment plan. Quote Link to comment Share on other sites More sharing options...
michiganjan Posted October 23, 2005 Report Share Posted October 23, 2005 'Thank you, Briarose for posting this link. I had never heard of this website.Michigan Jan Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted October 23, 2005 Report Share Posted October 23, 2005 thanks for posting this site. I had never heard of it either!The problems with NIH and funding reminds me of the fight the CFS groups had in the early 90's!! Sheesh. It's pitiful all the money is spent on dx and not more on treatment. So sad Dr. Streeten passed away..he was so ahead of his time in his fascination with the ANS. I hope in the future some media enlightment may help show how WIDESPREAD this illness is (over 500,000 estimated to have ANS according to many specialist) And not to mention MANY not dx or wrongly dx.Great site! Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted October 24, 2005 Report Share Posted October 24, 2005 thanks for posting the site! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 24, 2005 Report Share Posted October 24, 2005 Glad to see this, and thanks for posting this. They need a proof-reader/editor. It is hard to accept material as legitimate when there are mis-spellings and poor grammar. Not the quality of site that this one is. In any case, I hope they succeed in their mission of increasing funding for research. Katheirne Quote Link to comment Share on other sites More sharing options...
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