calypso Posted September 6, 2005 Report Share Posted September 6, 2005 Do any of you feel like since you became ill with POTS, that your sensation throughout your body has diminished?If I cut myself or get scratched -- as I did the other day when clearing some thorny brush -- I just don't feel it much. I also notice that if I drip water on my leg or foot, I sometimes don't feel it. To be blunt, the same goes for my genitalia -- I don't feel as much sensation there, either.I posted a year or so ago about in the winter, when my hands are cold, not being able to distinguish the temperature of the water when I wash my hands. I can't tell if it's hot or cold sometimes.Any ideas? I had a nerve conduction study a year and a half ago that was normal, but this seems to have worsened since then.Amy Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 6, 2005 Report Share Posted September 6, 2005 Amy--I think this has come up before, too. I have this problem at times--generally limited to my lower legs. Very strange. It comes and goes--but the surface of my skin can feel quite numb at times. I also had a nerve conduction study done that was normal--back in 2003 when I was first diagnosed.Katherine Quote Link to comment Share on other sites More sharing options...
Gena Posted September 6, 2005 Report Share Posted September 6, 2005 I guess dysautonomia is truly a strange beast, because I have noticed the exact opposite problem. I experience sensations and pain in my skin much more intensely than before. Hmmm, very odd. Gena Quote Link to comment Share on other sites More sharing options...
ethansmom Posted September 6, 2005 Report Share Posted September 6, 2005 I'm with Gena, I tend to feel everything more now because I am more aware of what is going on with my body. Also, any sensation of pain or intense cold/hot seems to offset symptoms for a few minutes (i.e. walking out into the cold or heat, or getting in the shower or a pool). If I cut myself or stub my toe, the adrenaline rush from the pain seems to make me feel funny for a while. Interesting! Quote Link to comment Share on other sites More sharing options...
Laura Posted September 6, 2005 Report Share Posted September 6, 2005 Hi Amy! I've noticed some of the same things... mine seems to sort of fluctuate at times though. For example, sometimes when I use the washroom I can't tell if I am urinating or not, other times it's fine. I have some areas on the tops of my feet that don't have much feeling and some on my legs. But then, sometimes my feet just burn and I can't stand anything touching them! I don't know, it's just weird. I slammed my hand in the door a couple of weeks ago and didn't really feel it, though my hand was bruised, swollen, and bleeding. It was suggested that I had Pots with autonomic neuropathy, so for me probably it's related to that. Laura. Quote Link to comment Share on other sites More sharing options...
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