Derek1987 Posted May 11, 2019 Report Share Posted May 11, 2019 This has been going on a long time now I just never mentioned it. Everyday at some point from my knees and below I feel my legs pulsating. I've been mainly stuck in the bed since September. Anybody experience this and find out what exactly is going on? Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 11, 2019 Report Share Posted May 11, 2019 @Derek1987 - I have heard from other posters that this can be symptom of low blood volume, but I don't know much about it. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted May 13, 2019 Author Report Share Posted May 13, 2019 On 5/11/2019 at 4:56 AM, Pistol said: @Derek1987 - I have heard from other posters that this can be symptom of low blood volume, but I don't know much about it. Doesn't sound good. Quote Link to comment Share on other sites More sharing options...
JimL Posted June 3, 2019 Report Share Posted June 3, 2019 Have you had any vascular studies done? Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted June 3, 2019 Author Report Share Posted June 3, 2019 1 hour ago, JimL said: Have you had any vascular studies done? Sorry I'm ignorant. What kind? Quote Link to comment Share on other sites More sharing options...
JimL Posted June 3, 2019 Report Share Posted June 3, 2019 35 minutes ago, Derek1987 said: Sorry I'm ignorant. What kind? Have you had ultrasound diagnostics of the arteries and/or veins in your legs and abdomen? Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted June 3, 2019 Author Report Share Posted June 3, 2019 39 minutes ago, JimL said: Have you had ultrasound diagnostics of the arteries and/or veins in your legs and abdomen? No. Just my throat and heart. I forgot to mention it to my PCP my last visit. 🤦♂️ Quote Link to comment Share on other sites More sharing options...
Lily Posted June 4, 2019 Report Share Posted June 4, 2019 I have blood pooling. If I stand up without any compression gear on, within a few minutes my feel will get pink and the veins in my feet will start to distend out from my skin. The longer I stay still the darker they get. I thought it was normal (they're red because I'm standing on them) until my POTS doctor told me otherwise. He recently told me that I could also have blood pooling in my abdomen, but it won't turn red as a result. He advised that I try abdominal compression, and that ladies shapewear is sufficient. Boy was he right! I tried it with and without the compression hose, and shapewear alone is more effective than the hose alone if I'm not planning to stand up for long periods of time. Amazing. Anyway, that is all I can say about blood pooling. I do not experience the sensations you mentioned. Quote Link to comment Share on other sites More sharing options...
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