DizzyGirls Posted January 22, 2019 Report Share Posted January 22, 2019 I'm wondering.... has anyone here been diagnosed with epilepsy? My oldest daughter has a referral to the Epilepsy Clinic at Stanford because a very well-reputed cardiologist thought outside the box and wants to investigate the possibility of my daughter's vertigo being a type of seizure. I recently discovered that my youngest is getting "flicker vertigo". Our LED candles in one of the rooms was causing what I think might be an absence seizure. She gets real tired, can't talk, her eyelids will flutter a lot, she stiffens up, and then when she starts coming around, is kind of tachycardic. Thought this was POTS at first, but I'm thinking otherwise right now. I looked up Flicker Vertigo and her reactions are a textbook description, but, oddly enough, my daughter said it isn't like her regular vertigo, however. She said it's different. Both girls have EDS and POTS and was curious if there are any other POTSies out there who experience this. Quote Link to comment Share on other sites More sharing options...
Pistol Posted January 22, 2019 Report Share Posted January 22, 2019 They may put her in an epilepsy-monitoring-unit for a few days to investigate. I take autonomic seizures and was in one for a few days - it's essentially a long-term EEG and heart monitor. I am glad this cardiologist came up with that idea - this new direction might bring answers? I hope so. Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted January 22, 2019 Report Share Posted January 22, 2019 Not diagnosed but they want to work me up for it. I have a question though. If you have it, what will they do about it? I'm trying to transition from Gabapentin to Topamax, both seizure drugs. The Gabapentin wasn't good enough. I'm hoping the Topamax will be and I can avoid the work up. Quote Link to comment Share on other sites More sharing options...
gackedo Posted January 23, 2019 Report Share Posted January 23, 2019 I was diagnosed with temporal lobe epilepsy about the same time I was diagnosed with POTS. I went to the neurologist bz of memory loss and missing periods of time and my EEG was abnormal. I take Keppra and Lyrica to prevent any further seizures. Quote Link to comment Share on other sites More sharing options...
Clb75 Posted January 23, 2019 Report Share Posted January 23, 2019 I had continuous vertigo 6 weeks straight when I first got sick with pots. I remember I did have an abnormal eeg at that time but it wasn’t enough to say it was a seizure disorder. Quote Link to comment Share on other sites More sharing options...
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