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Posted

Hi does anyone have issues after sitting for like an hour or a little more.....so I have been  mostly laying in bed and getting up and standing for the past few months due to my new illness......I used to sit and sew for 6 hours per day with getting up from time to time.....today I thought I was feeling up to getting out of bed and doing a little bit of sewing....my blood pressure had been good and heart rate not too high ..only about 110 on standing....so I thought I could do this .....so I sat on lots of cushions and began to sew for about an hour....the last few minutes of my sewing time I started to feel funny.....not like I was going to pass out but my face went numb and tingly....weird ....and then I just felt sick to my stomach etc.....so I had to quit with the sewing.......so my question is has anyone else had this happen to them....and can Dysautonomia be caused by spinal problems...because I have bad spinal issues...herniated disks and degenerative disk disease....could those cause or make worse dysautonomia...thanks for any info

Posted

That is an interesting question. Not sure if bad spine could cause it. I don't see why not though. Maybe someone else has come across that information. 

The sitting can cause symptoms. Sitting can cause blood pooling away from your head and/or heart. In the beginning I would have issues sitting without symptoms. I would talk to your doctor in case it is something else though. 

Posted

I had severe scoliosis as a kid and had surgery for it when I was 13. I still have an area around my left shoulder blade that has lost a lot of sensitivity (almost numb but not quite). My dysautonomia symptoms didn't start and begin to really flare until I was about 18... That being said, I recently asked a neurologist I saw if my spinal issues or scoliosis surgery in general could have caused POTS. He didn't really have an answer for me. He didn't say much at all really... I guess because 5-6 years in between is a long time so it's hard to say for sure  

Ive always thought to some degree that the surgery caused some sort of problems, because it's a major operation and of course there are so many nerves running along and around your spine, but I really have no idea if it triggered dysautonomia. I still have mild back pain nowadays which is usually worse during my time of the month or a symptom flare up. 

Posted

thank Jklass44 ......my tail bone has hurt for quite a while too......so many nerves in our spine....that go to every organ etc....my spine is a mess....

I had been doing better just laying in bed and resting....or standing even....even though my HR goes up....but after sitting for that hour when I got up.....

wow.....I will try 10 minutes of sitting then 5 standing then 10 sitting etc etc.....to see if that helps.....I miss doing my work.......

Posted

You can have spinal problems run concurrent with dysautonomia. I have numbness and tingling in my limbs as well as gait and balance problems walking. I was sent for xrays and sonograms and they found spinal radiculopathy in both lumbar and cervical regions. Prescriptions for PT did a great job of relieving a lot of the symptoms from the radiculopathy and increased my mobility but the dysautonomia symptoms are still there. I am 61, these are common afflictions of age, or either work related or sports injuries if you are much younger.  I would call your neuro's office and describe your symptoms and ask if they would like to come in or refer you to another specialist. 

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