stooshiecat Posted August 14, 2018 Report Share Posted August 14, 2018 I was diagnosed with POTS about 8 months ago and was put of Verapamil (lowest dose). I found an immediate change with it in regards to my heart rate - I went from 120-140 standing to 80-90. My GP decided to keep me on the low dose of Verapamil for a while to let my body adjust. My problem is, I'm getting all the POTS symptoms without the increased heart rate now. I can stand for longer without my HR shooting up but I still get really clammy/sweaty, tired and a bit breathless when I'm on my feet. Has anyone else experienced this? I also still get little episodes sometimes when I get really shaky like my blood sugar is low. It's driving me up the wall so any advice you can give me would be amazing. Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted August 14, 2018 Report Share Posted August 14, 2018 I have this problem. I am not sure why. I am meaning to talk to my specialist the next time I see him about it. Just because it bothers me not having that easy to check indicator telling me to slow down or go lay down. Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 15, 2018 Report Share Posted August 15, 2018 I have been on meds for many years and rarely get true tachycardia any longer but - like for you - I still get the symptoms of orthostatic intolerance and still will pass out if I do not limit myself. I will get HR 120 - 130 before syncope or autonomic seizures but often the pre-syncope is with HR less than 90. Mostly I get chest pain instead of tachycardia. Quote Link to comment Share on other sites More sharing options...
p8d Posted August 15, 2018 Report Share Posted August 15, 2018 I am the same. It’s what really limits my being upright very long. I have hyper pots and I wonder if it’s the sympathetic nervous system kicking in? Quote Link to comment Share on other sites More sharing options...
stooshiecat Posted August 15, 2018 Author Report Share Posted August 15, 2018 Glad I'm not the only one :). The cardiologist discharged me after my diagnosis so it's just the GP seeing to me now but it's a nightmare trying to get an appointment. I asked for one the other day but the diary is booked up until the middle of September! Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 16, 2018 Report Share Posted August 16, 2018 @stooshiecat - what do you mean "the cardiologist discharged you after diagnosis"? No suggestions, no treatment options? That sounds not acceptable to me. If you are symptomatic and your GP does not accommodate you then you should get a second opinion or change docs ( in my opinion ). Quote Link to comment Share on other sites More sharing options...
yogini Posted August 16, 2018 Report Share Posted August 16, 2018 Are you measuring your blood pressure when you aren't feeling well. Quote Link to comment Share on other sites More sharing options...
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